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Alpha-1-Antitrypsin Deficiency

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Alpha 1 National Association
8120 Penn Avenue S., Suite 549
Minneapolis, MN 55431
Phone: (800) 521-3025 or 612-703-9979
Fax: 612-885-0133
Web site:  http://www.alpha1.org/
E-mail: julie@alpha1.org
Understanding pulmonary function testing (PFT)
Respiratory System
Liver Support
Alphabeaters support group (Colorado)
 
Alpha One Foundation
2937 SW 27th Avenue
Suite 302
Miami, Florida 33133
Phone:  (305) 567-9888 or toll free: 877-2 CURE A1 (877 228-7321)
Fax: (305) 567-1317
Web site:  http://www.alphaone.org/
E-mail:  mserven@alphaone.org

International Sites

Spanish

Asociación Española para el Déficit de Alfa 1-Antitripsina
Apartado de Correos 96
47320 Tudela de Duero
(Valladolid - España) UE
Telephone/Fax: 983.682043
Web Page:  http://www.alfa1.org 
 
United Kingdom
Alpha-1 Support UK

Alpha-1-antitrypsin deficiency, British Liver Trust Information Service

 

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Also See:

  • National and International Lay Advocacy Groups
  • Liver conditions web sites
  • Lung conditions web sites
  • Liver and Billary Disease
  • American Association for Study of Liver Diseases
  • Children's Liver Alliance
  • Alpha-1 Antitrypsin Deficiency, Children's Liver Disease Foundation
  • Lab tests of Liver Diseases
  • Second Wind Lung Transplant Association
  • American Lung Association
  • Alpha-1 Antitrypsin, American Liver Foundation
  • Chronic Pulmonary Disease
  • United Network for Organ Sharing (UNOS)
  • Emphysema Foundation For Our Right To Survive (EFFORTS)
  • Alpha-1 proteinase inhibitor deficiency (alpha-one), National Jewish Medical and Research Center, Denver, Colorado
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    Smoking Cessation Information

  • How to Raise Non-Smoking Kids: A Practical Guide For Parents
  • Smoke Free Kids, National Cancer Institute
  • Passive Smoke, National Jewish Medical and Research Center, Denver, Colorado
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    To locate a genetic counselor or clinical geneticist in your area:

    Revised January , 2011


    Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

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    Genetics Education Center
    University of Kansas Medical Center © 1995-2012
    Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu

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