Ataxia

Ataxia

(hereditary ataxias, Friedreich ataxia, ataxia telangiectasia, essential tremor, spastic paraplegia, spinocerebellar ataxia)

National Ataxia Foundation: Support Groups; 2600 Fernbrook Lane, Suite 119
Minneapolis, MN 55447
Phone: 763.553.0020
Fax: 763.553.0167
E-mail: naf@ataxia.org; Web site: http://www.ataxia.org/

Ataxia Telangiectasia Children's Project: 668 South Military Trail; Deerfield Beach, FL 33442-3023; Phone: 800.543.5728 or 954.481.6611; Fax: 954.725.1153; E-mail: info@atcp.org; Web site: www.atcp.org

Friedreich Ataxia Parents Group (FAPG): Web site: http://www.fortnet.org/fapg/

Also See:

Information for Siblings and Family Members
Neurological conditions
Neuromuscular conditions
WeMove (Worldwide Education and Awareness for Movement Disorders), Mount Sinai Medical Center, NY NY
National organizations information on genetic conditions or birth defects
Ataxias: Classification, Washington University of St Louis, MO
Dominant ataxias, Washington University of St Louis, MO
Recessive ataxias, Washington University of St Louis, MO
Familial Spinal Cord Syndromes, Washington University of St Louis, MO
Systemic Ataxias (such as thyroid, and others), Washington University of St Louis, MO
Cerebellar and Spinocerebellar Disorders, Merck Manual
Neuromuscular Disease Center, FSP Syndromes
Familial Spastic Paraparesis, Duke University, Center for Human Genetics
Spinocerebellar Ataxia brochure: Making an Informed Choice About Genetic Testing (pdf file), Genetic Testing for Neurological Conditions, Medical Genetics and Neurology, University of Washington, Seattle, WA, USA

International Resources:

ADCA-Association of The Netherlands (in Dutch)
Associazione Italiana per la lotta alle Sindromi Atassiche (in Italian),aisa@iol.it
The Centre of Rare Disorders (Norway) rare diseases and syndromes
INTERnational Network of Ataxia Friends
Description of ataxia (Portuguese) for Brazilian medical students
FSP support group, United Kingdom

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