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Connective tissue / elastin fiber disorders

(Marfan syndrome, pseudoxanthoma elasticum (PXE),cutis laxa, dwarfism, skeletal dysplasia, Ehlers Danlos syndrome, hyperextensible joints, Beals syndrome, congenital contractural arachnodactyly, other)

Coalition for Heritable Disorders of Connective Tissue
382 Main St
Port Washington, NY 11050
Phone: (800) 862-7326 or (516) 883-8712
Contact: Priscilla Ciccariello
Fax: (516) 883-8712

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Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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