Image that's a link to Genetics Education Center Support Page

Connective tissue / elastin fiber disorders

(Marfan syndrome, pseudoxanthoma elasticum (PXE),cutis laxa, dwarfism, skeletal dysplasia, Ehlers Danlos syndrome, hyperextensible joints, Beals syndrome, congenital contractural arachnodactyly, other)


Coalition for Heritable Disorders of Connective Tissue
382 Main St
Port Washington, NY 11050
Phone: (800) 862-7326 or (516) 883-8712
Contact: Priscilla Ciccariello
Fax: (516) 883-8712

Also See:


To locate a genetic counselor or clinical geneticist in your area:


Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

Genetic Conditions & Support Groups | Genetic Societies | Clinical Resources | Labs | Clinics | Genetics Education | Careers | Cytogenetics | Genome Centers | Genetic Computer Resources | Professional Education | Diversity | Advocacy | Glossaries | Advisors | Software | Disclaimer | Privacy | About | FAQ | Suggestions & Feedback | Search

Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu


---------------------------

This website is certified by Health On the Net Foundation. Click to verify. This site complies with the HONcode standard for trustworthy health information:
verify here.