Human Genetics/Genome Books

Annotated List

• The Family Village Book Store, or Library disability-related print material
• A Guide to Children's Literature and Disability 1989-1994, National Information Center for Children and Youth with Disabilities
• Children's Literature & Disability, National Information Center for Children and Youth with Disabilities, 2001
• Children's Book Resource, Disabilities or Special Needs, Waisman Center University of Wisconsin, Madison
  
• Band-Aides and Blackboards When Chronic Illness...Or Some Other Medical Problem...Goes To School, J Fleitas, Fairfield University, CN
• Curriculum Books, Cincinnatti Children's Hospital

  Publishers & Resources for the following Books, Booklets and Brochures

  Note: This list was compiled prior to 1996, and is not updated regularly. Newer editions may be available for many of the textbooks, and some publishers have changed names. An Internet search may link to online sources for these or similar materials. Alphabetical by author last name, or publisher for some curricula guides.

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  Author not specified:

  BSCS/Advances in Genetic Technology, DC Heath & Co

  subject: genetic technology

  grade(s): secondary

  Explores biochemistry, genetics, and molecular biology. Asks students to think about the serious implications this technology has for our society. Explores scientific method

  BSCS/Advances in Genetic Technology (Teacher's Guide), DC Heath & CO

  subject: genetic technology

  grade(s): secondary

  Acquaints students with the basic biology of genetic engineering. Explores scientific method

  BSCS/Basic Genetics: A Human Approach (Sr. High Teacher Manual), Kendall/Hunt

  subject: genetics

  grade(s): secondary

  Instructional program focusing on students as individuals, and on their parents, relatives, children they may have someday. Genetic disorders. Ethical questions

  BSCS/Basic Genetics: A Human Approach (Sr. High Workbook), Kendall/Hunt

  subject: genetics

  grade(s): secondary

  Six to eight week course. Almost fifty separate activities that demonstrate the basic principles of human genetics and address the personal and social issues arising from the application of this knowledge. Study of inheritance and genetic disorders

  BSCS/Genes and Surroundings (Jr. High Teacher Manual), Kendall/Hunt

  subject: genetics

  grade(s): secondary

  25 activities to guide students through the Genes and Surroundings book

  BSCS/Genes and Surroundings (Jr. High Workbook), Kendall/Hunt

  subject: genetics

  grade(s): secondary

  Twenty-five activities which demonstrate major concepts in genetics including variability, continuity, patterns of development, and interaction of genotype and environment. Helps adolescents with identity questions

  BSCS/Patterns and Processes, Kendall/Hunt

  subject: biology / genetics

  grade(s): secondary

  Student workbook designed to build one's own biology text. Unit 4 of the workbook is dedicated to human genetics

  BSCS/Patterns and Processes (Teacher's Guide), Kendall Hunt Publishing

  subject: biology / genetics

  grade(s): secondary

  Teacher guide for secondary level to provide teachers and students opportunities to work together using scientific method in biological science. Unit 4 is dedicated to human genetics

  Developing Mathematical & Scientific Thinking in Young Children, Paul H. Brookes Publishing

  grade(s): elementary

  Looks at the development of mathematical and scientific thinking in the primary school and focuses on ways in which the curriculum can be adapted to appeal to children with special needs. Practical suggestions, ideas, and activities for use in the ordinary classroom

  Each and Every One, The Kids on the Block

  grade(s): elementary

  Fetal Alcohol Syndrome: Facts & Choices, University of Wisconsin

  grade(s): secondary

  Fetal exposure to alcohol is among the three most common causes of mental retardation in the United States, and it is the only one which is truly preventable. Teacher's guide is an attempt to provide an accurate, updated, and useful tool for educators to use in young people's programs related to the prevention of Fetal Alcohol Syndrome and Fetal Alcohol Effects

  Genetic Causes of Developmental Disabilities, Ohio Prevention Continuing Education Project, 1985

  grade(s): adult, professional

  Continuing education for health care professionals. To increase participant's awareness of genetic disease, the importance of early detection, and the multidisciplinary approach in the identification of at-risk individuals

  Genetic Conditions, California State Department of Education, 1977

  grade(s): elementary, middle, secondary

  Resource book and instructional guide to human heredity and birth defects for kindergarten through adult education

  Genetic Conditions: Workshop for Public Health Nurses (Trainer's Manual), KUMC, 1985

  grade(s): professional

  University of Kansas Children's Rehab Unit provides public health nurses with a foundation of knowledge and basic skills screening clients with possible genetic conditions

  Genetic Counseling Glossary Spanish Translation of English Terms, Center for Human and Molecular Genetics, 1994

  subject: genetic counseling Spanish terms

  grade(s): secondary, adult, professional, teacher

  For genetic counselors and medical personnel communicating with Spanish-speaking patients. Definitions provided specific for this type of counseling, complex ideas presented as simply as possible

  Genetics Course for Health Professionals, Georgetown University

  grade(s): adult

  Manual for incorporation of genetics into clinical practice, continuing education courses for practicing nurses, social workers, and allied health professionals

  Genetics Digest

  grade(s): teacher, health care professionals reference

  Continuing education tool for biology teachers. Reviews and summaries of current literature in genetics. Published five times annually. For subscription information contact Polly Haddow, Foundation for Blood Research, P.O. Box 190, Scarborough, Maine 04074

  Genetics for the Health Professional, University of Colorado, 1985

  grade(s): professional

  Handbook to supplement continuing education services in medical genetics

  Genetics: Investigating the Mosaic of Life, National Organization of Rare Disorders

  grade(s): middle

  Human Heredity, J. Weston Walch Publisher

  grade(s): secondary

  Living With a Brother or Sister With Special Needs, University of Washington Press

  grade(s): elementary

  Written for siblings of children with disabilities, factual information about various disabilities, offers emotional support to brothers and sisters. Focus on feelings of  siblings have, discusses how these feelings are normal, and how to deal with them in a positive and constructive manner. Bibliography of materials about disabilities, names and addresses of disability resources

  Making Room for Uncle Joe

  grade(s): elementary

  Meiosis Student Guide, Carolina Biological

  Mitosis Student Guide, Carolina Biological

  Models and Methods for the Genetic Analysis of Pedigree Data, S. Karger Publishers, Inc., 1993, 3-8055-5762-0

  subject: heredity

  grade(s): secondary, adult, professional

  Our Brother Has Down Syndrome, AboutFace, 1985

  grade(s): elementary, adult

  Photographs. Two elementary school aged girls talk about their toddler brother, who has Down Syndrome. [marny@clark.net]

  Signs for Genetic Counseling, Gallaudet University Press, 1983

  grade(s): teacher, health care professionals reference

  For genetic counseling clients and sign language interpreters

  Studying Genetics, J. Weston Walch Publisher

  grade(s): secondary

  Studying Genetics (Copy Masters), NASCO

  grade(s): middle, secondary

  Exercises for students, practice working with fundamentals of genetics: terminology, history, mitosis and meiosis, biochemistry of DNA and RNA function. Each activity focuses on a single concept in genetics such as monohybrid crosses, codominance, epistasis, tests of significance, multiple factors

  The Joy of Genetics, Medical College of Ohio

  grade(s): Adult

  1975. A study guide to basic, human and medical genetics, question and answer form, student self-test

  The Pedigree: A Basic Guide, Grendel, Inc

  grade(s): teacher, health care professional reference

  What if your couldn't...A program about handicaps, Burt Harrison & Co

  grade(s): elementary

  Elementary school program about handicaps developed by the Children's Museum of Boston with WGBH. Teacher's guide included, books, and hands-on kits on: visual impairments, hearing impairments, orthopedic problems, mental retardation, learning disabilities, and emotional problems

  With Wings: Anthology of Literature - Women w/Disabilities, Feminist Press

  grade(s): teacher, health care professionals reference

  Ablon, Joan, Little People in America: The Social Dimensions of Dwarfism, Praeger Pub. Div., 1984, 0030001196

  subject: short stature

  grade(s): teacher, health care professionals reference

  Medical anthropologist research on individuals with dwarfism - lives, feelings and ideas of little people

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  By Author:

  Ablon, Joan, Living with Difference - Families with Dwarf Children, 1988

  subject: short stature

  grade(s): teacher, health care professionals reference

  Medical anthropologist writes about parents, children with dwarfism, and their siblings. Resource on all aspects of dwarfism

  Abolafia, Yossi, My Three Uncles, Greenwillow, 1985

  subject: Triplets

  grade(s): elementary

  A young girl learns how to tell her three look-alike uncles apart

  Adams, B., Like it is: Facts and feelings about handicaps from kids, Walker and Company, 1979

  subject: disabilities

  grade(s): middle

  Nature of various handicapping conditions, including mental retardation, learning disabilities, orthopedic handicaps, speech and hearing disorders, visual impairment, and behavioral disorders

  Addy, Sharon Hart, A Visit with Great-Grandma, Albert Whitman & Co., 1989

  subject: differences

  grade(s): elementary

  Even though Great-grandma speaks very little English and baruska does not speak Czech, they enjoy a very special afternoon together while baking and looking at old photographs

  Ahouse, Jeremy John, Fingerprinting, Teacher's Guide, University Of California, 1987

  grade(s): teacher, health care professional reference

  Aiello & Shulman, A Portrait of Me, Twenty-First Century, 1989

  subject: diabetes

  grade(s): elementary

  Eleven-year-old Christine copes successfully with having diabetes, but finds it much more difficult to come to terms with her Greek-American origins. See how she gains a new appreciation of her heritage. Also included is a question-and-answer section on having diabetes

  Aiello & Shulman, Business Is Looking Up, Twenty-First Century, 1988

  subject: visual impairment

  grade(s): elementary

  Visually impaired since birth, eleven-year-old Renaldo Rodriguez is full of spunk. A natural showman (and mischief-maker) and budding entrepreneur, Renaldo learns that there is more to running a business than just making money

  Aiello & Shulman, Secrets Aren't (Always) For Keeps, Twenty-First Century, 1988

  subject: learning disabilities

  grade(s): elementary

  Jennifer takes off on a roller coaster of mixed emotions when she tries to keep her learning disability a secret. Her delightful story is about believing in oneself and knowing that secrets aren't always for keeps

  Aiello & Shulman, Trick or Treat or Trouble, Twenty-First Century, 1989

  subject: epilepsy

  grade(s): elementary

  On Halloween, Brian and his friends tempt fate by visiting a neighborhood 'haunted house.' See how these trick or treaters realize that knowing the facts about something--be it Brian's epilepsy or haunted houses and funeral homes--proves there is little to be afraid of. Questions and answers about epilepsy are included

  Alexander, Bryan, Eskimo Family, 1986

  subject: ethnic differences

  grade(s): elementary, adult, professional

  Alexander, Gretchen, Life Science (Teacher's Edition), Scott Foresman, 1987

  subject: biology

  grade(s): teacher reference

  Text book of manageable lessons designed to be read and discussed within one class period. Each lesson contains only pertinent scientific information organized around a process or a cause-effect, problem-solution relationship. Units on The Functioning Organism, The Human Body, Heredity and Change, Ecology

  Alexander, Sally Hobart, Mom Can't See Me, Macmillan Pub. Co., 1990

  subject: visual impairment

  grade(s): elementary

  A nine year old girl describes how her mother leads an active and rich life despite being blind

  Alice Wexler, Ph.D., Mapping Fate: A Memoir of Family, Risk and Genetic Research, Times Books, 1995

  subject: Huntington Disease

  grade(s): secondary, adult

  Odyssey of one family in their encounter with Huntington Disease

  Amadeo, Diana M., There's a Little Bit of Me in Jamey, Albert Whitman & Co., 1989

  subject: leukemia

  grade(s): elementary

  Brain, whose younger brother Jamey has leukemia, feels frightened, confused, and neglected by his parent; but he finds some comfort when he donated bone marrow to his brother

  American Diabetes Assn., Diabetes In The Family, Robert J. Brady Co., 1982

  subject: diabetes

  grade(s): teacher, health care professional reference

  Anders, Rebecca, A Look at Mental Retardation, Lerner Pub. Co., 1976

  subject: mental retardation

  grade(s): elementary

  Text and photographs describe problems faced by people who are mentally handicapped

  Andrews, Jean F., The Secret in the Dorm Attic, Gallaudet University Press, 1990, 0-930323-66-1

  subject: deafness

  grade(s): elementary

  Donald visits Matt at his school for deaf children, where they solve the mystery of the stolen necklace

  Andrews, Lori B., Medical Genetics: A Legal Frontier, National Center for Education in Maternal and Child Health, 1987, 0-910059-12-8

  subject: medical genetics, law

  grade(s): secondary, adult, professional

  Analysis of the law for people who work in the medical genetics field and related health care fields

  Andrews, Lori B., J.E. Fullarton, N.A. Holtzman, A.G. Motulsky, Assessing Genetic Risks, Implications for Health and Social Policy, National Academy Press, 1994, 0-309-04798-6

  subject: genetic testing

  grade(s): secondary, adult, professional

  Genetic testing.  Principles for actions, research, and policy recommendations on issues in genetic knowledge balanced with issues associated with knowledge: availability of treatment; privacy, confidentiality, discrimination; personal decision making; public health objectives; cost; financing. Quality assurance in genetic testing; appropriate roles for public agencies, private health practitioners, research laboratories and centers, and companies involved in testing; balanced education and counseling for persons considering testing; professional and public education; and access to test results for insurance, employment, and other uses.

  Anglim, Maryann & Walter Allan, Kara Mia: the story of sudden loss and slow recovery in a teenager with Long QT syndrome, Seahorse Press, Bath, ME 04530, ISBN 0-9656501-0-3

  subject: heart disease

  grade(s): secondary, adult

  One family's struggle to cope with the anoxic brain injury that resulted from Long QT syndrome in their teenage daughter. Dramatic tale of this insidious cause of Sudden Arrhythmia Death syndrome. Written by Kara's mother, an operating room nurse, and Kara's physician, a pediatric neurologist, covers her story from cardiac arrest on the high school track through her ongoing rehabilitation.

  Annas, George J., and Alias, Sherman, Gene Mapping Using Law and Ethics as Guides, Oxford University Press, 1992,0-19-507303-7

  subject: Ethical, Legal, Social Implications of the Human Genome Project(ELSI )

  grade(s): teacher, professional

  Philosophers, lawyers, historians and clinicians, examine problems raised by Human Genome Project.

  Apgar & Beck, Is My Baby All Right?, Pocket Books, 1974.

  subject: birth defects

  grade(s): teacher, health care professionals reference

  Covers all types of birth defects. Each condition introduced by a short family or individual case history. Addresses the question every mother asks before her child is born, discusses development of the child prenatally, and the causes of   common genetic conditions such as cleft lip, cystic fibrosis,etc. Out of print, but available in libraries

  Applebaum & Fierstein, A Genetic Counseling Casebook, The Free Press, 1983

  subject: genetic counseling

  grade(s): teacher, health care professionals reference

  Annotated collection of varied genetic counseling cases provided by practitioners

  Armour, Judith, The Human Approach to Genetics, Ohio Medical College

  subject: genetics

  grade(s): teacher, health care professionals reference

  Margy Gray, Genetics Center, Pediatrics Dept., Ohio Medical College, SC 10008, Toledo, OH 43699, (419) 381-4435. BOOK BEING REPRINTED. UNAVAILABLE AT THIS TIME (1/12/89).

  Arnold, Caroline, Genetics: From Mendel to Gene Splicing, Franklin Watts, 1986

  subject: genetics

  grade(s): middle, secondary

  Covers heredity, Mendel, genes and agriculture, future of genetic research

  Arthur, Catherine, My Sister's Silent World, Children's Press, 1979, 0516420224

  subject: hearing impairment

  grade(s): elementary

  Aseltine, Lorraine, et al, I'm Deaf and It's Okay, Albert Whitman & Co., 1986

  subject: hearing impairment

  grade(s): elementary

  A young boy describes the frustrations caused by his deafness and the encouragement he receives from a deaf teenager that he can lead an active life

  ASHG, Career Opportunities In Genetics, American Society of Human Genetics, 1987

  subject: careers

  grade(s): teacher, health care professional reference

  Describes various genetic professions, background coursework needed, years of school, etc

  Asimov, Isaac, How Did We Find Out About DNA, Walker and Company, 1985

  subject: DNA History

  grade(s): middle

  Describes the discovery of DNA, a complex molecule found in all cells which plays a vital part in heredity

  Asimov, Isaac, How Did We Find Out About Genes?, Walker and Company, 1983

  subject: heredity

  grade(s): middle

  How our concept of heredity has changed with each new piece of evidence uncovered in the last century. Covers the plant-breeding experiments of Gregor Mendel, and the discovery of mutations and chromosomes. Discussion of the use of X-rays to produce mutations and the effect of natural mutations on the evolution of species

  Azarnoff, P., Health, Illness and Disability, RR Bowker Company, 1983

  subject: disabilities

  grade(s): secondary

  Annotated bibliography in book form of over 1,000 books about health, illness, and disability, for young adults and children

  Bach, Alice, A Father Every Few Years, Harper and Row, 1977.

  grade(s): secondary

  Bailey NC and NL Eskeland, Call Me Gene, Second Ed., 2001. ISBN:0-9673811-2-6. Softcover, 119 pages.

  subject: genetics

  grade(s): middle

  Genetic code, cell cycle, reproduction, basic genetics, advances in biotechnology, DNA technology in agriculture, forensic science, tools scientists use to combat disease.

  Bailey NC and NL Eskeland, Fun With Gene - Workbooks in Student and Teacher Editions. ISBN: 0-9673811-3-4 (Student Edition), 2001 ISBN: 0-9673811-4-2 (Teacher Edition), 2001

  subject: genetics

  grade(s): middle

  Students learning genetics and biotechnology through forensic cases-to-solve, cases related to genetic diseases, cases related to agriculture, hands-on activities, extraction of DNA from a vegetable or fruit, or making a DNA model

  Bains, William, Genetic Engineering for Almost Everybody, Penguin, 1987, 0140227407

  subject: genetic engineering

  grade(s): teacher, health care professionals reference

  Optimistic text with technicalities of genetic engineering simply explained. For serious lay readers and teachers seeking explanations of genetic engineering that can be read and understood by high school and beginning college students.

  Balkwill, Frances and Mic Rolph, Have a Nice DNA (Enjoy Your Cells, 3) , June, 2002, Cold Spring Harbor Laboratory Press Co., ISBN: 0879696109

  subject: basic genetics

  grade(s): elementary, middle

  Balkwill, Frances and Mic Rolph, Gene Machines, June 2002, Cold Spring Harbor Laboratory Press Co.

  subject: basic genetics

  grade(s): elementary, middle

  Balkwill, Fran and Rolph, Mic, Amazing Schemes Within Your Genes, Cold Spring Harbor Laboratory Press Co., 1993, 0-00-196465-8

  subject: basic genetics

  grade(s): elementary, middle

  Every human being is unique. You are made up of 23 chromosomes from your mother and 23 chromosomes from your father, and those 46 chromosomes contain a unique mixture of genes. That same mixture is in the millions of cells that make up your body. But although about 99.5% of your genes are the same as everybody else's, some parts vary: hair color, shape of eyes, color of skin. And some people inherit genetic diseases like cystic fibrosis. How does that happen? Read to discover some amazing facts about your genes. (Age 15 and up)

  Balkwill, Fran and Rolph, Mic, Cell Wars, Cold Spring Harbor Laboratory Press Co., 1990, 0-00-196307-4

  subject: basic genetics

  grade(s): elementary, middle

  After reading this fully illustrated account of immune responses and other anti-microbial reactions, a child will view illness quite differently. He or she will have a better understanding about what actually happens up one's nose, down one's throat, and anywhere else that has been invaded by germs. (Ages 7 - 13)

  Balkwill, Fran and Rolph, Mic, Cells Are Us, Cold Spring Harbor Laboratory Press Co., 1990, 0-00-196306-6

  subject: basic genetics

  grade(s): elementary, middle

  Various types of cells make up the human body. By using lively and expressive language, and by portraying the different cells with colorful and imaginative drawings, teachs the reader how an individual person is created from just one cell. (Age 5 - 8)

  Balkwill, Fran and Rolph, Mic, DNA Is Here To Stay, Cold Spring Harbor Laboratory Press Co., 1992, 0-00-191165-1

  subject: basic genetics

  grade(s): elementary, middle

  Third book in the colorful award-winning series for children, which began with Cells Are Us and Cell Wars. Authors combine lively graphics, based on real scientific observations, with a clear, simple text. Book explores the secret of life itself - the secret of DNA. Designed to teach young readers about the master plan that directs the growth of a single cell into a complete human being

  Bankowski, Z and A.M. Capron, Genetics, Ethics and Human Values: Human Genome Mapping, Genetic Screening and Gene Therapy, World Health Organization, 1991

  grade(s): secondary, teacher, adult, professional

  Baraitser, Michael, The Genetics of Neurological Disorders, Oxford University Press, 1990, 26813-X

  subject: genetics, neurology

  grade(s): professional

  Comprehensive study of genetically determined conditions that affect the central and peripheral nervous system. Emphasis is on the diagnosis, mode of inheritance, and recurrence risks. Provides references to the original literature

  Bartels, Lekey, Coplan, Prescribing Our Future: Ethical Challenges in Genetic Counseling

  Batshaw, M. Peret, Y., Children with Handicaps: A Medical Primer, Paul H. Brookes Publishing, 1981

  subject: handicaps

  grade(s): teacher, adult, professional

  Bawden, Nina, The Witch's Daughter

  subject: blindness

  grade(s): elementary, X

  Baznik, D., Becky's Story: A Book to Share, AboutFace, 1981.

  grade(s): elementary

  Beatty, Patricia, Charley Skedaddle, Morrow, 1987, 0-688-06687-9

  grade(s): elementary

  12-year-old Charley Quinn loves the excitement and the gang fighting that are part of his life in New York City's Bowery in 1864. When his sister's fiancé threatens to send hum to an orphanage, Charley runs off with Union army enlistees and is taken on in Virginia as a drummer boy. Filled with the glory of war and a desire to avenge his brother's death at Gettysburg, Charley is a perfect soldier until his regiment does its first fighting at the Battle of the Wilderness. Charley shoots a Confederate soldier, then runs from the fighting in a panic, earning the nickname "Charley Skedaddle" from derisive soldiers

  Beauchamp, Tom L. and James, F. Childress, Principles of Biomedical Ethics, Oxford University Press, 1994, 508537-X

  subject: ELSI

  grade(s): professional

  Topics include communitarianism, ethics of care, relationship-based accounts, casuistry, case-based reasoning, principle-based common-morality theories, the justification of assistance in dying, rationing through priorities in the health care budget, and virtues in professional roles

  Becker, Shirley, Buddy's Shadow, Jason & Nordic Publishers, 1990, 0-944727-08-5

  subject: disabilities, children

  grade(s); elementary, adult, professional, teacher

  Five-year-old Buddy had difficulty making friends at school until he learned to love a very special animal friend (Down syndrome)

  Begleiter, Henri and Benjamin Kissin, The Genetics of Alcoholism, Oxford University Press, 1995, 508877-8

  subject: genetics, alcoholism

  grade(s): professional

  Covers the biological, psychological, and social aspects, a biopsychological approach. Addresses the genetic influences that contribute ultimately to the development of alcoholism.  Divided into three sections: Genetic Epidemiology, Laboratory Studies in Animals and Humans of Genetic Influences in Alcoholism, and Strategies for Genetic Research in Alcoholism

  Benderly, Beryl, Dancing Without Music, Doubleday , 1980

  subject: hearing impairment

  grade(s): secondary

  From training in Cultural Anthropology and Linguistics, examination of the 'greatest human need: to communicate with each other .. to explain deafness to a hearing world'. Discussion of what is the best method for the deaf to communicate, auditory training or lip reading

  Bennett, Carol, Giant Steps for Steven, Spina Bifida Assoc., 1980

  subject: spina bifida

  grade(s): elementary

  Bennett family photo journal illustrating son Scott's childhood and how his life is affected by Spina Bifida

  Benson, Philip F. and Anthony, H. Fensom, Genetic Biomedical Disorders, Oxford University Press, 1986, 261642-0

  subject: genetic conditions

  grade(s): professional

  Berg, Paul, and Singer, Maxine, Dealing with Genes: The Language of Heredity, University Science Books, 1992, 0-935702-69-5

  subject: general genetics

  grade(s): secondary, adult

  Designed to make molecular genetics accessible to the nonscientist, future of science and humans, genetic engineering, gene therapy, DNA works. Describes nuts and bolts of molecular genetics, mitosis, chromosomal basis of inheritance. Also, aspects of genetics and how this science has illuminated our understanding of processes ranging from cancer to mechanisms of development

  Berg, Raissa, Acquired Traits: Memoirs of a Geneticist in the Soviet Union, Viking, 1988

  grade(s): teacher, adult, professional

  Geneticists in the USSR during 1948-1964. Autobiographical oral history of the psychological, professional, and social duress that individuals endured

  Bergman, Thomas, Finding a Common Language: Children Living with Deafness, Steven Gareth, Inc., 1989

  subject: hearing impairment

  grade(s): elementary

  Follows the activities of a six year old Swedish girl as she attends a nursery school for the deaf

  Bergman, Thomas, On Our Own Terms: Children Living w/ Physical Disabilities, Gareth Stevens, Inc., 1989

  subject: physical disabilities

  grade(s): elementary

  Describes the activities at the Caroline Hospital in Stockholm where children with congenital handicaps receive training and physiotherapy

  Bergman, Thomas, One Day at a Time: Children Living with Leukemia, Gareth Stevens, Inc., 1989

  subject: leukemia

  grade(s): elementary

  Focuses on children with leukemia and follows treatments

  Bergman, Thomas, Seeing in Special Ways: Children Living with Blindness, Steven Gareth, Inc., 1989

  subject: visual impairment

  grade(s): elementary

  Interviews with a group of blind and partially sighted children in Sweden reveal their feelings about their disability and the ways they use their other senses to help them 'see.'

  Bergman, Thomas, We Laugh, We Love, We Cry: Children Living w/ Mental Retardation, Steven Gareth, Inc., 1989

  subject: mental retardation

  grade(s): elementary

  Describes the home life, physiotherapy, and schooling of two mentally retarded sisters

  Bergsma, Daniel, Birth Defects Compendium, Alan Liss, Inc., 1979

  grade(s): physician, health care professional reference

  Berini, R., Clinical Genetics Handbook, Medical Economics, 1987

  subject: clinical genetics

  grade(s): professional

  Explanation of genetic counseling issues

  Berkus, Clara Widess, Charlsie's Chuckle, Woodbine House, 1992, 0-933149-50-6

  subject: Down syndrome

  grade(s): teacher, adult, professional

  Bernstein, Jerry & Sandy, What is Genetics?, Messner, 1979

  subject: genetics

  grade(s): secondary

  Bernstien, J., and Fireside, B., Special Parents, Special Children, Albert Whitman & Co., 1991

  subject: disabilities, parental

  grade(s): elementary

  Young and old members of four families discuss what it is like when a parent has a physical disability

  Berry, Joy, About Physical Disabilities, Children's Press, 1990

  subject: physical disabilities

  grade(s): elementary

  Billings, Paul R., DNA On Trial: Genetic Identification and Criminal Justice, Cold Spring Harbor Laboratory Press Co., 1992, 0-879-69381-9

  subject: DNA Technology

  grade(s): secondary

  Discusses complexity of issues surrounding the use of DNA for identification, forensic evidence.  History of DNA's use in trial courts, legal and statistical issues in DNA typing, the impact of the technology on civil liberties and attempts to implement public policy. Analysis of decisions made in different courts on whether or not a jury should be allowed to consider DNA evidence. Applications of technology and  controversies of DNA testing from a scientific, legal or sociological point of view

  Bishop, Jerry E., and Waldholz, Michael, Genome, Touchstone, 1990, 0-671-74032-6

  subject: HGP

  grade(s): secondary, adult, professional

  Story of our attempt to map all the genes in the human body

  Bloom & Seljeskog, A Parent's Guide to Spina Bifida, University of Minnesota Press, 1988

  subject: spina bifida

  grade(s): teacher, adult, professional

  Spina bifida is the name for a group of serious birth defects of the central nervous system. Assists parents and relatives to absorb medical information available about the disorder. Glossary, a list of the professionals in spina bifida care programs, a list of helpful organizations, and a bibliography of books

  Bloom, Freddy, The Boy Who Couldn't Hear, The Bodley Head, 1977

  subject: hearing impairment

  grade(s): elementary

  A day fishing with Mark, a deaf child, and his new friends.  Mark's mother helps other children to understand his handicap. Illustrations. Young readers. Part of Special Situation Picture books series

  Blume, Judy, Deenie

  subject: handicaps, scoliosis

  grade(s): elementary

  Borgaonkar, Digamber, Repository of Human Chromosomal Variants and Anomalies

  900 pages of personally communicated data from over 300 contributors in 33 countries. 65,191 variants and anomalies in this edition. Chromosome Repository Cytogenetics Laboratory, Medical Center of Delaware, Inc., P.O. Box 6001, Newark, DE 19718

  Bornstein & Bornstein, New Frontiers in Genetics, Julina Messner, 1984

  subject: genetics

  grade(s): adult, professional

  Written as a partnership between a geneticist and a journalist, focuses on the practical aspects of the latest genetic technology

  Bosk, All God's Mistakes: Genetic Counseling in a Pediatric Hospital, University of Chicago Press, 1992, 0226066819

  grade(s): teacher, professional

  Brancato, Robin, Winning, Bantam, 1978, 0-55-3265-970

  subject: injuries, overcoming

  grade(s): secondary

  Brancato's fact based novel focuses on the life of Gary, a star athlete, who must learn to live as a quad

  Brandenberg, Franz, Otto is Different, Greenwillow, 1985

  subject: differences

  grade(s): elementary

  Otto learns the advantages of being an octopus and having eight arms instead of two

  Brandenburg, Aliki, Feelings, Greenwillow

  subject: feelings

  grade(s): elementary

  Brennan, Gale, Toulouse the Moose, Ideals Publishing Company

  subject: short stature

  grade(s): elementary

  A story of a moose who has very short legs and cannot keep up with the rest of the herd. One day the tallest moose, the leader, gets tangled in tree branches. Toulouse comes to the rescue and uses his short stature to an advantage. Now he is a hero and helps the larger moose lead the pack. Everyone is required to travel slowly and safely like Toulouse has always done. Heroes come in all sizes!

  Bresler, Jack B., Genetics and Society, Addison-Wesley, 1973, 0201006006

  subject: behavior

  grade(s): teacher, health care professionals reference

  Explores how the human gene pool affects human society and conversely how human society affects the human gene pool. Dominant themes are human society and human genetics

  Briggs, Dorothy Corkille, Your Child's Self-Esteem, Doubleday, 1975, 0385040202

  subject: self-esteem

  grade(s): teacher, health care professionals reference

  For parents interested in finding ways to help their children feel good about themselves

  Briggs, Freeman & Yaffee, Drugs In Pregnancy and Lactating, Williams & Wilkins, 1986

  grade(s): physician, health care professional reference

  Brightman, Alan, Like Me, Little, 1976, 0316108073

  subject: differences

  grade(s): elementary, adult, professional

  Briscoe, A Researcher's Guide to Scientific and Medical Illustrations, Springer-Verlag New York, Inc., 1990, 97199-8

  subject: resources

  grade(s): adult, professional

  Contains information on availability of slides and posters

  British Medical Association, Our Genetic Future: The Science and Ethics of Genetic Technology, Oxford University Press, 1992, 28156-5

  subject: ethics and technology

  grade(s): teacher, professional

  Authoritative report calls for new guidelines to maximize the benefits of  breakthroughs in genetic research, and minimize the risk of serious error. Examines history of genetics, from Mendel's first experiments to the unravelling of DNA and the latest developments in gene cloning and gene therapy. Applications are discussed, not only for humans but also for microorganisms, plants, and animals. Also, focuses on the social and ethical implications of genetic research, including patenting of life, the protection of privacy, and the ethics of screening people of genetic disease. Recommends practices, regulations and policies

  Brock, D.J.H., Molecular Genetics for the Clinician, Cambridge University Press, 1993, 0-521-42325-2

  subject: molecular genetics

  grade(s): secondary, adult

  Broda & Oliver, Human Genetics and Medicine, 3rd edition, Cambridge University Press, 427649

  Brown, Fern G., Hereditary Diseases, Franklin Watts, 1987, 0-531-10386-2

  grade(s): secondary, teacher

  Explains how disease traits are transmitted through the chromosomes of the parents to their offspring. Diseases examined in depth are cystic fibrosis, sickle-cell anemia, Tay-Sachs disease and diabetes

  Brown, Fern G., Heredity Diseases, Watts, 1987

  subject: hereditary conditions

  grade(s): teacher, adult, professional

  Explains what causes babies to be born with cystic fibrosis or sickle cell anemia, Sachs Disease, and diabetes. Explores the ever-widening field of genetics and genetic counseling. Begins with a short but thorough discussion of genetics and heredity that would serve as a good introduction to the topic for anyone

  Brown, Irene B., Before the Lark, Atheneum, 1982

  subject: cleft lip

  grade(s): secondary

  Brown, Marc, Arthur's Eyes, Little, 1979, 0380533898

  subject: visual impairment

  grade(s): elementary

  Mark Brown's animal world cartoonbook explains how 'his friends tease Arthur when he gets glasses, but he soon learns to wear them with pride.' Part of An Arthur Adventure series

  Brown, Tricia, Someone Special, Just Like You, Henry Holt & Co., 1982

  subject: differences

  grade(s): elementary

  Handicapped children experience every day activities. Text and photographs

  BSCS, Biological Science: A Molecular Approach, DC Heath & Co, 1985

  subject: molecular biology

  grade(s): teacher, health care professional reference

  Designed to present a balanced approach to biology and to serve equally well either as a terminal course in general education or as a college preparatory course in biology. Its central theme is molecular biology. Discusses biological issues of the future

  BSCS, BSCS/Biomedical Technology, Kendall/Hunt, 1984

  subject: ethics questions

  grade(s): teacher, adult, professional

  Explores the social consequences of science and technology

  BSCS, BSCS/Biomedical Technology (Teacher's Guide), Kendall/Hunt, 1984

  subject: ethics questions

  grade(s): teacher, health care professional reference

  Legal, ethical, and moral questions. Plurality of values in our society. Incomplete nature of our data. Encourages students to question and think for themselves. Activities

  BSCS, Science for Life and Living, BSCS Innovative Science Education, 1991

  subject: biology

  grade(s): elementary, middle

  Buck, Pearl S., The Child Who Never Grew, Woodbine House, 1992, 0-933149-49-2

  subject: parenting, mental retardation

  grade(s): teacher, adult, professional

  Buckman, Robert, How to Break Bad News: A Guide for Health Care Professionals, Johns Hopkins University Press, 1992, 0-8018-4491-6

  subject: grief

  grade(s): professional

  "An expert in breaking bad news is not someone who gets it right every time - she or he is merely someone who gets it wrong less often, and who is less flustered when things do not go smoothly. This book cannot provide an infallible formula for getting it right (there is no such thing), but it may improve the success rate. In general, the most common problems are caused by relatively simple errors - faults in common courtesy, failures in listening or in acknowledging the patient's need"

  Burchardt, Nellie, Surprise for Carlotta, Franklin Watts, 1971

  grade(s): elementary

  Burke, Chris, J. McDaniel, A Special Kind of Hero, Doubleday, 1991

  subject: Down syndrome

  grade(s): elementary

  Star of the television series 'Life Goes On' tells his own story.

  Burton, Robert & Maurice, The Beginnings of Life, Facts on File, Inc., 1986

  Buscaglia, Leo, The Disabled and Their Parents, Charles B. Slack, Inc., 1975

  subject: disabilities

  grade(s): teacher, health care professionals reference

  Emphasizes need for quality counseling for the disabled and open communication between their parents and counselors to strive to develop the innate potential of each special child

  Butterworth, R. & Flodin, Micky, The Pocket Dictionary of Signing, Putnum Pub. Group, 1987, 0399513477

  subject: signing language

  grade(s): teacher, health care professionals reference

  Illustrated guide to basic sign language

  Butzow, Carol M. & John W., Science Through Children's Literature: An Integrated Approach, Teacher Ideas Press, 1989, 0872876675

  subject: reference, science

  grade(s): teacher, adult, professional

  Buyse, Mary Louise, Editor in Chief, Birth Defects Encyclopedia, Blackwell Scientific Publications, Inc., 1993

  subject: birth defects

  grade(s): professional

  Comprehensive, systematic illustrated reference for diagnosis, delineation, etiology, biodynamics, occurrence, prevention, and treatment of human anomalies of clinical relevance. Peer-reviewed, authoritative reference of over a thousand experts and a Board of more than sixty editors - a virtual international who's who of the disciplines contributing to human genetics, birth defects and clinical medicine

  Byars, Betsy, The Summer of the Swans, Penguin, 1981, 0140314202

  subject: mental retardation

  grade(s): middle, secondary

  Fourteen-year-old Sara learns what it is to care more for her younger brother Charlie than she cares for herself

  Cabisco Teleproductions, Map of Life: Science, Society, and the Human Genome Project, Carolina Biological Supply Company, 1992

  subject: HGP

  grade(s): secondary, adult, professional

  Cairo, Shelley, Our Brother Has Down's Syndrome, Annick Press Ltd., 1985

  subject: Down Syndrome

  grade(s): elementary

  Children's storybook, with pictures, about Tara and Jasmine and their brother, Jai, who has Down syndrome. Jai is a lot like his sisters and he likes doing many things they like to do

  Calabrese, Edward J., Ecogenetics, John Wiley & Sons, Inc., 1984

  subject: environmental agents

  grade(s): teacher, health care professionals reference

  Evaluation of current scientific literature dealing with how genetic factors affect susceptibility to environmental agents

  Campbell-Lashley, Cindy, Visual Aids for Health Care Professionals, 2nd Edition 2001

  subject:  genetic topics

  target audience(s): educators and health care professionals
  Genetic topics: meiosis, mitosis, patterns of inheritance, nondisjunction, monosomy, trisomy, anaphase lag, mosaicism, Lyonization, inversions and duplication/deletion syndromes, mitochondrial and multifactorial inheritance, imprinting and UPD, cancer, balanced / Robertsonian translocations, linkage analysis, metabolic disorders, twinning, Rh sensitization, amniocentesis, CVS, PUBS, confined placental mosaicism, and more.   Available in Spanish. $45.00 +$5.00 shipping / handling ($50.00 total), Slide set available soon, CCL Books

  Canada, Lena, To Elvis, With Love, Everest House, 1978, 0590057790

  subject: wheelchair

  grade(s): middle, secondary

  True story chronicles the life of Karen, a young, crippled and dying woman. Karen's secret dream is to meet superstar Elvis Presley

  Carlson, Elof Axel, Human Genetics, DC Heath, 1988

  subject: human genetics

  grade(s): teacher, health care professional reference

  Advanced introductory text, concentrating on cells and chromosomes, classical developmental, molecular, and population genetics. Discusses genetic counseling and engineering, radiation and cell death, IQ testing, fertility, and cancer. Photographs and line art help students grasp difficult concepts. Instructor's guide, $2.00

  Carlson, Nancy, Arnie and the New Kid, Viking Press, 1990

  subject: disabilities

  grade(s): elementary

  Arnie learns his lesson after teasing Philip, a new kid in a wheelchair

  Carlson, Nancy, I Like Me!, Viking Penguin, 1988

  subject: self-esteem, self-image

  grade(s): elementary

  Picture book for young children. Pig if full of good feelings about herself. She knows how to take care of herself and how to have fun. She is her own best friend

  Carrick, Carol, Stay Away From Simon, Houghton, 1985

  subject: mental retardation

  grade(s): elementary

  Lucy and her younger brother examine their feelings about a mentally handicapped boy they both fear when he follows them home one snowy day. An unusual adventure story set on Martha's vineyard in the 1830's

  Caseley, Judith, Harry and Willy and Carrothead, Greenwillow, 1991

  subject: limb deficiency

  grade(s): elementary

  Harry was born with no left hand and wears a prosthesis. His hand didn't keep him from being a good baseball player - or a good friend

  Cassedy, Sylvia, M.E. & Morton, Thomas Y. Crowell, 1987.

  subject: learning disabilities

  grade(s): middle

  Eleven year old Mary Ella, ashamed that her older bother Morton is a slow learner and longing for a friend of her own, is astonished when the flamboyant new girl on the block picks Morton as a friend. Polly never seems to care what other people think of her, and she does things no one else would ever think of doing. She likes Morton just the way he is

  Caudill, Rebecca, A Certain Small Shephard, Holt Rinehart Winston, 1965, 0030801079

  subject: autism

  grade(s): elementary

  Causley and Firth, 'Quack!' Said the Billy Goat

  subject: differences

  grade(s): elementary

  Cazet, Denys, Great-Uncle Felix, Orchard Books, 1988

  subject: family relationships

  grade(s): elementary

  Sam the rhinoceros learns how to be a special friend to his great-uncle Felix, even though Sam can't do everything right. Picture book for young children

  Center for Biomedical Genetics, An Ethics Casebook for Genetic Counselors, University of Virginia Health Science Center, 1995

  subject: genetic counseling

  grade(s): professional

  Chang, Patricia L., Somatic Gene Therapy, CRC Press, Inc., 1995, 0-8493-2440-8

  subject: gene therapy

  grade(s): secondary, teacher, adult, professional

  Novel and innovative developments in molecular genetics provide opportunities to treat the genetic bases of diseases often untreatable before. Documents historical clinical trials, reviews advances in the field, evaluates the use of the many different cell types and organs amenable to gene transfer, and examines the prospects of various strategies for gene therapy

  Charkins, Hope, Children with Facial Difference: A Parents' Guide, Woodbine House, 1995, 0-933149-61-1

  subject: parenting, facial disfigurement

  grade(s): teacher, adult, professional

  Chevalier, Christa, Spence is Small, Albert Whitman & Co., 1987

  subject: short stature

  grade(s): elementary

  Spence learns he is too short to perform some tasks but just the right size to help his mother do others

  Child's Play, Special People, Child's Play Ltd, 1989, 0859533506

  subject: disabilities

  grade(s): elementary

  Different occupations that make each person special, thereby enhancing the world

  Child's Play, Who Cares About Disabled People?, Child's Play Ltd, 1989, 0859533514

  subject: disabilities

  grade(s): elementary, middle

  Clark, John (Editor), Genetics and Heredity: The Blueprints of Life, Torstar Books, 1987, 0-920269-65-6

  subject: heredity

  grade(s): middle, secondary, teacher, adult, professional

  Text from a series 'The Human Body Series'. Easy to read, color illustrations and information about the human body

  Clark, Maureen, RN, Genetic Counseling '82, Regional Genetics

  grade(s): teacher reference

  Cleary, Beverly, Mitch and Amy, Morrow, 1967, 0440454115

  subject: twins, fraternal

  grade(s): elementary

  Cleaver, Vera and Bill, Me Too, Lippincott, 1973, 0064401618

  subject: mental retardation

  grade(s): middle

  Lydia's twin sister, Lornie, is twelve, but she has the mind of a five-year-old. Lydia is determined to change her sister. Lydia wants a twin just like herself, but what she gets after a long summer is even better -- the sure knowledge that happiness isn't 'normal' and that it isn't 'exceptional.'

  Clifton, L. Digrazia, T., My Friend Jacob, Dutton, 1980

  subject: mental retardation

  grade(s): elementary

  Cohen, Miriam, See You Tomorrow, Charles, Dell Publishing, 1983, 0440401623

  subject: visual impairment

  grade(s): elementary

  Charles is the new boy in the first grade class, and he is blind. His classmates want to be helpful. Should they protect Charles or treat him like everyone else? No one knows for sure. Then one day, the children get into trouble. Charles takes control and helps his friends

  Cohn, Janice, I Had A Friend Named Peter, Children's Press, 1987, 0-688-06686-0

  subject: grief, death of a friend

  grade(s): elementary

  A story about a young girl named Betsy whose best playmate has been killed by a car. A picture book, it portrays in words and illustrations her shifting feelings and thoughts following Peter's sudden death. A useful introduction to parents explains how to help children understand death and grieving

  Cole, Joanna, The Human Body: How We Evolved, William Morrow & Co., 1987

  subject: evolution

  grade(s): elementary, middle

  Shows how our eyes, teeth, hands, feet, brain, bones, and skin have changed over the last five million years. Clear, easy-to-read text. Explores the questions: Are our bodies still evolving, and will humans in the year 3000 be different from the way we are today? Dramatic illustrations

  Coleman, Howard and Eric Swensen, DNA in the Courtroom: A Trial Watcher's Guide, GeneLex Corporation, 1994, 0-9644507-0-4

  subject: forensics

  grade(s): middle, secondary, teacher, adult, professional

  Forensic DNA testing, use in the courtroom, legal implications of DNA technology, commercial development of forensic DNA testing, legal applications, evolution of standards. Basic genetics and parentage testing, glossary of genetic terminology. Chapters on DNA use in legal context focus on the nature of scientific evidence and the admissibility of testing in court proceedings. OJ Simpson case used to highlight various aspects of DNA as evidence in the courtroom. Background on the case, possible strategies prosecutors and defense attorneys use. Affirms that society benefits from DNA testing and DNA's use as evidence should be encouraged for the sake of justice

  Congress of the United States, Office of Technology Projects--How Big, How Fast?, Mapping Our Genes: Genome Assessment, Johns Hopkins University Press, 1993

  subject: HGP

  grade(s): secondary, adult, professional

  Connelly, John, You're Too Sweet: A Guide for the Young Diabetic, Astor Honor, 1968

  subject: diabetes

  grade(s): elementary

  Connor, J.M., and Fergauson-Smith, M.A., Essential Medical Genetics, Blackwell Scientific Publications, Inc., 1991, 0-632-02872-0

  subject: medical genetics

  grade(s): secondary, adult, professional

  Conway, Lorraine, Superific Science Series: Heredity and Embryology, Good Apple Inc., 1980, 0916456900

  subject: laboratory techniques

  grade(s): teacher, health care professional reference

  Low cost, imaginative laboratory exercises, individual and group activities, projects, stations and packets with a minimum amount of equipment and teacher preparation time. Material may be used as a supplement to other materials or by itself

  Cooper, Kay, Where Did You Get Those Eyes?, Walker and Company, 1988

  subject: family history

  grade(s): elementary, middle

  Invitation to venture into your own personal history, complete with a directory of genealogical sources, student projects, and examples of useful charts and notebooks

  Corcoran, Barbara, A Dance To Still Music, Atheneum, 1974

  subject: hearing impairment

  grade(s): secondary

  Corn, Anne L., Monocular Mac, Natl. Ass. 4 vis. hand, 1977

  subject: visual impairment

  grade(s): elementary

  Nine year old Billy tells of all the advantages to a monocular

  Covelli, Pat, Borrowing Time: Growing up with Juvenile Diabetes, Crowell

  subject: diabetes

  grade(s): secondary

  Cragg, Sheila, Run Patty, Run, Harper & Row, 1980

  subject: epilepsy

  grade(s): secondary

  Crawford, Alvin, Neurofibromatosis in Children, Acta/Sweden, 1986

  subject: neurofibromatosis

  grade(s): adult, professional

  Crichton, Michael, Jurassic Park, Ballantine Books A Division of Random House, 1990

  subject: DNA

  grade(s): middle, secondary, adult, professional

  Cunningham, C., Down Syndrome: An Introduction for Parents, Exceptional Parent, 1988

  grade(s): teacher, health care professionals reference

  Cunningham, Cliff, Downs Syndrome: An Introduction, Brookline Books, Inc., 1989, 0914797522

  subject: Down Syndrome

  grade(s): adult, professional

  Using positive and readable language, helps parents understand Down Syndrome. Medical details are explained in lay terms; and advice is given on working with professionals, obtaining services, and treatment techniques that help the child

  Cunningham, Cliff A., Down Syndrome: An Introduction for Parents, Brookline Books, Inc., 1987, 0-914797-52-2

  subject: Down Syndrome

  grade(s): secondary, adult, professional, teacher

  Positive and practical book for parents of Down Syndrome children, enabling them to face the shock and anxiety of learning that their baby is handicapped. Gives information and guidance to help them make the right decisions for the child's future and their own. Includes modern experience that Down Syndrome children can now grow up to play a full role in their communities, attending mainstream schools and finding employment

  Cunningham, Julia, Burnish Me Bright

  subject: hearing impairment, speech

  grade(s): elementary

  Dacquino, V.T., Kiss The Candy Days Good-bye, Delacorte, 1982

  subject: Diabetes

  grade(s): elementary

  Daly, Glenda L., All About Me, What About You?, Glanda Daly, 1988

  subject: Hunter Syndrome

  grade(s): teacher, health care professionals reference

  Personal story of woman with son who has severe Hunter Syndrome. Explanation of Mucopolysaccadidoses Disorders

  Dantzer Rosenthal, Marya, Some Things are Different, Some Things are the Same, Albert Whitman & Co., 1986

  subject: Differences

  grade(s): EX

  When Josh visits stephen, some things are different than they are at home

  Davies, The Fragile X Syndrome, Oxford University Press, 26-18369

  Davies, Kay, Editor, The Fragile X Syndrome, Oxford University Press, 1989, 0192618369

  subject: Fragile X

  grade(s): teacher, health care professionals reference

  Review of clinical, epidemiological, and cytogenetic aspects of Fragile X Syndrome, the most common genetic cause of mental retardation after Down Syndrome

  Davis, Bernard, The Genetic Revolution: Scientific Prospects and Public Perceptions, Johns Hopkins University Press, 1991, 0-8018-4239-5

  subject: technology

  grade(s): adult, professional

  Discussion of social issues evoked by technology of genetic engineering. For scientists and lay persons with concern for the health care or the environment and those who carry responsibility for policy making" -Pharos

  Davis, Joel, Mapping the Code: The Human Genome Project and the Choices of Modern Science, John Wiley & Sons, Inc., 1990, 0-471-50383-5

  subject: HGP

  grade(s): adult, professional

  Science, politics, business, and controversy behind today's most important scientific undertaking

  Davis, K.E., Genome Analysis, Vol. 1, Cold Spring Harbor Laboratory Press Co., 1990

  Davis, K.E., Genome Analysis, Vol. II, Cold Spring Harbor Laboratory Press Co., 1990

  Dawkins, Richard, The Selfish Gene, 2nd edition, Oxford University Press, 1990, 286092-5

  subject: ethics

  grade(s): secondary, adult, professional

  Biologist gently and expertly debunks some of the favorite illusions of social biology about the evolution of altruism.

  De Angeli, Marquerite, The Door in the Wall, Doubleday, 1981, 0590409689

  subject: visual impairment

  grade(s): middle, secondary

  Set during a plague in 16th century London, tells the war-time story of Robin, a young girl who is abandoned by the servants while her parents are away

  De Bruin, Jerry, Creative, Hands-On Science Experiences, Good Apple, Inc., 1986

  subject: laboratory techniques

  grade(s): teacher, health care professional reference

  Focuses on the use of common, everyday materials. Major emphasis on starter activities to prompt children to ask 'why' or 'what happened.'

  De Grouchy, Turleau, Clinical Atlas of Human Chromosomes, Wiley-Liss & Sons, Inc., A Division of John Wiley, 1984

  grade(s): physician, health care professional reference

  De Rosnay, Joel, Biokit: A Journey to Life, Adama Books, 1984

  subject: DNA

  grade(s): teacher, health care professional reference

  A tour, guided by Protix (a simple protein molecule), of the structures of life. Simple explanation of DNA and coding and the synthesis of proteins: a Biokit and Biodisc allows students to put together cardboard pieces and then 'read' different codons, bases, and whole amino acids by turning the disc

  Denhardt, David T., Replication of DNA, Carolina Biology Rdrs

  subject: DNA replication

  grade(s): elementary

  Devord, Frank, Alex, the Life of a Child, New American Library, 1983, 0-670-11195-3

  subject: Cystic Fibrosis

  grade(s): secondary

  Written by a professional sports writer, the father of a child with cystic fibrosis. Movie was based on book

  Donovan, Pete, Carol Johnston The One-armed Gymnast, Children's Press, 1982, 0516443232

  subject: disabilities, overcoming

  grade(s): elementary

  A biography of the Canadian gymnast who won All-American honors in 1978 despite her physical handicap

  Donovan, Pete, Sports Stars: Carol Johnston, The One-Armed Gymnast, Childrens Press, 1982, 0516443232

  subject: limb deficiency

  grade(s): elementary

  Dougan, Isbell & Vyas, We Have Been There, Abingdon Press Nash., 1983

  subject: Mental Retardation

  grade(s): secondary

  A guidebook for families of people with mental retardation. It is a book of opinions and notes from the heart, not a set of rules or a policy

  Dragonwagon, Crescent, Diana, Maybe, MacMillan Publishing, 1987

  subject: Half-Sister

  grade(s): EX

  Rosie speculates about what her life would be like if she ever met her half sister, Diana

  Drlica, K., Understanding DNA and Gene Cloning, Wiley-Liss, A Division of John Wiley & Sons, Inc., 1992, 0-47-1622-57

  subject: DNA

  grade(s): adult, professional

  Intended for the non-scientist who is interested in gaining a background sufficient to understand often complex articles, serves as a supplement for general biology or introductory genetics courses

  Dronamraju, K.R., The History and Development of Human Genetics: Progress in Different Countries, Genetics Center, Houston, 1992, 981-02-0900-2

  subject: genetics, international

  grade(s): adult, professional

  International speakers trace progress of human genetics from beginning to the present day, in various communities in different countries. Advances and national developments  reviewed by scientists and historian from the USA, UK, France, Hungary, Japan, India, USSR, etc. Discussion of the development of research, teaching human genetics, technologies for screening, diagnosis, prediction, prevention and treatment of hereditary diseases, distribution of diseases in different communities and countries, pioneers and prominent figures in field and achievements, other topics

  Duster, Troy, Backdoor to Eugenics, Routledge, 1990

  Dwyer, Kathleen M., What Do You Mean I Have a Learning Disability?, Walker and Company, 1991

  subject: learning disabilities

  grade(s): elementary

  Describes learning disabilities and what can be done to overcome them

  Dynski-Klein, Martha, A Color Atlas of Pediatrics, Mosby, 1986

  subject: genetic disorders

  grade(s): professional

  Edelwich & Brodsky, Diabetes: Caring for Your Emotions as Well as Your Health, Addison-Wesley, 1986, 0201106086

  grade(s): teacher, health care professional reference

  Edlin, G., Genetic Principles: Human and Social Consequences, Jones & Bartlett, 1984

  Basics of genetics with emphasis on DNA technology

  Edrington, Moss, Young, Friends, Instructional Development, 1978

  subject: disabilities

  grade(s): middle

  Simulation activities for children to help them better understand the daily life of their friends who have disabilities and to recognize their problems and accomplishments

  Educational Impressions, Create A Center About...Heredity & Genetics, Educational Impressions, 1984

  subject: heredity and genes

  grade(s): teacher, adult, professional

  Many activities for teacher to use to help students study the world of heredity and genetics

  Educational Impressions, Create A Center About...The Human Body, Educational Impressions, 1984

  subject: human body

  grade(s): teacher, health care professional reference, students

  Many activities for teacher to use in helping students discover the fascinating world of the human body

  Elais, Sherman, Reproductive Genetics and the Law, Mosley Year Books, 1987

  Emery, A., Psychological Aspects of Genetic Counseling, Academic Press, Inc., 1985

  subject: genetic counseling

  grade(s): teacher, adult, professional

  A comprehensive presentation of various components of genetic counseling which emphasizes the psychological impact of genetic disease upon the family

  Emery, Alan E., Muscular Dystrophy: The Facts, Oxford University Press, 1994, 262449-0

  subject: muscular dystrophy

  grade(s): professional

  Examines living with muscular dystrophy and coping with its physical and psychological effects. For people with muscular dystrophy and their families, answers questions about how and why it occurs, and how it will affect the life of recently diagnosed child. Different types of muscular dystrophy are described with the minimum of technical jargon. Questions relating to exercise, physiotherapy, surgery, and the emotional effects of the disease are answered, and advice is given on the problems of schooling and choice of career. Useful list of international muscular dystrophy groups and associations

  Emery, Alan E.H., Duchenne Muscular Dystrophy, 2nd Ed., Oxford University Press, 1993, 262370-2

  subject: Duchenne muscular dystrophy

  grade(s): professional

  Duchenne Muscular Dystrophy and evaluation of published literature. Describes clinical features, emphasizing involvement of tissues other than skeletal muscle. Biochemistry, genetics and molecular pathology discussed, role of dystrophin in the pathogenesis of the diseases. Prevention through neonatal screening, carrier detection, genetic counseling, and prenatal diagnosis is fully covered, stressing the importance of DNA markers and gene probes. Discusses management of patients with the disease and the possibilities for treatment, which include surgical correction of deformities, drug treatments, the prospects for myoblast transfer, and the possibilities for gene therapy

  Emery, Alan E.H., M.D., Ph.D., An Introduction to Recombinant DNA, John Wiley & Sons, Inc., 1984, 0-471-90363-9

  subject: DNA

  grade(s): secondary, adult, professional

  Introduction to subject of recombinant DNA technology for people in the medical profession. General overview

  Emery, Alan E.H., Mueller, Robert F., Elements of Medical Genetics (student notes), Churchill Livingstone

  Emmert, Michelle, I'm the Big Sister Now, Albert Whitman & Co., 1989

  subject: Cerebral Palsy

  grade(s): elementary

  Nine-year-old Michelle describes the joys, loving times, difficulties, and other special situations involved in living with her older sister Amy Emmert, who was born severely disabled with cerebral palsy

  Emory University School of Law, Emory Law Journal: The Randolph W. Thrower Symposium: Genetics and the Law, Emory University School of Law, 1990, 0094-4076

  subject: HGP / ELSI

  grade(s): secondary, adult, professional

  Engel, Leonard, The New Genetics, Avon Books, 1967

  subject: general survey

  grade(s): teacher, health care professionals reference

  Engel attempt to explain human genetics to a lay readship, 1967 copyright will not reflect update methods of teaching basic genetics, but provides a historical perspective on development of basic genetic theories

  Eskeland NL and NC Bailey. My Name Is Gene, 2nd Ed., September 2002. ISBN: 0-9673811-5-0

  subject: genetics

  grade(s): late elementary / middle (classroom or home-schooling)

  Science book from religous perspective, emphasing God's handiwork. We are unique and special because of our genetic code. Information on genetics and the scientific advances in biotechnology. Includes illustrations, exercises. Genetics and biotechnology.

  Evans, Mark I., Ed., Reproductive Genetic Testing: Impact Upon Women, S. Karger Publishers, Inc., 1993, 3-8055-5715-9

  subject: genetic testing

  grade(s): adult, professional

  Reproductive genetic testing technologies have expanded rapidly over the last two decades, with impact on women. Discussion of sometimes controversial psychosocial, ethnocultural, legal, ethical and public policy issues involved in this area of genetic research. International perspective on methods and important issues regarding education and training

  Evenndon, Margery, The Kite Song, Lothrop, Lee, Shephd

  Facklam, Howard & Margery, From Cell to Clone: The Story of Genetic Engineering, Harcourt, 1979

  subject: cloning history

  grade(s): secondary

  Story of 'genetic engineering-clones that will provide forests and food, will re-establish endangered species, will allow us to reproduce microbes and mice'.

  Fassler, Joan, Howie Helps Himself, Albert Whitman & Co., 1978, 0807534226

  subject: physical disabilities

  grade(s): elementary

  Though he enjoys life with his family and attends school, Howie, a child with cerebral palsy, wants more than anything else to be able to move his wheelchair by himself

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