Gaucher disease
- National Gaucher Foundation
- 11140 Rockville Pike, Suite 101
- Rockville, MD 20852-3106
- Phone: 800.925.8885 or 301.816.1515
- Fax: 301.816.1516
- E-mail: ngf@gaucherdisease.org
-
- See International links Associations around the World
Gaucher Association,
some materials in German and Italian
- International Patient Advocacy Association
- 800 Bellevue Way, MGM Building, Suite 400
- Bellevue, WA 98004
- Phone: (800) 515-4445 or (206) 462-4037
- Fax: (206) 462-9532
- CARE
Program
- National Gaucher Care Foundation, Inc.
- 11140 Rockville Pike, Suite 350
- Rockville, MD 20852
- Phone: 800-925-8885
-
- GenDis-J Listserv discussion group for
Gaucher and other genetic diseases, for individuals concerned with the various
genetically-transmitted diseases affecting Jewish populations. Discussions
not limited to Jewish people, however. Subscribers include professionals,
patients, researchers, religious leaders, students, parents, and interested
friends and others. GenDis-J-Request@maelstrom.stjohns.edu
Frequently Asked Questions file, at http://www.gaucherdisease.org/list.htm
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Genetics Education Center
University of Kansas Medical Center © 1995-2008
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu
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