Batten disease
- Batten Disease Support & Research Association
- 2600 Parsons Ave
- Columbus, OH 43207
- Phone: (800) 448-4570 or (614) 445-4161 Contact: Lance W Johnson
- e-mail: bdsral@bdsra.org
- National Institute of Neurological Disorders and Stroke (NINDS)
- Phone: (800) 352-9424
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Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu
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