Epidermolysis Bullosa

Acantholysis Bullosa, Acanthosis Bullosa, Bullosa Hereditaria, Dominant and recessive epidermolysis bullosa, Dowling-Meara Syndrome, Epidermolysis Bullosa Acquisita, Epidermolysis Bullosa Hereditaria, Epidermolysis Bullosa Letalias, Epidermolysis bullosa letalis, Epidermolysis bullosa simplex, Epidermolysis Hereditaria Tarda, Goldscheider's Disease, Hallopeau-Siemens Disease, Heinrichsbauer Syndrome, Herlitz Syndrome, Hyperplastic Epidermolysis Bullosa, Keratolysis, Kobner's Disease, Localized Epidermolysis Bullosa, Polydysplastic Epidermolysis Bullosa, Simplex Epidermolysis Bullosa, Weber-Cockayne Disease, Weber-Cockayne syndrome

DebRA of America, Inc. (Dystrophic Epidermolysis Bullosa Research Association): 5 West 36th Street, Room 404; New York, N.Y. 10018; Phone: 212.868.1573
Fax: 212.868.9296
E-mail: debraorg@erols.com or debra.nurse
Web site: www.debra.org; subtypes

EB InfoWorld [formerly Ebmommas (epidermolysis bullosa mommas)]

Epidermolysis Bullosa Medical Research Foundation: Web site: www.ebkids.org/; E-mail: ebmommas@ebmommas.org

International web sites

International DEBRA: www.debra-international.org/ (Extensive current list of countries and groups)
Australia: www.debraqld.org/ (includes list of other eb international resources)
Austria: www.debra-austria.org/
Belgium:www.debra-belgium.org/
Canada, www.debracanada.org
Chile, www.debrachile.cl
Costa Rica, www.debrachile.cl
Croatia, www.debra-croatia.com
Czech Repuclic, www.debra-cz.org
France (Epidermolyse Bulleuse Association D'Entraide EBAE): www.ebae.org/
Germany www.ieb-debra.de or www.debra.it/
Hungary, www.debra.hu
Ireland: www.debraireland.org/
Italy (Associazione per la Ricerca sull'Epidermolisi Bollosa Distrofica): www.debra.it
Netherlands: www.debra.nl
Norway, www.debra.no
Poland, www.debra-kd.pl
Spain: www.aebe-debra.org/
Sweden, www.debra-sweden.org
United Kingdom: www.debra.org.uk/

Also See:

Epidermolysis Bullosa Simplex, GeneClinics, [Includes: EBS - Weber-Cockayne (EBS-WC), EBS - Koebner (EBS-K), EBS - Dowling-Meara (EBS-DM), EBS - Mottled Hyperpigmentation (EBS-MP)] Clinical Featurs of Subtypes
About epidermolysis bullosa, Guy's & St Thomas' Hospital
DebRA of Michigan
Dermatology Online Atlas (DOIA) Erlangen: Epidermolysis Bullosa Hereditaria
DermWeb, dermatologist site
EB registry site, Stanford University
Epidermolysis Bullosa Dystrophica, Online Mendelian Inheritance in Man, (OMIM), Dominant Neonatal Form, Hallopeau-Siemens Type, Pasini Type
Epidermolysis Bullosa homecare treatment
Epidermolysis Bullosa, Hellenic Association of Dermatology
Official Patient's Sourcebook on Epidermolysis Bullosa, ICON Group International 4370 La Jolla Village Dr. San Diego, CA 92122
Electronic textbook of dermatology (blistering diseases)
Inherited EB: Revised Classification System, June 2000
Role of different types of collagen, Swathmore

National organizations, resources

Genetic counselors and clinical geneticists:

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