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Dystonia Medical Research Foundation
One E Wacker Dr, Suite 2900
Chicago, IL 60601-2001
Phone: (312) 755-0198 or (800) 377-DYST
Fax: (312) 803-0138
Web site (Dystonia Dialogue):

AMADYS Association des malades atteints de Dystonie. Serving dystonia patients in France

Danish Dystonia Societys Web Site includes tortocollis and other forms of dystonia

Distonia Oggi Associazione Italiana per la Ricerca sulla Distonia. Membro e socio fondatore della European Dystonia Federation

Dystonia Medical Research Foundation research and support for patients and their families

Spasmodic Dysphonia

Also See:

To locate a genetic counselor or clinical geneticist in your area:

Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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