Dysautonomia

Familial Dysautonomia, Riley-Day Syndrome, HSAN III (hereditary sensory and autonomic neuropathy, type III)

Dysautonomia Foundation, Inc.

633 Third Avenue, 12th Floor
New York, NY 10017-6706
Tel: 212-949-6644
Fax: 212-682-7625

E-mail: fdinfo@videobureau.com

Web site: http://www.familialdysautonomia.org/

 

National Dysautonomia Research Foundation (NDRF)

PO Box 211153
Eagan, MN 55121-2553
Phone: (651)267-0525 Fax: (651)267-0524

Web site:  http://www.ndrf.org/

 

National Foundation for Jewish Genetic Diseases

250 Park Avenue, Suite 1000

New York, NY 10177

Phone: 212-682-5550

Also See:

• National organizations, genetic conditions or birth defects
• Israeli Dysautonomia Foundation (in Hebrew)
• NICHCY State Resource Sheets programs and advocacy groups by state

• Familial Dysautonomia Village, Newton, NC includes genetics of dysautonomia

   

   

To locate a genetic counselor or clinical geneticist:

• Professional Genetics Societies
• Genetic clinics, centers, departments

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu

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