Human Genome Project Internet Exercise I
- Use the www to find internet sites with information for the following scenarios.
- Many sites can be located from the Genetic Education Center Home Page: /gec
- Rate the sites as: (1) poor (2)ok (3) good (4) better (5) best
Scenario A: A 17-year-old female's father (age 40) has Huntington disease.
1. Where can she read about Huntington disease?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
2. Where can she read about DNA carrier testing?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
3. Is there a support group for Huntington disease?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
Scenario B: A 25-year-old female's brother died at age 15 of Duchenne muscular dystrophy
4. Where can she read about Duchenne muscular dystrophy?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
5. Where can she read about DNA carrier testing for Duchenne muscular dystrophy?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
6. Is there a support group for Duchenne muscular dystrophy?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
7. Where can she read about prenatal diagnosis for Duchenne muscular dystrophy?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
Scenario C: A 38-year-old woman who has had regular, normal medical examinations, is concerned about her risk for breast cancer which her mother had at age 40. No other relatives are affected.
8. Where can she read about breast cancer DNA testing?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
9. Where can she read about her risk and issues to consider before testing?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
Scenario D: A high school biology teacher wants to find ELSI sites
10. Where can one find information about public policy issues related to ELSI/HGP?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
11. Which web sites would provide information about the Genetic Privacy Act?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
12. What www sites provide text on the Americans with Disability Act?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
Scenario E: A 16-year-old male has a maternal first cousin (age 10) with cystic fibrosis.
13. Where can he read about cystic fibrosis?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
14. Where can he read about DNA carrier testing?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
15. Is there a support group for cystic fibrosis?
- a. http://_______________________________________________ Rating: 1 2 3 4 5
- b. http://_______________________________________________ Rating: 1 2 3 4 5
- c. http://_______________________________________________ Rating: 1 2 3 4 5
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Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu
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