Adrenal Gland Conditions
(Congenital Adrenal Hyperplasia, Pheochromocytoma, other)
National Adrenal Diseases Foundation
505 Northern Blvd.
Great Neck, NY 11021
Phone: 516.487.4992
International support groups
The Magic Foundation, Congenital Adrenal Hyperplasia Division
1327 N. Harlem Avenue
Oak Park, IL 60302
Phone: 708.383.0808
Fax: 708.383.0899
Web site:
www.magicfoundation.org
/
Von Hippel Lindau Syndrome Family Alliance
(may involve pheochromocytoma)
171 Clinton Road
Brookline, Massachusetts 02146
Phone: (617) 232-5946, (800) 767-4VHL
Fax: 617.734.8233
Email: vhl@pipeline.com
Web site:
www.vhl.org/
Also See:
National organizations
information on genetic conditions or birth defects
Adrenoleukodystrophy
information from United Leukodystrophy Foundation, 2304 Highland Drive, Sycamore, Illinois 60178, Voice: (815) 895-3211, FAX: (815) 895-2432
To locate a genetic counselor or clinical geneticist in your area:
Professional Genetics Societies
Genetic clinics, centers, departments
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Genetics Education Center
University of Kansas Medical Center © 1995-2012
Debra Collins, M.S. CGC
, Genetic Counselor, dcollins@kumc.edu
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