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Gaucher disease


National Gaucher Foundation
11140 Rockville Pike, Suite 101
Rockville, MD 20852-3106
Phone: 800.925.8885 or 301.816.1515
Fax: 301.816.1516
E-mail: ngf@gaucherdisease.org
 
See International links Associations around the World

Gaucher Association, some materials in German and Italian

International Patient Advocacy Association
800 Bellevue Way, MGM Building, Suite 400
Bellevue, WA 98004
Phone: (800) 515-4445 or (206) 462-4037
Fax: (206) 462-9532
CARE Program
National Gaucher Care Foundation, Inc.
11140 Rockville Pike, Suite 350
Rockville, MD 20852
Phone: 800-925-8885
 
GenDis-J Listserv discussion group for Gaucher and other genetic diseases, for individuals concerned with the various genetically-transmitted diseases affecting Jewish populations. Discussions not limited to Jewish people, however.   Subscribers include professionals, patients, researchers, religious leaders, students, parents, and interested friends and others. GenDis-J-Request@maelstrom.stjohns.edu   Frequently Asked Questions file, at http://www.gaucherdisease.org/list.htm  

Also See:


To locate a genetic counselor or clinical geneticist:


Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu


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