
Fragile X Syndrome
- FRAXA Research Foundation
45 Pleasant St.
- Newburyport, MA 01950
Phone: (978) 462-1866
- Fax: (978) 463-9985
Web site: http://www.fraxa.org
- E-mail: fraxa@seacoast.com
or kclapp@fraxa.org
- Information in English, Japanese, German, Spanish, French or
Hebrew
- National Fragile X
Foundation
- P.O. Box 190488
San Francisco, California 94119
800-688-8765 or 510-763-6030
- Fax 510-763-6223
- E-mail: natlfx@sprintmail.com
- Web site: http://www.nfxf.org
or http://fragilex.org/
Fragile X Research Foundation
of Canada (Fondation
Canadienne de Rescherche sur le Syndrome de Fragilite' du Chromosome X),
English, French, and Portuguese
(including links to
other organizations)
Also see:
- National
organizations information on genetic conditions or birth defects
- Fragile
X Syndrome: Diagnostic and Carrier Testing, when and how to
test for fragile-X syndrome, Policy Statement, American
College of Medical Genetics
- Fragile
X, Society for Neuroscience Brain Briefings, 1998
- Fragile X Association of
Germany (Online der Interessengemeinschaft Fragiles-X e.V.)
- O.A.S.I.S.
(Online Asperger Syndrome Information and Support)
- Heartstrings
Community Foundation,
Kansas City, Newspaper
article July 2002
- Die
Interessengemeinschaft Fragiles-X, Germany
- Fragile-X
Foundation, Southern California
- Fragile-X
Syndrome,
Great Ormond Street Children's Hospital and the Institute of Child Health,
United Kingdom
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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu
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