Fragile-X syndrome

Fragile X Syndrome

FRAXA Research Foundation 45 Pleasant St.
Newburyport, MA 01950 Phone: (978) 462-1866
Fax: (978) 463-9985 Web site: http://www.fraxa.org
E-mail: fraxa@seacoast.com or kclapp@fraxa.org: Information in English, Japanese, German, Spanish, French or Hebrew

National Fragile X Foundation
P.O. Box 190488 San Francisco, California 94119 800-688-8765 or 510-763-6030
Fax 510-763-6223
E-mail: natlfx@sprintmail.com
Web site: http://www.nfxf.org or http://fragilex.org/

Fragile X Research Foundation of Canada (Fondation Canadienne de Rescherche sur le Syndrome de Fragilite' du Chromosome X), English, French, and Portuguese (including links to other organizations)

Also see:

National organizations information on genetic conditions or birth defects
Fragile X Syndrome: Diagnostic and Carrier Testing, when and how to test for fragile-X syndrome, Policy Statement, American College of Medical Genetics
Fragile X, Society for Neuroscience Brain Briefings, 1998
Fragile X Association of Germany (Online der Interessengemeinschaft Fragiles-X e.V.)
O.A.S.I.S. (Online Asperger Syndrome Information and Support)
Heartstrings Community Foundation, Kansas City, Newspaper article July 2002
Die Interessengemeinschaft Fragiles-X, Germany
Fragile-X Foundation, Southern California
Fragile-X Syndrome, Great Ormond Street Children's Hospital and the Institute of Child Health, United Kingdom

To locate a genetic counselor or clinical geneticist in your area:

Revised September 16, 2002

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