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National Organization for Albinism and Hypopigmentation (NOAH)
PO Box 959, East Hampstead, NH 03826-0959
Phone: 800 473-2310, Phone and Fax: 603 887-2310
Web site:
Albinism World Alliance (AWA), network of albinism support groups in various countries, founded in 1992, representatives from Australia, Canada, Tanzania, the United Kingdom, the United States of America, Germany, Mali, Malawi, the Netherlands, Puerto Rico, Norway, South Africa,and others

International Albinism Center, University of Minnesota

Vision of Children Foundation, San Diego, hereditary childhood blindness, x-linked ocular albinism, other blindness

Albinism, Netherlands, includes drawings of effects on eye

Assosiation For Albinism (NFFA), Norway

Hermansky Pudlak Syndrome Network

Also See:

To locate a genetic counselor or clinical geneticist:

Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC, Genetic Counselor,


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