Brain (Cephalic) Conditions / Disorders Support Groups

Anencephaly,  Colpocephaly, Holoprosencephaly, Hydranencephaly, Iniencephaly, Lissencephaly, Megalencephaly (or Macrocephaly or Hemimegalencephaly), Microcephaly, Porencephaly, Schizencephaly, Polymicrogyria (related to Schizencephaly, form of Lissencephaly), Walker Warburg Syndrome (Muscle-Eye-Brain Disease, form of Lissencephaly), Dandy Walker, Other

• Anencephaly Support Foundation
• Dandy-Walker Syndrome, Pediatric Neurosurgery, Texas Children's Hospital, Texas Medical Center
• Holoprosencephaly Support Site
• Rays of Sunshine, Hydranencephaly
• Hydrocephalus Association and Listserv (HYCEPH-L)
• Lissencephaly Resources
• Lissencephaly Network
• Lissencephaly Launch Pad
• Microcephaly
• Schizencephaly and Schiz Kids
• National Institute of Neurological Disorders and Stroke
• Walker Warburg Syndrome

Also See:

• National organizations information on genetic conditions or birth defects
• Information for Siblings and Family Members

To locate a genetic counselor or clinical geneticist in your area:

• Professional Genetics Societies
• Genetic clinics, centers, departments

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu

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