Learning About the Human Genome
Project and Genetics Through the World Wide Web
The Web offers the easiest path to learning about the Human
Genome Project and related genetics topics. Some useful sites to
visit are included in the list below compiled by Denise K.
Casey, Science Writer/Editor, Human Genome News, Human Genome Management
Information System, Phone: 423/574-0597; Fax:
423/574-9888, Email: firstname.lastname@example.org
Human Genome Project
- Human Genome Project Information, http://www.ornl.gov/hgmis/
- Comprehensive site covering topics related to the
U.S. and worldwide Human Genome Projects. Useful for
updating scientists and providing educational material
for nonscientists, in support of DOE's commitment to
public education. Developed and maintained for DOE by the
Human Genome Management Information System (HGMIS) at Oak
Ridge National Laboratory.
- U.S. DOE Human Genome Program, http://www.er.doe.gov/production/ober/hug_top.html
- Devoted to the DOE component of the U.S. Human Genome
Project and to the DOE Microbial Genome Program. Links to
many other sites.
- NIH National Human Genome Research Institute,
- Site of the NIH sector of the U.S. Human Genome
DOE Human Genome Program Publications
[* indicates hard copy available from
- *Human Genome News, http://www.ornl.gov/hgmis/publicat/publications.html
- Quarterly newsletter reporting on the worldwide Human
- *To Know Ourselves, 1996, http://www.ornl.gov/hgmis/tko/
- Booklet reviewing DOE's role, history, and
achievements in the Human Genome Project and introducing
the science and other aspects of the project.
- *Primer on Molecular Genetics (1992) http://www.ornl.gov/hgmis/publicat/publications.html
- Explains the science behind the genome research.
Ethical, Legal, and Social Issues Related
to Genetics Research
HGMIS Gateways Web page, http://www.ornl.gov/hgmis/links.html
Choose "Ethical, Legal, and Social Issues."
- National Bioethics Advisory Commission (NBAC)
- The bioethics committee offers advice to the National
Science and Technology Council and others on bioethical
issues arising from research related to human biology and
- National Center for Genomic Resources, http://www.ncgr.org/
- Comprehensive Genetics and Public Issues page;
includes congressional bills related to genetic privacy.
- Center for Bioethics, University of
- Full-text articles about such ethical issues as human
cloning; includes a primer on bioethics.
- Eubios Ethics Institute, http://www.biol.tsukuba.ac.jp/~macer/index.html
- Site includes newsletter summarizing literature in
bioethics and biotechnology.
- ELSI in Science, http://www.lbl.gov/Education/ELSI/ELSI.html
- Teaching modules designed to stimulate discussion on
implications of scientific research.
- ELSI issues for high school students and a selection
- Courts and Science On-Line Magazine
- Coverage of genetic issues affecting the courts.
- Genetic Privacy Act, http://www.ornl.gov/hgmis/resource/elsi.html
- Model legislation written with support of the DOE
Human Genome Program.
- Bimonthly newsletter to inform consumers and
professionals about advances in genetics and encourage
discussion about emerging policy dilemmas.
- Your Genes, Your Choices, http://ehrweb.aaas.org/ehr/books/index.html
- Booklet written in simple English, describing the
Human Genome Project; the science behind it; and how
ethical, legal, and social issues raised by the project
may affect people's everyday lives.
- A comprehensive, authoritative, and up-to-date human
gene and genetic disorder catalog that supports medical
genetics and the Human Genome Project.
Links to OMIM
- GeneCards, http://bioinformatics.weizmann.ac.il/cards/
- A database of more than 6000 genes; describes their
functions, products, and biomedical applications.
- Support groups for people with genetic diseases
and their families, http:///gec/support/index.html
- Directory of National Genetic Voluntary Organizations
and Related Resources.
- Gene Therapy, http://www.mc.vanderbilt.edu/gcrc/gene/index.html
- Web course covering the basics, with links to other
- NIH Office of Recombinant DNA Activities,
- Includes a database of human gene therapy protocols.
- Blazing a Genetic Trail, http://www.hhmi.org/GeneticTrail
- Illustrated booklet from the Howard Hughes Medical
Institute on hunting for disease genes.
- Understanding Gene Testing, http://www.accessexcellence.org/ae/AE/AEPC/NIH/index.html
- Illustrated brochure from the National Cancer
- Promoting Safe and Effective Genetic Testing in
the United States (1997), http://www.med.jhu.edu/tfgtelsi/
- Principles and recommendations by a joint NIH-DOE
Human Genome Project group that examined the development
and provision of gene tests in the United States.
General Genetics and Biotechnology
Many of the following sites contain links to both
educational and technical material.
- HGMIS Community Education and Outreach Gateways
Web page, http://www.ornl.gov/hgmis/links.html
- Access Excellence site, http://www.accessexcellence.org/
- Extensive genetic and biotechnology resources for
teachers and nonscientists
- MIT Biology Hypertextbook, http://esg-www.mit.edu:8001/esgbio/7001main.html
- All the basics.
- Links to Web tutorials in biology, genetics, and
- Genetics Education Center, University of Kansas Medical Center, /gec
- Educational information on human genetics, career
- The Why Files, http://whyfiles.news.wisc.edu
- Illustrated explanations of the science behind the
- Classic papers in genetics, http://www.esp.org
- Covers the early years, with introductory notes. See
also Access Excellence site above for genetics history.
- Mendel Web, http://www.netspace.org/MendelWeb/
- Explores the origins of classical genetics,
introductory data analysis, elementary plant science, and
the history of science.
- Human Genome Education Program at Stanford Human
Genome Center, http://www-shgc.stanford.edu/bio-ed/
- Includes genome curricula and numerous resources,
especially for K*12 teachers.
- Cell & Molecular Biology Online, http://www.cellbio.com
- Links to electronic publications, current research,
educational and career resources, and more.
- CERN Virtual Library, Genetics section,
Biosciences division, http://www.ornl.gov/TechResources/Human_Genome/genetics.html
- Includes an organism index linking to other pertinent
databases, information on the U.S. and international
Human Genome Projects, and links to research sites.
- Genetic and biological resources links,
- Welch Web, http://www.welch.jhu.edu
- Links to many Internet biomedical resources,
dictionaries, encyclopedias, government sites, libraries,
and more, from the Johns Hopkins University Welch
- Howard Hughes Medical Institute, http://www.hhmi.org
- Home page of major U.S. philanthropic organization
that supports research in genetics, cell biology,
immunology, structural biology, and neuroscience.
Excellent introductory information on these topics.
- BIO Online (Biotechnology Industry Organization),
- Comprehensive directory of biotechnology sites on the
- BioTech, http://biotech.chem.indiana.edu
- An interactive educational resource and biotech
reference tool; includes a dictionary of 6000 life
- Careers in Genetics, http://www.faseb.org/genetics/gsa/careers/bro-menu.htm
- Online booklet from the Genetics Society of America,
including several profiles of geneticists. See also
career sections of sites specified above, such as Access
- Cloning: In Our Own Image, http://www.latimes.com/news/science/science/
- Special report from the Los Angeles Times, with links
to bioethics sites.
- Bugs 'N Stuff, http://www.ncgr.org/microbe/
- List microbial genomes being sequenced, research
groups, genome sizes, and facts about selected organisms.
Links to related sites.
- Microbial Database, http://www.tigr.org/tdb/mdb/mdb.html
- Lists completed and in-progress microbial genomes,
with funding sources.
- Teaching materials for all levels. Includes
mini-lessons on selected scientific topics, two online
magazines, What's New, software, catalogs, and
- Database of Genome Sizes, http://www.cbs.dtu.dk/databases/DOGS/index.html
- Lists numerous organisms with genome sizes,
scientific and common names, classifications, and
- Genetics Glossary, http://www.ornl.gov/hgmis/publicat/glossary.html
- Glossary of terms related to genetics.
- Hispanic Educational Genome Project, http://caldera.calstatela.edu/hgp/
- Designed to educate high school students and their
families about genetics and the Human Genome Project.
Links to other projects.
- Natural History of Genes, http://raven.umnh.utah.edu
- Genetic science activities and hands-on experiments
for teachers and students.
- Science and Mathematics Resources, http://www-sci.lib.uci.edu
- More than 2000 Web references, including Frank
Potter's Science Gems and Martindale's Health Science
Guide. For teachers at all levels.
Opportunities for student
internships around the United States:
Genome Data Repositories
HGP goals are to generate maps for 24 different human
chromosomes with biochemical landmarks spaced at least every
100,000 bases and, ultimately, to determine the sequence of the 3
billion DNA bases in each chromosome.
- GDB is the worldwide repository of human genome
chromosome mapping data.
- Genome Sequence DataBase, http://www.ncgr.org/gsdb/
- Relational database containing nucleotide sequence
data from all known organisms.
- Annotated collection of all publicly available DNA
Try It! Images on the Web
- Click on particular areas of chromosomes and find
- Lawrence Livermore National Laboratory chromosome
19 physical map, http://www-bio.llnl.gov/bbrp/genome/genome.html
- Los Alamos National Laboratory chromosome 16
physical map, http://www-ls.lanl.gov/DBqueries/QueryPage.html
- Cells Alive!, http://www.cellsalive.com
- Images (some moving) of different types of cells.
- Cytogenetics Gallery, http://www.pathology.washington.edu:80/Cytogallery/
- Photos (karyotypes) of normal and abnormal
- Bugs in the News!, http://falcon.cc.ukans.edu/~jbrown/bugs.html
- Microbiology information and a nice collection of
images of biological molecules.
- Images of Biological Molecules, http://www.cc.ukans.edu/~micro/picts.html
- 3-D structures of proteins and nucleic acids obtained
from Brookhaven National Laboratory Protein Database and
- Animated images of PCR and Southern Blotting
- 3-D molecular structure viewer allowing the user to
visualize and rotate structure data entries from Entrez.
Highly technical for researchers.
Journals and Magazines
- HGMIS Journals Gateways Web page, http://www.ornl.gov/hgmis/links.html
Choose "Journals, Books, Periodicals."
- Comprehensive list.
- Nature, Nature Genetics, and Nature Biotechnology,
- Abstracts of articles, full text of letters and
- Science, http://www.sciencemag.org
- Abstracts and some full-text articles.
- Science News, http://www.sciencenews.org
- Online version of weekly popular science magazine
with full text of selected articles.
Science in the News
- Daily news and information service and free science
news e-mailer. Also contains directories of newsgroups,
grant and funding resources, employment, and online
- Genomics Today, http://www.phrma.org/genomics/documents/today.html
- A daily update on the latest news in the field. Many
links. Website a joint project of the Pharmaceutical
Research and Manufacturers of America and the American
Institute of Biological Sciences.
- EurekAlert!, http://www.eurekalert.org
- Short summaries of major stories.
- HMS Beagle, http://biomednet.com/hmsbeagle
- Web magazine featuring science news, essays, book
reviews, and bioweekly e-mail notification of this site's
- Science Daily, http://www.sciencedaily.com
- Headline stories, articles, and links to news
services, newspapers, magazines, broadcast sources,
journals, and organizations. Also offers weekly bulletins
for updates by e-mail.
- ScienceNow, http://www.sciencenow.org
- Daily online news service from Science magazine
offers articles on major science news.
Web Search Tools
- Comprehensive list of search tools, libraries, world
fact books, and other useful information.
- Yahoo!, http://www.yahoo.com
- Biosciences Index to WWW Virtual Library, http://golgi.harvard.edu/htbin/biopages/
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