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de Lange syndrome

Cornelia de Lange syndrome, Brachman-DeLange


Cornelia de Lange Syndrome Foundation
302 West Main Street, #100
Avon, CT 06001
Telephone: 800.223.8355 or 860.676.8166
Fax: 860.676.8337
E-mail: info@cdlsusa.org
Web site: www.cdlsusa.org or www.cdlsoutreach.org/

CdLSWorld, international organizations

Australasia (Australia, Malaysia, New Zealand, Philippines, Singapore and SE Asia)

CdLS Association (Australasia), Inc.
159 Boddington Crescent
Australian Capital Territory
Kambah 2902 AUSTRALIA
E-mail: pcrawfor@dynamite.com.au
Phone: 02 62 31 6866
Web site: www.cdlsaus.org/

New South Wales / Capital Territory Coordinator
135 Princes Street
Putney, New South Wales 2112 AUSTRALIA
E-mail: jrollo@one.net.au
Phone: 02 9809 0287

New Zealand
11 Winsomere Circle
Westmere, Auckland 2 NEW ZEALAND
E-mail: vernon@ptgroup.co.nz
Phone: 09 378 0720

Malaysia and Singapore
20-25-2 Angkupuri Condominium
Jalan 1/70C off Jalan Bukit Kiara
50480 Kuala Lampur MALAYSIA
E-mail: mohdnor@simenet.com or emenech@yahoo.com
Phone: 03-62013026

Japan
CdLS Japan
E-mail: kmihoko@tg7.so-net.ne.jp

Canada
1258 Pettit Road
Fort Erie, Ontario L2A 5A3 CANADA
E-mail: cdls@iaw.on.ca
Phone: 905 994 0499

Denmark
Bodil Siersbaek
Storringvej 7b Lillering
8462 Harlev J. DENMARK
E-mail: cdlbot@post6.tele.dk
Phone: (45) 86 94 10 20
Fax: (45) 86 94 10 55

France  (Belgium and parts of Switzerland also)
Association Franšaise du Syndrome de Cornelia de Lange

6 Ter Rue Pasteur
78330 Fontenanay Le Fleury FRANCE
E-mail: afscdl-fr@wanadoo.fr
Phone: (33) 1 34 60 06 22
Fax: (33) 1 34 60 10 39

Germany
Ober-Liebersbach 27
69509 Morlenbach, GERMANY
E-mail: Kegel-moerlenbach@t-online.de or brigitte.metken@newsfactory.net
Phone: (49) 06 209 6650 or (49) 821 451826
Fax: (49) 713 193

Italy
Associazione Nazionale di Volontariato Cornelia de Lange

Strada Delle March, 49
61100 Pesaro ITALY
E-mail: famigliecdl@abanet.it
Phone: (39) 07 21 34238
Fax: (39) 07 21 850897

Web site: www.corneliadelange.org/

Norway
Bergsto 58
4790 Lillesand NORWAY
E-mail: anne.aune@gjensidige.no  (work)
Phone: (47) 37 27 32 34
Fax: (47) 38 04 11 56

Portugal
Rua Major Rosa
Santos Bastos
No. 39 Loures PORTUGAL
Phone: (351) 1 980 50 53

Spain
E-mail: coughlan@montblanc.com
Phone: (973) 377-6021 (United States)

Sweden
Magnebergsvagen 8
Enskededalen
12133 Stockholm SWEDEN
E-mail: Snorre.hermansson@swipnet.se
Phone: (46) 8 649 95 47
Fax: (46) 8 678 81 33

Switzerland

Croisettes 7 , 1066 EPALINGES
E-mail: lpesse@freesurf.ch
Phone: (011-41) 21-652-93-42

United Kingdom (also Ireland)
CdLS UK and Ireland
Tall Trees
106 Lodge Road
Grays, Essex RM16 2UL UNITED KINGDOM
E-mail: cdls@barkers.co.uk
Phone: (44) 137 375 6439
Fax: (44) 171 236 4740

Web site: www.cdls.org.uk


Also See:


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Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu


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