Human Genome Project Internet Exercise

From Human Genome Teacher Networking Project, University of Kansas Medical Center

Scenario A: A 17-year-old female's father (age 40) has Huntington disease.

1. Where can she read about Huntington disease?

a. http://_______________________________________________ Rating: 1 2 3 4 5
b. http://_______________________________________________ Rating: 1 2 3 4 5
c. http://_______________________________________________ Rating: 1 2 3 4 5

2. Where can she read about DNA carrier testing?

a. http://_______________________________________________ Rating: 1 2 3 4 5
b. http://_______________________________________________ Rating: 1 2 3 4 5
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3. Is there a support group for Huntington disease?

a. http://_______________________________________________ Rating: 1 2 3 4 5
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Scenario B: A 25-year-old female's brother died at age 15 of Duchenne muscular dystrophy

4. Where can she read about Duchenne muscular dystrophy?

a. http://_______________________________________________ Rating: 1 2 3 4 5
b. http://_______________________________________________ Rating: 1 2 3 4 5
c. http://_______________________________________________ Rating: 1 2 3 4 5

5. Where can she read about DNA carrier testing for Duchenne muscular dystrophy?

a. http://_______________________________________________ Rating: 1 2 3 4 5
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c. http://_______________________________________________ Rating: 1 2 3 4 5

6. Is there a support group for Duchenne muscular dystrophy?

a. http://_______________________________________________ Rating: 1 2 3 4 5
b. http://_______________________________________________ Rating: 1 2 3 4 5
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7. Where can she read about prenatal diagnosis for Duchenne muscular dystrophy?

a. http://_______________________________________________ Rating: 1 2 3 4 5
b. http://_______________________________________________ Rating: 1 2 3 4 5
c. http://_______________________________________________ Rating: 1 2 3 4 5

Scenario C: A 38-year-old woman who has had regular, normal medical examinations, is concerned about her risk for breast cancer which her mother had at age 40. No other relatives are affected.

8. Where can she read about breast cancer DNA testing?

a. http://_______________________________________________ Rating: 1 2 3 4 5
b. http://_______________________________________________ Rating: 1 2 3 4 5
c. http://_______________________________________________ Rating: 1 2 3 4 5

9. Where can she read about her risk and issues to consider before testing?

a. http://_______________________________________________ Rating: 1 2 3 4 5
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Scenario D: A high school biology teacher wants to find ELSI sites

10. Where can one find information about public policy issues related to ELSI/HGP?

a. http://_______________________________________________ Rating: 1 2 3 4 5
b. http://_______________________________________________ Rating: 1 2 3 4 5
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11. Which web sites would provide information about the Genetic Privacy Act?

a. http://_______________________________________________ Rating: 1 2 3 4 5
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12. What www sites provide text on the Americans with Disability Act?

a. http://_______________________________________________ Rating: 1 2 3 4 5
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Scenario E: A 16-year-old male has a maternal first cousin (age 10) with cystic fibrosis.

13. Where can he read about cystic fibrosis?

a. http://_______________________________________________ Rating: 1 2 3 4 5
b. http://_______________________________________________ Rating: 1 2 3 4 5
c. http://_______________________________________________ Rating: 1 2 3 4 5

14. Where can he read about DNA carrier testing?

a. http://_______________________________________________ Rating: 1 2 3 4 5
b. http://_______________________________________________ Rating: 1 2 3 4 5
c. http://_______________________________________________ Rating: 1 2 3 4 5

15. Is there a support group for cystic fibrosis?

a. http://_______________________________________________ Rating: 1 2 3 4 5
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Scenario F: A 28-year-old female and her 28-year-old husband would ddke to start a family in the next two years.

16. Where can they read about preconception issues to consider

a. http://_______________________________________________ Rating: 1 2 3 4 5
b. http://_______________________________________________ Rating: 1 2 3 4 5
c. http://_______________________________________________ Rating: 1 2 3 4 5

Scenario G: A 38-year-old female is 11 weeks pregnant.

17. Where can she read about prenatal diagnostic procedures?

a. http://_______________________________________________ Rating: 1 2 3 4 5
b. http://_______________________________________________ Rating: 1 2 3 4 5
c. http://_______________________________________________ Rating: 1 2 3 4 5

18. How can she locate a genetic counselor?

a. http://_______________________________________________ Rating: 1 2 3 4 5
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Scenario H: A high school biology teacher has attended a genome project workshop and is enthusiastic about providing workshops for local teachers and lay groups.

19. Where can she/he find information about ELSI issues and the human genome project?

a. http://_______________________________________________ Rating: 1 2 3 4 5
b. http://_______________________________________________ Rating: 1 2 3 4 5
c. http://_______________________________________________ Rating: 1 2 3 4 5

20. What sites have a glossary of genetic terms?

a. http://_______________________________________________ Rating: 1 2 3 4 5
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21. Where can teachers find information about guest speakers on genetic issues for the classroom?

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22. Where can she/he go to print brochures about genetic conditions and testing?

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23. Where can she/he go for an interactive case presentation?

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24. Where would she/he find information on human genetics workshops in the United States?

a. http://_______________________________________________ Rating: 1 2 3 4 5
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25. Where can she/he read about grants for education?

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26. Where would she/he find human genetic lesson plans developed for students?

a. http://_______________________________________________ Rating: 1 2 3 4 5
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Link that takes you to the Genetic Support Groups  Link that takes you to the Genetic Professional Home Page  Link that takes you to the Genetics Education Center Home

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