Ataxia
(hereditary ataxias, Friedreich ataxia, ataxia
telangiectasia, essential tremor, spastic paraplegia, spinocerebellar ataxia)
- National Ataxia Foundation
- Support Groups
- 2600 Fernbrook Lane, Suite 119
Minneapolis, MN 55447
Phone: 763.553.0020
Fax: 763.553.0167
E-mail: naf@ataxia.org
- Web site: http://www.ataxia.org/
-
- Ataxia Telangiectasia Children's
Project
- 668 South Military Trail
- Deerfield Beach, FL 33442-3023
- Phone: 800.543.5728 or 954.481.6611
- Fax: 954.725.1153
- E-mail: info@atcp.org
- Web site: www.atcp.org
-
- Friedreich Ataxia
Parents Group (FAPG)
- Web site: http://www.fortnet.org/fapg/
-
-
-
Also See:
- Information
for Siblings and Family Members
- Neurological
conditions
- Neuromuscular
conditions
- WeMove (Worldwide
Education and Awareness for Movement Disorders), Mount Sinai Medical Center,
NY NY
- National
organizations information on genetic conditions or birth defects
- Ataxias:
Classification, Washington University of St Louis, MO
- Dominant
ataxias, Washington University of St Louis, MO
- Recessive
ataxias, Washington University of St Louis, MO
- Familial
Spinal Cord Syndromes, Washington University of St Louis,
MO
- Systemic
Ataxias (such as thyroid, and others), Washington
University of St Louis, MO
- Cerebellar
and Spinocerebellar Disorders, Merck Manual
- Neuromuscular
Disease Center, FSP Syndromes
- Familial
Spastic Paraparesis, Duke University, Center for Human Genetics
- Spinocerebellar
Ataxia brochure: Making
an Informed Choice About Genetic Testing (pdf file),
Genetic Testing for Neurological Conditions, Medical Genetics and Neurology,
University of Washington, Seattle, WA, USA
International Resources:
To locate a genetic
counselor or clinical geneticist:
Revised January 23, 2009
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University of Kansas Medical Center © 1995-2009
Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu
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