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Heart / Cardiology Conditions

Congenital Heart Defects including: atrial septal defect (ASD), ventricular septal defect (VSD), patent ductus arteriosus (PDA), endocardial cushion defect, aortic stenosis, pulmonary stenosis, coarctation of the aorta, tetralogy of Fallot,  tricuspid atresia, transposition of the great arteries, truncus arteriosus, Ebstein anomaly, anomalous pulmonary venous connection, hypoplastic left heart syndrome, endocardial fibroelastosis, Long QT, other conditions and syndromes (Marfan, Down, Holt Oram, Barth, Hypertrophic Cardiomyopathy, Kawasaki, Noonan, Turner , Velo-Cardio-Facial, other)

Cardiovascular conditions including: hyperlipidemia, coronary artery disease, angina, cholesterol and lipid conditions, heart disease/stroke

CHASER (Congenital Heart Anomalies Support, Education, and Resources)
c/o Jim and Anita Myers
2112 North Wilkins Road
Swanton, OH 43558
Phone: (419) 825-5575
Fax: (419) 825-2880
E-mail: or
Web site:
Adult Congenital Heart Network, Canadian Adult Congenital Heart Network, Toronto Congenital Cardiac Centre for Adults, and International Society Of Adult Congenital Cardiac Disease
Congenital Heart Information Network
Families with Heart
824 High Street, Candia, NH 03034-2004
Phone: 603.483.3025
Web site: (web site not active Mar 2003)
                - Support groups by condition and location

Congenital Heart Disease, Children's Health Information Network, includes international support groups

Adult Congenital Heart Association (ACHA)
Congenital heart defects and cardiovascular conditions
CachNet, Canadian Adult Congenital Heart Network,Toronto Congenital Cardiac Centre For Adults, and International Society for Adult Congenital Cardiac Disease

Grown Up Congenital Heart Patients Association (GUCH), United Kingdom

Children's Heart Society, Alberta, Canada

Special Hearts Online, Southern Ontario, Canada

UK and Overseas Hearlink, United Kingdom

HeartKids, Victoria, Australia

HeartKids, Inc., South Australia

Other heart condition sites:

Conditions with heart defects / cardiovascular involvement

Heart / Cardiology / Surgery / Pathology / Echocardiology

Other Cardiovascular sites:

Also See:

To locate a genetic counselor or clinical geneticist:

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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