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Ehlers-Danlos syndrome


Ehlers-Danlos National Foundation  (EDNF)
3200 Wilshire Boulevard, Suite 1601 South Tower
Los Angeles, CA 90010
(213) 368-3800
Fax: (213) 427-0057
E-mail: loosejoint@aol.com
Web site: http://www.ednf.org/
Regional Support Groups

Canadian Ehlers-Danlos Association (CEDA)
183 Charlton Avenue
Thornhill, Ontario  L4J 6E9 Canada
Phone:  (905) 761-7552
Fax:  (905) 761-7567
E-mail: ceda@rogers.com or pghand@shaw.wave.ca 
Web site: http://www.ehlersdanlos.ca/

Ehlers-Danlos Support Group, United Kingdom and Irish Republic Support Group
P. O. Box 335
Farnham, England GU10 1XJ
Phone UK: 01252 690 940 or World +44 1252 690 940 (UK Office Hours ONLY)
Fax: 01252 404573
E-mail: director@ehlers-danlos.org
Includes photos

Australian EDS Support Group
PO Box 106
Marulan NSW 2579
Phone / Fax 0011 61-2-4841 1111
E-mail: prairie@goulburn.net.au or EDSAussie@altavista.net

Danish Ehlers-Danlos Society
Eskildsvej 12
2990 Nivaa, Denmark
Phone / Fax: 45 49 14 9632
E-mail: betina.boserup@image.dk
Web site: http://www.ehlers-danlos.dk/

Belgium Marfan / EDS Group
Antwerpsesteenweg 783
B-9040 St. Amandsberg, Belgium 9040
Phone: 9 228 61 16
E-mail: Ina.devreese@wol.be

L'Association Française des Syndromes d'Ehlers-Danlos
AFSED 38 avenue Pompidou 69 003
Lyon, France
Telephone: (33) 803 00 11 33
Fax: (33) 04 78 53 92 49
E-mail: m.h.boucand@wanadoo.fr
Web site:www.afsed.com

Deutsche Ehers-Danlos Initiative e.V.
Cadolzburger Str. 119
D-90766 Fuerth, Germany
Telephone: 49-911-9733539
Fax: 49-911-9733529
E-mail: grunert@odn.de

Ehlers-Danlos Syndrome
Support Group
24 Wendell Avenue
Portmarnock, Co Dublin,  Ireland
Phone: 01 8460570

Associazone Italiana per la Sindrome di Ehlers-Danlos (A.I.S.E.D.)
Department of Biochemistry
Via Taramelli 3B
27100 PAVIA,  ITALY
Phone: 0039 382 507231/222  c/o Dr. KDyne
E–Mail: dbioc@unipv.it

Vereniging van Ehlers-Danlos Patiënten (VED)
Ric and Krista te Vaanholt
P.O. Box 25
7213 ZG GORSSEL, the Netherlands
Phone: 031-575-4-546120

New Zealand Ehlers-Danlos Syndrome Support Group
Maraetuna Farm
Craggy Range Road,R.D.12.
Havelock North, Hawkes Bay, New Zealand
Phone: 06-874-7799 or 021-2153-471
E-mail: flopsy@ihug.co.nz

Norsk Forening for Ehlers-Danlos Syndrome
Strande
6400 Molde, NORWAY
Phone: 47 71 21 86 69
E-mail: maci@c2i.net
Web site: http://www.eds-foreningen.no/

United Kingdom Ehlers Danlos Syndrome Association
1 Chandler Close Richmond
North Yorks, United Kingdom
Phone / Fax: 01748 823867 
E-mail: EDSUK@compuserve.com

EDS Today Support Groups
PO Box 88814
Seattle, Washington 98138-2814
E-mail: edstoday@uggen.net


Also See:

National organizations information on genetic conditions or birth defects

Information for Siblings and Family Members

To locate a genetic counselor or clinical geneticist in your area:

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu


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