Advocacy

Americans with Disabilities Act

Americans with Disabilities Act, Document Center, ADA Statute, Regulations, ADAAG (Americans with Disabilities Act Accessibility Guidelines), Federally Reviewed Tech Sheets, and Other Assistance Documents

People First Language

Guidelines for Reporting and Writing About People with Disabilities, University of Kansas, endorsed by over 100 national groups (also in large print, Braille, Spanish) and Opening Doors: Empowering People with Disabilities (.pdf file)
A Way with Words: Guidelines and Appropriate Terminology For the Portrayal of Persons With Disabilities, Secretary of State, Canada
Understanding Disabilities: Examining Issues of Language and Portrayal, MKTan
Words with Dignity and Disability Etiquette, Paraquad, Inc., St. Louis, MO
Appropriate Language in Discussing Mental Illness, C Hawkins-Shepard, Ph.D.
People First Language commentary , Missouri People First
People first language, Utah Governor's Council for People with Disabilities
Talking About Disability: A Guide to Using Appropriate Language, Access Center for Independent Living, Dayton, OH
People First Language, Examples to Share, K Snow, , Missouri Department of Mental Health
Think "People First", Public Images Network
People First Language, Texas Council for Developmental Disabilities, text only version, and en espanol
People First Language, K Snow, Kids Together, Inc.
Language in publications, Editor's Note, July 1997, Physical Therapy
Search for Non-Offensive Language, The Arc, Dallas, TX
People First!!!, Differently Abled Associates Incorporated, 1996, J M Kratzer
Resolution Supporting "People First" Language, American Network of Community Options and Resources (Formerly the National Association of Private Residential Resources)
Disability Related Language, California State University, Northridge
Disability Related Language, Messiah College, San Antonio, TX
Disability Portrayal and the Media Today (part I, part II, part III) and other Portrayal in the Media articles, Kids as Self Advocates
Disabilities in the Media: The Movies. Ivory, Phil. 1997. MDA Publications
The Cinema of Isolation: A History of Physical Disability in the Movies. Klepper, Robert. 1996. The Silents Majority
Extraordinary Bodies: Literature and Disabilities. Krentz, Christopher. May 2000. University of Virginia

Quality of Internet Health Information

Etiquette

Etiquette Tips That Fight Discrimination, Easter Seal Society

Accessibility to Internet Web Pages

Make Your Web Pages Accessible
Center for Information Technology Accommodation
Trace Research and Development Center, University of Wisconsin
Capper Foundation, Accessibility Resources
How to increase online text size
Usable Web, over 1,400 links about web usability
Adaptive Technology for the Internet: Making Electronic Resources Accessible to All, ALA

Tools

Test your webpage or website for accessibility: WEB Metrics or Bobby 3.1 Analysis or W3C HTML Validator or CSS Validator
Large Print display page of text in large print without reconfiguring a browser
Tablin: HTML Table linearizer, for reading line-by-line (e.g. columned text read across page out-of-order, reading sentences on same row from different columns as one sentence)
JAWS (Jobs Access With Speech), reader program for blind or visually impaired
Lynx software
ALTifier Web Accessibility Enhancement Tool, useful for images and other HTML tags without textual alternative, to make accessible to screen readers, non-visual/text-only browsers and Braille readers. Adds alternate descriptions for tags
Optimizing Adobe® PDF Files for Accessibility (.pdf), Tutorial, and Tools

Keyboard for single-handed typists - Dvorak keyboard, PC and Mac computers

Configure Win95 [Control Panel, then Keyboard, then Languages, then Properties]

Mac software free at http://shareware.cnet.com/

Also see: http://www.mwbrooks.com/dvorak/

Voice / Speech Recognition Software Programs - allow computer to recognize & transcribe spoken words

Dragon Naturally Speaking, ScanSoft

Via Voice, IBM (800) 825-5263

VoiceXpress, ScanSoft, (formerly Voice Express, Lernout and Hauspie)

Voice Recognition Technical Glossary, Adaptive Technology Resource Centre (ATRC)

Translation Programs

Babylon translation program, free (English to Spanish, German, Portuguese, French, Italian, Dutch, Japanese, Hebrew, Chinese)

Free Translation (English, French, German, Italian, Norwegian, Portuguese, Spanish), text or web page

Google Language Tools, search for specific languages or countries for translation

Google, Translate Web Pages Automatically, a new translation feature (BETA). Using machine translation technology, gives English speakers access to pages published in Italian, French, Spanish, German, and Portuguese

iLoveLanguages, (formerly Human Languages Page), dictionaries, translation programs, cultural resources (Spanish, German, French, Russian, Vietnamese, sign language, other)
Language & Translation Center, Martindale, English to Other Languages & Vice Versa

Translation service, AltaVista, Babelfish (Spanish, French, Italian, Portuguese, German, English)

Ethical, Legal, Social, Public Policy Issues and Genetics: (policy papers, testing, insurance, privacy, health insurance portability, Birth Defects Prevention Act, other)

Federal Advocacy and Information Sites

Also See:

National organizations information on genetic conditions or birth defects

Information for Siblings and Family Members
Assistive Technology (.pdf file), Milwaukee Schools
Wrightslaw, information and resources on special education law, advocacy, IEPs, 504B plans, other

To locate a genetic counselor or clinical geneticist:

Professional Genetics Societies

Genetic clinics, centers, departments

Revised September 2, 2004

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(Health on the Net, Code of Conduct for Medical and Health Web Sites)
of the Health On the Net Foundation.