Human Genetics/Genome Books

Annotated List

• The Family Village Book Store, or Library disability-related print material
• A Guide to Children's Literature and Disability 1989-1994, National Information Center for Children and Youth with Disabilities
• Children's Literature & Disability, National Information Center for Children and Youth with Disabilities, 2001
• Children's Book Resource, Disabilities or Special Needs, Waisman Center University of Wisconsin, Madison
  
• Band-Aides and Blackboards When Chronic Illness...Or Some Other Medical Problem...Goes To School, J Fleitas, Fairfield University, CN
• Curriculum Books, Cincinnatti Children's Hospital

  Publishers & Resources for the following Books, Booklets and Brochures

  Note: This list was compiled prior to 1996, and is not updated regularly. Newer editions may be available for many of the textbooks, and some publishers have changed names. An Internet search may link to online sources for these or similar materials. Alphabetical by author last name, or publisher for some curricula guides.

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  Author not specified:

  BSCS/Advances in Genetic Technology, DC Heath & Co

  subject: genetic technology

  grade(s): secondary

  Explores biochemistry, genetics, and molecular biology. Asks students to think about the serious implications this technology has for our society. Explores scientific method

  BSCS/Advances in Genetic Technology (Teacher's Guide), DC Heath & CO

  subject: genetic technology

  grade(s): secondary

  Acquaints students with the basic biology of genetic engineering. Explores scientific method

  BSCS/Basic Genetics: A Human Approach (Sr. High Teacher Manual), Kendall/Hunt

  subject: genetics

  grade(s): secondary

  Instructional program focusing on students as individuals, and on their parents, relatives, children they may have someday. Genetic disorders. Ethical questions

  BSCS/Basic Genetics: A Human Approach (Sr. High Workbook), Kendall/Hunt

  subject: genetics

  grade(s): secondary

  Six to eight week course. Almost fifty separate activities that demonstrate the basic principles of human genetics and address the personal and social issues arising from the application of this knowledge. Study of inheritance and genetic disorders

  BSCS/Genes and Surroundings (Jr. High Teacher Manual), Kendall/Hunt

  subject: genetics

  grade(s): secondary

  25 activities to guide students through the Genes and Surroundings book

  BSCS/Genes and Surroundings (Jr. High Workbook), Kendall/Hunt

  subject: genetics

  grade(s): secondary

  Twenty-five activities which demonstrate major concepts in genetics including variability, continuity, patterns of development, and interaction of genotype and environment. Helps adolescents with identity questions

  BSCS/Patterns and Processes, Kendall/Hunt

  subject: biology / genetics

  grade(s): secondary

  Student workbook designed to build one's own biology text. Unit 4 of the workbook is dedicated to human genetics

  BSCS/Patterns and Processes (Teacher's Guide), Kendall Hunt Publishing

  subject: biology / genetics

  grade(s): secondary

  Teacher guide for secondary level to provide teachers and students opportunities to work together using scientific method in biological science. Unit 4 is dedicated to human genetics

  Developing Mathematical & Scientific Thinking in Young Children, Paul H. Brookes Publishing

  grade(s): elementary

  Looks at the development of mathematical and scientific thinking in the primary school and focuses on ways in which the curriculum can be adapted to appeal to children with special needs. Practical suggestions, ideas, and activities for use in the ordinary classroom

  Each and Every One, The Kids on the Block

  grade(s): elementary

  Fetal Alcohol Syndrome: Facts & Choices, University of Wisconsin

  grade(s): secondary

  Fetal exposure to alcohol is among the three most common causes of mental retardation in the United States, and it is the only one which is truly preventable. Teacher's guide is an attempt to provide an accurate, updated, and useful tool for educators to use in young people's programs related to the prevention of Fetal Alcohol Syndrome and Fetal Alcohol Effects

  Genetic Causes of Developmental Disabilities, Ohio Prevention Continuing Education Project, 1985

  grade(s): adult, professional

  Continuing education for health care professionals. To increase participant's awareness of genetic disease, the importance of early detection, and the multidisciplinary approach in the identification of at-risk individuals

  Genetic Conditions, California State Department of Education, 1977

  grade(s): elementary, middle, secondary

  Resource book and instructional guide to human heredity and birth defects for kindergarten through adult education

  Genetic Conditions: Workshop for Public Health Nurses (Trainer's Manual), KUMC, 1985

  grade(s): professional

  University of Kansas Children's Rehab Unit provides public health nurses with a foundation of knowledge and basic skills screening clients with possible genetic conditions

  Genetic Counseling Glossary Spanish Translation of English Terms, Center for Human and Molecular Genetics, 1994

  subject: genetic counseling Spanish terms

  grade(s): secondary, adult, professional, teacher

  For genetic counselors and medical personnel communicating with Spanish-speaking patients. Definitions provided specific for this type of counseling, complex ideas presented as simply as possible

  Genetics Course for Health Professionals, Georgetown University

  grade(s): adult

  Manual for incorporation of genetics into clinical practice, continuing education courses for practicing nurses, social workers, and allied health professionals

  Genetics Digest

  grade(s): teacher, health care professionals reference

  Continuing education tool for biology teachers. Reviews and summaries of current literature in genetics. Published five times annually. For subscription information contact Polly Haddow, Foundation for Blood Research, P.O. Box 190, Scarborough, Maine 04074

  Genetics for the Health Professional, University of Colorado, 1985

  grade(s): professional

  Handbook to supplement continuing education services in medical genetics

  Genetics: Investigating the Mosaic of Life, National Organization of Rare Disorders

  grade(s): middle

  Human Heredity, J. Weston Walch Publisher

  grade(s): secondary

  Living With a Brother or Sister With Special Needs, University of Washington Press

  grade(s): elementary

  Written for siblings of children with disabilities, factual information about various disabilities, offers emotional support to brothers and sisters. Focus on feelings of  siblings have, discusses how these feelings are normal, and how to deal with them in a positive and constructive manner. Bibliography of materials about disabilities, names and addresses of disability resources

  Making Room for Uncle Joe

  grade(s): elementary

  Meiosis Student Guide, Carolina Biological

  Mitosis Student Guide, Carolina Biological

  Models and Methods for the Genetic Analysis of Pedigree Data, S. Karger Publishers, Inc., 1993, 3-8055-5762-0

  subject: heredity

  grade(s): secondary, adult, professional

  Our Brother Has Down Syndrome, AboutFace, 1985

  grade(s): elementary, adult

  Photographs. Two elementary school aged girls talk about their toddler brother, who has Down Syndrome. [marny@clark.net]

  Signs for Genetic Counseling, Gallaudet University Press, 1983

  grade(s): teacher, health care professionals reference

  For genetic counseling clients and sign language interpreters

  Studying Genetics, J. Weston Walch Publisher

  grade(s): secondary

  Studying Genetics (Copy Masters), NASCO

  grade(s): middle, secondary

  Exercises for students, practice working with fundamentals of genetics: terminology, history, mitosis and meiosis, biochemistry of DNA and RNA function. Each activity focuses on a single concept in genetics such as monohybrid crosses, codominance, epistasis, tests of significance, multiple factors

  The Joy of Genetics, Medical College of Ohio

  grade(s): Adult

  1975. A study guide to basic, human and medical genetics, question and answer form, student self-test

  The Pedigree: A Basic Guide, Grendel, Inc

  grade(s): teacher, health care professional reference

  What if your couldn't...A program about handicaps, Burt Harrison & Co

  grade(s): elementary

  Elementary school program about handicaps developed by the Children's Museum of Boston with WGBH. Teacher's guide included, books, and hands-on kits on: visual impairments, hearing impairments, orthopedic problems, mental retardation, learning disabilities, and emotional problems

  With Wings: Anthology of Literature - Women w/Disabilities, Feminist Press

  grade(s): teacher, health care professionals reference

  Ablon, Joan, Little People in America: The Social Dimensions of Dwarfism, Praeger Pub. Div., 1984, 0030001196

  subject: short stature

  grade(s): teacher, health care professionals reference

  Medical anthropologist research on individuals with dwarfism - lives, feelings and ideas of little people

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  By Author:

  Ablon, Joan, Living with Difference - Families with Dwarf Children, 1988

  subject: short stature

  grade(s): teacher, health care professionals reference

  Medical anthropologist writes about parents, children with dwarfism, and their siblings. Resource on all aspects of dwarfism

  Abolafia, Yossi, My Three Uncles, Greenwillow, 1985

  subject: Triplets

  grade(s): elementary

  A young girl learns how to tell her three look-alike uncles apart

  Adams, B., Like it is: Facts and feelings about handicaps from kids, Walker and Company, 1979

  subject: disabilities

  grade(s): middle

  Nature of various handicapping conditions, including mental retardation, learning disabilities, orthopedic handicaps, speech and hearing disorders, visual impairment, and behavioral disorders

  Addy, Sharon Hart, A Visit with Great-Grandma, Albert Whitman & Co., 1989

  subject: differences

  grade(s): elementary

  Even though Great-grandma speaks very little English and baruska does not speak Czech, they enjoy a very special afternoon together while baking and looking at old photographs

  Ahouse, Jeremy John, Fingerprinting, Teacher's Guide, University Of California, 1987

  grade(s): teacher, health care professional reference

  Aiello & Shulman, A Portrait of Me, Twenty-First Century, 1989

  subject: diabetes

  grade(s): elementary

  Eleven-year-old Christine copes successfully with having diabetes, but finds it much more difficult to come to terms with her Greek-American origins. See how she gains a new appreciation of her heritage. Also included is a question-and-answer section on having diabetes

  Aiello & Shulman, Business Is Looking Up, Twenty-First Century, 1988

  subject: visual impairment

  grade(s): elementary

  Visually impaired since birth, eleven-year-old Renaldo Rodriguez is full of spunk. A natural showman (and mischief-maker) and budding entrepreneur, Renaldo learns that there is more to running a business than just making money

  Aiello & Shulman, Secrets Aren't (Always) For Keeps, Twenty-First Century, 1988

  subject: learning disabilities

  grade(s): elementary

  Jennifer takes off on a roller coaster of mixed emotions when she tries to keep her learning disability a secret. Her delightful story is about believing in oneself and knowing that secrets aren't always for keeps

  Aiello & Shulman, Trick or Treat or Trouble, Twenty-First Century, 1989

  subject: epilepsy

  grade(s): elementary

  On Halloween, Brian and his friends tempt fate by visiting a neighborhood 'haunted house.' See how these trick or treaters realize that knowing the facts about something--be it Brian's epilepsy or haunted houses and funeral homes--proves there is little to be afraid of. Questions and answers about epilepsy are included

  Alexander, Bryan, Eskimo Family, 1986

  subject: ethnic differences

  grade(s): elementary, adult, professional

  Alexander, Gretchen, Life Science (Teacher's Edition), Scott Foresman, 1987

  subject: biology

  grade(s): teacher reference

  Text book of manageable lessons designed to be read and discussed within one class period. Each lesson contains only pertinent scientific information organized around a process or a cause-effect, problem-solution relationship. Units on The Functioning Organism, The Human Body, Heredity and Change, Ecology

  Alexander, Sally Hobart, Mom Can't See Me, Macmillan Pub. Co., 1990

  subject: visual impairment

  grade(s): elementary

  A nine year old girl describes how her mother leads an active and rich life despite being blind

  Alice Wexler, Ph.D., Mapping Fate: A Memoir of Family, Risk and Genetic Research, Times Books, 1995

  subject: Huntington Disease

  grade(s): secondary, adult

  Odyssey of one family in their encounter with Huntington Disease

  Amadeo, Diana M., There's a Little Bit of Me in Jamey, Albert Whitman & Co., 1989

  subject: leukemia

  grade(s): elementary

  Brain, whose younger brother Jamey has leukemia, feels frightened, confused, and neglected by his parent; but he finds some comfort when he donated bone marrow to his brother

  American Diabetes Assn., Diabetes In The Family, Robert J. Brady Co., 1982

  subject: diabetes

  grade(s): teacher, health care professional reference

  Anders, Rebecca, A Look at Mental Retardation, Lerner Pub. Co., 1976

  subject: mental retardation

  grade(s): elementary

  Text and photographs describe problems faced by people who are mentally handicapped

  Andrews, Jean F., The Secret in the Dorm Attic, Gallaudet University Press, 1990, 0-930323-66-1

  subject: deafness

  grade(s): elementary

  Donald visits Matt at his school for deaf children, where they solve the mystery of the stolen necklace

  Andrews, Lori B., Medical Genetics: A Legal Frontier, National Center for Education in Maternal and Child Health, 1987, 0-910059-12-8

  subject: medical genetics, law

  grade(s): secondary, adult, professional

  Analysis of the law for people who work in the medical genetics field and related health care fields

  Andrews, Lori B., J.E. Fullarton, N.A. Holtzman, A.G. Motulsky, Assessing Genetic Risks, Implications for Health and Social Policy, National Academy Press, 1994, 0-309-04798-6

  subject: genetic testing

  grade(s): secondary, adult, professional

  Genetic testing.  Principles for actions, research, and policy recommendations on issues in genetic knowledge balanced with issues associated with knowledge: availability of treatment; privacy, confidentiality, discrimination; personal decision making; public health objectives; cost; financing. Quality assurance in genetic testing; appropriate roles for public agencies, private health practitioners, research laboratories and centers, and companies involved in testing; balanced education and counseling for persons considering testing; professional and public education; and access to test results for insurance, employment, and other uses.

  Anglim, Maryann & Walter Allan, Kara Mia: the story of sudden loss and slow recovery in a teenager with Long QT syndrome, Seahorse Press, Bath, ME 04530, ISBN 0-9656501-0-3

  subject: heart disease

  grade(s): secondary, adult

  One family's struggle to cope with the anoxic brain injury that resulted from Long QT syndrome in their teenage daughter. Dramatic tale of this insidious cause of Sudden Arrhythmia Death syndrome. Written by Kara's mother, an operating room nurse, and Kara's physician, a pediatric neurologist, covers her story from cardiac arrest on the high school track through her ongoing rehabilitation.

  Annas, George J., and Alias, Sherman, Gene Mapping Using Law and Ethics as Guides, Oxford University Press, 1992,0-19-507303-7

  subject: Ethical, Legal, Social Implications of the Human Genome Project(ELSI )

  grade(s): teacher, professional

  Philosophers, lawyers, historians and clinicians, examine problems raised by Human Genome Project.

  Apgar & Beck, Is My Baby All Right?, Pocket Books, 1974.

  subject: birth defects

  grade(s): teacher, health care professionals reference

  Covers all types of birth defects. Each condition introduced by a short family or individual case history. Addresses the question every mother asks before her child is born, discusses development of the child prenatally, and the causes of   common genetic conditions such as cleft lip, cystic fibrosis,etc. Out of print, but available in libraries

  Applebaum & Fierstein, A Genetic Counseling Casebook, The Free Press, 1983

  subject: genetic counseling

  grade(s): teacher, health care professionals reference

  Annotated collection of varied genetic counseling cases provided by practitioners

  Armour, Judith, The Human Approach to Genetics, Ohio Medical College

  subject: genetics

  grade(s): teacher, health care professionals reference

  Margy Gray, Genetics Center, Pediatrics Dept., Ohio Medical College, SC 10008, Toledo, OH 43699, (419) 381-4435. BOOK BEING REPRINTED. UNAVAILABLE AT THIS TIME (1/12/89).

  Arnold, Caroline, Genetics: From Mendel to Gene Splicing, Franklin Watts, 1986

  subject: genetics

  grade(s): middle, secondary

  Covers heredity, Mendel, genes and agriculture, future of genetic research

  Arthur, Catherine, My Sister's Silent World, Children's Press, 1979, 0516420224

  subject: hearing impairment

  grade(s): elementary

  Aseltine, Lorraine, et al, I'm Deaf and It's Okay, Albert Whitman & Co., 1986

  subject: hearing impairment

  grade(s): elementary

  A young boy describes the frustrations caused by his deafness and the encouragement he receives from a deaf teenager that he can lead an active life

  ASHG, Career Opportunities In Genetics, American Society of Human Genetics, 1987

  subject: careers

  grade(s): teacher, health care professional reference

  Describes various genetic professions, background coursework needed, years of school, etc

  Asimov, Isaac, How Did We Find Out About DNA, Walker and Company, 1985

  subject: DNA History

  grade(s): middle

  Describes the discovery of DNA, a complex molecule found in all cells which plays a vital part in heredity

  Asimov, Isaac, How Did We Find Out About Genes?, Walker and Company, 1983

  subject: heredity

  grade(s): middle

  How our concept of heredity has changed with each new piece of evidence uncovered in the last century. Covers the plant-breeding experiments of Gregor Mendel, and the discovery of mutations and chromosomes. Discussion of the use of X-rays to produce mutations and the effect of natural mutations on the evolution of species

  Azarnoff, P., Health, Illness and Disability, RR Bowker Company, 1983

  subject: disabilities

  grade(s): secondary

  Annotated bibliography in book form of over 1,000 books about health, illness, and disability, for young adults and children

  Bach, Alice, A Father Every Few Years, Harper and Row, 1977.

  grade(s): secondary

  Bailey NC and NL Eskeland, Call Me Gene, Second Ed., 2001. ISBN:0-9673811-2-6. Softcover, 119 pages.

  subject: genetics

  grade(s): middle

  Genetic code, cell cycle, reproduction, basic genetics, advances in biotechnology, DNA technology in agriculture, forensic science, tools scientists use to combat disease.

  Bailey NC and NL Eskeland, Fun With Gene - Workbooks in Student and Teacher Editions. ISBN: 0-9673811-3-4 (Student Edition), 2001 ISBN: 0-9673811-4-2 (Teacher Edition), 2001

  subject: genetics

  grade(s): middle

  Students learning genetics and biotechnology through forensic cases-to-solve, cases related to genetic diseases, cases related to agriculture, hands-on activities, extraction of DNA from a vegetable or fruit, or making a DNA model

  Bains, William, Genetic Engineering for Almost Everybody, Penguin, 1987, 0140227407

  subject: genetic engineering

  grade(s): teacher, health care professionals reference

  Optimistic text with technicalities of genetic engineering simply explained. For serious lay readers and teachers seeking explanations of genetic engineering that can be read and understood by high school and beginning college students.

  Balkwill, Frances and Mic Rolph, Have a Nice DNA (Enjoy Your Cells, 3) , June, 2002, Cold Spring Harbor Laboratory Press Co., ISBN: 0879696109

  subject: basic genetics

  grade(s): elementary, middle

  Balkwill, Frances and Mic Rolph, Gene Machines, June 2002, Cold Spring Harbor Laboratory Press Co.

  subject: basic genetics

  grade(s): elementary, middle

  Balkwill, Fran and Rolph, Mic, Amazing Schemes Within Your Genes, Cold Spring Harbor Laboratory Press Co., 1993, 0-00-196465-8

  subject: basic genetics

  grade(s): elementary, middle

  Every human being is unique. You are made up of 23 chromosomes from your mother and 23 chromosomes from your father, and those 46 chromosomes contain a unique mixture of genes. That same mixture is in the millions of cells that make up your body. But although about 99.5% of your genes are the same as everybody else's, some parts vary: hair color, shape of eyes, color of skin. And some people inherit genetic diseases like cystic fibrosis. How does that happen? Read to discover some amazing facts about your genes. (Age 15 and up)

  Balkwill, Fran and Rolph, Mic, Cell Wars, Cold Spring Harbor Laboratory Press Co., 1990, 0-00-196307-4

  subject: basic genetics

  grade(s): elementary, middle

  After reading this fully illustrated account of immune responses and other anti-microbial reactions, a child will view illness quite differently. He or she will have a better understanding about what actually happens up one's nose, down one's throat, and anywhere else that has been invaded by germs. (Ages 7 - 13)

  Balkwill, Fran and Rolph, Mic, Cells Are Us, Cold Spring Harbor Laboratory Press Co., 1990, 0-00-196306-6

  subject: basic genetics

  grade(s): elementary, middle

  Various types of cells make up the human body. By using lively and expressive language, and by portraying the different cells with colorful and imaginative drawings, teachs the reader how an individual person is created from just one cell. (Age 5 - 8)

  Balkwill, Fran and Rolph, Mic, DNA Is Here To Stay, Cold Spring Harbor Laboratory Press Co., 1992, 0-00-191165-1

  subject: basic genetics

  grade(s): elementary, middle

  Third book in the colorful award-winning series for children, which began with Cells Are Us and Cell Wars. Authors combine lively graphics, based on real scientific observations, with a clear, simple text. Book explores the secret of life itself - the secret of DNA. Designed to teach young readers about the master plan that directs the growth of a single cell into a complete human being

  Bankowski, Z and A.M. Capron, Genetics, Ethics and Human Values: Human Genome Mapping, Genetic Screening and Gene Therapy, World Health Organization, 1991

  grade(s): secondary, teacher, adult, professional

  Baraitser, Michael, The Genetics of Neurological Disorders, Oxford University Press, 1990, 26813-X

  subject: genetics, neurology

  grade(s): professional

  Comprehensive study of genetically determined conditions that affect the central and peripheral nervous system. Emphasis is on the diagnosis, mode of inheritance, and recurrence risks. Provides references to the original literature

  Bartels, Lekey, Coplan, Prescribing Our Future: Ethical Challenges in Genetic Counseling

  Batshaw, M. Peret, Y., Children with Handicaps: A Medical Primer, Paul H. Brookes Publishing, 1981

  subject: handicaps

  grade(s): teacher, adult, professional

  Bawden, Nina, The Witch's Daughter

  subject: blindness

  grade(s): elementary, X

  Baznik, D., Becky's Story: A Book to Share, AboutFace, 1981.

  grade(s): elementary

  Beatty, Patricia, Charley Skedaddle, Morrow, 1987, 0-688-06687-9

  grade(s): elementary

  12-year-old Charley Quinn loves the excitement and the gang fighting that are part of his life in New York City's Bowery in 1864. When his sister's fiancé threatens to send hum to an orphanage, Charley runs off with Union army enlistees and is taken on in Virginia as a drummer boy. Filled with the glory of war and a desire to avenge his brother's death at Gettysburg, Charley is a perfect soldier until his regiment does its first fighting at the Battle of the Wilderness. Charley shoots a Confederate soldier, then runs from the fighting in a panic, earning the nickname "Charley Skedaddle" from derisive soldiers

  Beauchamp, Tom L. and James, F. Childress, Principles of Biomedical Ethics, Oxford University Press, 1994, 508537-X

  subject: ELSI

  grade(s): professional

  Topics include communitarianism, ethics of care, relationship-based accounts, casuistry, case-based reasoning, principle-based common-morality theories, the justification of assistance in dying, rationing through priorities in the health care budget, and virtues in professional roles

  Becker, Shirley, Buddy's Shadow, Jason & Nordic Publishers, 1990, 0-944727-08-5

  subject: disabilities, children

  grade(s); elementary, adult, professional, teacher

  Five-year-old Buddy had difficulty making friends at school until he learned to love a very special animal friend (Down syndrome)

  Begleiter, Henri and Benjamin Kissin, The Genetics of Alcoholism, Oxford University Press, 1995, 508877-8

  subject: genetics, alcoholism

  grade(s): professional

  Covers the biological, psychological, and social aspects, a biopsychological approach. Addresses the genetic influences that contribute ultimately to the development of alcoholism.  Divided into three sections: Genetic Epidemiology, Laboratory Studies in Animals and Humans of Genetic Influences in Alcoholism, and Strategies for Genetic Research in Alcoholism

  Benderly, Beryl, Dancing Without Music, Doubleday , 1980

  subject: hearing impairment

  grade(s): secondary

  From training in Cultural Anthropology and Linguistics, examination of the 'greatest human need: to communicate with each other .. to explain deafness to a hearing world'. Discussion of what is the best method for the deaf to communicate, auditory training or lip reading

  Bennett, Carol, Giant Steps for Steven, Spina Bifida Assoc., 1980

  subject: spina bifida

  grade(s): elementary

  Bennett family photo journal illustrating son Scott's childhood and how his life is affected by Spina Bifida

  Benson, Philip F. and Anthony, H. Fensom, Genetic Biomedical Disorders, Oxford University Press, 1986, 261642-0

  subject: genetic conditions

  grade(s): professional

  Berg, Paul, and Singer, Maxine, Dealing with Genes: The Language of Heredity, University Science Books, 1992, 0-935702-69-5

  subject: general genetics

  grade(s): secondary, adult

  Designed to make molecular genetics accessible to the nonscientist, future of science and humans, genetic engineering, gene therapy, DNA works. Describes nuts and bolts of molecular genetics, mitosis, chromosomal basis of inheritance. Also, aspects of genetics and how this science has illuminated our understanding of processes ranging from cancer to mechanisms of development

  Berg, Raissa, Acquired Traits: Memoirs of a Geneticist in the Soviet Union, Viking, 1988

  grade(s): teacher, adult, professional

  Geneticists in the USSR during 1948-1964. Autobiographical oral history of the psychological, professional, and social duress that individuals endured

  Bergman, Thomas, Finding a Common Language: Children Living with Deafness, Steven Gareth, Inc., 1989

  subject: hearing impairment

  grade(s): elementary

  Follows the activities of a six year old Swedish girl as she attends a nursery school for the deaf

  Bergman, Thomas, On Our Own Terms: Children Living w/ Physical Disabilities, Gareth Stevens, Inc., 1989

  subject: physical disabilities

  grade(s): elementary

  Describes the activities at the Caroline Hospital in Stockholm where children with congenital handicaps receive training and physiotherapy

  Bergman, Thomas, One Day at a Time: Children Living with Leukemia, Gareth Stevens, Inc., 1989

  subject: leukemia

  grade(s): elementary

  Focuses on children with leukemia and follows treatments

  Bergman, Thomas, Seeing in Special Ways: Children Living with Blindness, Steven Gareth, Inc., 1989

  subject: visual impairment

  grade(s): elementary

  Interviews with a group of blind and partially sighted children in Sweden reveal their feelings about their disability and the ways they use their other senses to help them 'see.'

  Bergman, Thomas, We Laugh, We Love, We Cry: Children Living w/ Mental Retardation, Steven Gareth, Inc., 1989

  subject: mental retardation

  grade(s): elementary

  Describes the home life, physiotherapy, and schooling of two mentally retarded sisters

  Bergsma, Daniel, Birth Defects Compendium, Alan Liss, Inc., 1979

  grade(s): physician, health care professional reference

  Berini, R., Clinical Genetics Handbook, Medical Economics, 1987

  subject: clinical genetics

  grade(s): professional

  Explanation of genetic counseling issues

  Berkus, Clara Widess, Charlsie's Chuckle, Woodbine House, 1992, 0-933149-50-6

  subject: Down syndrome

  grade(s): teacher, adult, professional

  Bernstein, Jerry & Sandy, What is Genetics?, Messner, 1979

  subject: genetics

  grade(s): secondary

  Bernstien, J., and Fireside, B., Special Parents, Special Children, Albert Whitman & Co., 1991

  subject: disabilities, parental

  grade(s): elementary

  Young and old members of four families discuss what it is like when a parent has a physical disability

  Berry, Joy, About Physical Disabilities, Children's Press, 1990

  subject: physical disabilities

  grade(s): elementary

  Billings, Paul R., DNA On Trial: Genetic Identification and Criminal Justice, Cold Spring Harbor Laboratory Press Co., 1992, 0-879-69381-9

  subject: DNA Technology

  grade(s): secondary

  Discusses complexity of issues surrounding the use of DNA for identification, forensic evidence.  History of DNA's use in trial courts, legal and statistical issues in DNA typing, the impact of the technology on civil liberties and attempts to implement public policy. Analysis of decisions made in different courts on whether or not a jury should be allowed to consider DNA evidence. Applications of technology and  controversies of DNA testing from a scientific, legal or sociological point of view

  Bishop, Jerry E., and Waldholz, Michael, Genome, Touchstone, 1990, 0-671-74032-6

  subject: HGP

  grade(s): secondary, adult, professional

  Story of our attempt to map all the genes in the human body

  Bloom & Seljeskog, A Parent's Guide to Spina Bifida, University of Minnesota Press, 1988

  subject: spina bifida

  grade(s): teacher, adult, professional

  Spina bifida is the name for a group of serious birth defects of the central nervous system. Assists parents and relatives to absorb medical information available about the disorder. Glossary, a list of the professionals in spina bifida care programs, a list of helpful organizations, and a bibliography of books

  Bloom, Freddy, The Boy Who Couldn't Hear, The Bodley Head, 1977

  subject: hearing impairment

  grade(s): elementary

  A day fishing with Mark, a deaf child, and his new friends.  Mark's mother helps other children to understand his handicap. Illustrations. Young readers. Part of Special Situation Picture books series

  Blume, Judy, Deenie

  subject: handicaps, scoliosis

  grade(s): elementary

  Borgaonkar, Digamber, Repository of Human Chromosomal Variants and Anomalies

  900 pages of personally communicated data from over 300 contributors in 33 countries. 65,191 variants and anomalies in this edition. Chromosome Repository Cytogenetics Laboratory, Medical Center of Delaware, Inc., P.O. Box 6001, Newark, DE 19718

  Bornstein & Bornstein, New Frontiers in Genetics, Julina Messner, 1984

  subject: genetics

  grade(s): adult, professional

  Written as a partnership between a geneticist and a journalist, focuses on the practical aspects of the latest genetic technology

  Bosk, All God's Mistakes: Genetic Counseling in a Pediatric Hospital, University of Chicago Press, 1992, 0226066819

  grade(s): teacher, professional

  Brancato, Robin, Winning, Bantam, 1978, 0-55-3265-970

  subject: injuries, overcoming

  grade(s): secondary

  Brancato's fact based novel focuses on the life of Gary, a star athlete, who must learn to live as a quad

  Brandenberg, Franz, Otto is Different, Greenwillow, 1985

  subject: differences

  grade(s): elementary

  Otto learns the advantages of being an octopus and having eight arms instead of two

  Brandenburg, Aliki, Feelings, Greenwillow

  subject: feelings

  grade(s): elementary

  Brennan, Gale, Toulouse the Moose, Ideals Publishing Company

  subject: short stature

  grade(s): elementary

  A story of a moose who has very short legs and cannot keep up with the rest of the herd. One day the tallest moose, the leader, gets tangled in tree branches. Toulouse comes to the rescue and uses his short stature to an advantage. Now he is a hero and helps the larger moose lead the pack. Everyone is required to travel slowly and safely like Toulouse has always done. Heroes come in all sizes!

  Bresler, Jack B., Genetics and Society, Addison-Wesley, 1973, 0201006006

  subject: behavior

  grade(s): teacher, health care professionals reference

  Explores how the human gene pool affects human society and conversely how human society affects the human gene pool. Dominant themes are human society and human genetics

  Briggs, Dorothy Corkille, Your Child's Self-Esteem, Doubleday, 1975, 0385040202

  subject: self-esteem

  grade(s): teacher, health care professionals reference

  For parents interested in finding ways to help their children feel good about themselves

  Briggs, Freeman & Yaffee, Drugs In Pregnancy and Lactating, Williams & Wilkins, 1986

  grade(s): physician, health care professional reference

  Brightman, Alan, Like Me, Little, 1976, 0316108073

  subject: differences

  grade(s): elementary, adult, professional

  Briscoe, A Researcher's Guide to Scientific and Medical Illustrations, Springer-Verlag New York, Inc., 1990, 97199-8

  subject: resources

  grade(s): adult, professional

  Contains information on availability of slides and posters

  British Medical Association, Our Genetic Future: The Science and Ethics of Genetic Technology, Oxford University Press, 1992, 28156-5

  subject: ethics and technology

  grade(s): teacher, professional

  Authoritative report calls for new guidelines to maximize the benefits of  breakthroughs in genetic research, and minimize the risk of serious error. Examines history of genetics, from Mendel's first experiments to the unravelling of DNA and the latest developments in gene cloning and gene therapy. Applications are discussed, not only for humans but also for microorganisms, plants, and animals. Also, focuses on the social and ethical implications of genetic research, including patenting of life, the protection of privacy, and the ethics of screening people of genetic disease. Recommends practices, regulations and policies

  Brock, D.J.H., Molecular Genetics for the Clinician, Cambridge University Press, 1993, 0-521-42325-2

  subject: molecular genetics

  grade(s): secondary, adult

  Broda & Oliver, Human Genetics and Medicine, 3rd edition, Cambridge University Press, 427649

  Brown, Fern G., Hereditary Diseases, Franklin Watts, 1987, 0-531-10386-2

  grade(s): secondary, teacher

  Explains how disease traits are transmitted through the chromosomes of the parents to their offspring. Diseases examined in depth are cystic fibrosis, sickle-cell anemia, Tay-Sachs disease and diabetes

  Brown, Fern G., Heredity Diseases, Watts, 1987

  subject: hereditary conditions

  grade(s): teacher, adult, professional

  Explains what causes babies to be born with cystic fibrosis or sickle cell anemia, Sachs Disease, and diabetes. Explores the ever-widening field of genetics and genetic counseling. Begins with a short but thorough discussion of genetics and heredity that would serve as a good introduction to the topic for anyone

  Brown, Irene B., Before the Lark, Atheneum, 1982

  subject: cleft lip

  grade(s): secondary

  Brown, Marc, Arthur's Eyes, Little, 1979, 0380533898

  subject: visual impairment

  grade(s): elementary

  Mark Brown's animal world cartoonbook explains how 'his friends tease Arthur when he gets glasses, but he soon learns to wear them with pride.' Part of An Arthur Adventure series

  Brown, Tricia, Someone Special, Just Like You, Henry Holt & Co., 1982

  subject: differences

  grade(s): elementary

  Handicapped children experience every day activities. Text and photographs

  BSCS, Biological Science: A Molecular Approach, DC Heath & Co, 1985

  subject: molecular biology

  grade(s): teacher, health care professional reference

  Designed to present a balanced approach to biology and to serve equally well either as a terminal course in general education or as a college preparatory course in biology. Its central theme is molecular biology. Discusses biological issues of the future

  BSCS, BSCS/Biomedical Technology, Kendall/Hunt, 1984

  subject: ethics questions

  grade(s): teacher, adult, professional

  Explores the social consequences of science and technology

  BSCS, BSCS/Biomedical Technology (Teacher's Guide), Kendall/Hunt, 1984

  subject: ethics questions

  grade(s): teacher, health care professional reference

  Legal, ethical, and moral questions. Plurality of values in our society. Incomplete nature of our data. Encourages students to question and think for themselves. Activities

  BSCS, Science for Life and Living, BSCS Innovative Science Education, 1991

  subject: biology

  grade(s): elementary, middle

  Buck, Pearl S., The Child Who Never Grew, Woodbine House, 1992, 0-933149-49-2

  subject: parenting, mental retardation

  grade(s): teacher, adult, professional

  Buckman, Robert, How to Break Bad News: A Guide for Health Care Professionals, Johns Hopkins University Press, 1992, 0-8018-4491-6

  subject: grief

  grade(s): professional

  "An expert in breaking bad news is not someone who gets it right every time - she or he is merely someone who gets it wrong less often, and who is less flustered when things do not go smoothly. This book cannot provide an infallible formula for getting it right (there is no such thing), but it may improve the success rate. In general, the most common problems are caused by relatively simple errors - faults in common courtesy, failures in listening or in acknowledging the patient's need"

  Burchardt, Nellie, Surprise for Carlotta, Franklin Watts, 1971

  grade(s): elementary

  Burke, Chris, J. McDaniel, A Special Kind of Hero, Doubleday, 1991

  subject: Down syndrome

  grade(s): elementary

  Star of the television series 'Life Goes On' tells his own story.

  Burton, Robert & Maurice, The Beginnings of Life, Facts on File, Inc., 1986

  Buscaglia, Leo, The Disabled and Their Parents, Charles B. Slack, Inc., 1975

  subject: disabilities

  grade(s): teacher, health care professionals reference

  Emphasizes need for quality counseling for the disabled and open communication between their parents and counselors to strive to develop the innate potential of each special child

  Butterworth, R. & Flodin, Micky, The Pocket Dictionary of Signing, Putnum Pub. Group, 1987, 0399513477

  subject: signing language

  grade(s): teacher, health care professionals reference

  Illustrated guide to basic sign language

  Butzow, Carol M. & John W., Science Through Children's Literature: An Integrated Approach, Teacher Ideas Press, 1989, 0872876675

  subject: reference, science

  grade(s): teacher, adult, professional

  Buyse, Mary Louise, Editor in Chief, Birth Defects Encyclopedia, Blackwell Scientific Publications, Inc., 1993

  subject: birth defects

  grade(s): professional

  Comprehensive, systematic illustrated reference for diagnosis, delineation, etiology, biodynamics, occurrence, prevention, and treatment of human anomalies of clinical relevance. Peer-reviewed, authoritative reference of over a thousand experts and a Board of more than sixty editors - a virtual international who's who of the disciplines contributing to human genetics, birth defects and clinical medicine

  Byars, Betsy, The Summer of the Swans, Penguin, 1981, 0140314202

  subject: mental retardation

  grade(s): middle, secondary

  Fourteen-year-old Sara learns what it is to care more for her younger brother Charlie than she cares for herself

  Cabisco Teleproductions, Map of Life: Science, Society, and the Human Genome Project, Carolina Biological Supply Company, 1992

  subject: HGP

  grade(s): secondary, adult, professional

  Cairo, Shelley, Our Brother Has Down's Syndrome, Annick Press Ltd., 1985

  subject: Down Syndrome

  grade(s): elementary

  Children's storybook, with pictures, about Tara and Jasmine and their brother, Jai, who has Down syndrome. Jai is a lot like his sisters and he likes doing many things they like to do

  Calabrese, Edward J., Ecogenetics, John Wiley & Sons, Inc., 1984

  subject: environmental agents

  grade(s): teacher, health care professionals reference

  Evaluation of current scientific literature dealing with how genetic factors affect susceptibility to environmental agents

  Campbell-Lashley, Cindy, Visual Aids for Health Care Professionals, 2nd Edition 2001

  subject:  genetic topics

  target audience(s): educators and health care professionals
  Genetic topics: meiosis, mitosis, patterns of inheritance, nondisjunction, monosomy, trisomy, anaphase lag, mosaicism, Lyonization, inversions and duplication/deletion syndromes, mitochondrial and multifactorial inheritance, imprinting and UPD, cancer, balanced / Robertsonian translocations, linkage analysis, metabolic disorders, twinning, Rh sensitization, amniocentesis, CVS, PUBS, confined placental mosaicism, and more.   Available in Spanish. $45.00 +$5.00 shipping / handling ($50.00 total), Slide set available soon, CCL Books

  Canada, Lena, To Elvis, With Love, Everest House, 1978, 0590057790

  subject: wheelchair

  grade(s): middle, secondary

  True story chronicles the life of Karen, a young, crippled and dying woman. Karen's secret dream is to meet superstar Elvis Presley

  Carlson, Elof Axel, Human Genetics, DC Heath, 1988

  subject: human genetics

  grade(s): teacher, health care professional reference

  Advanced introductory text, concentrating on cells and chromosomes, classical developmental, molecular, and population genetics. Discusses genetic counseling and engineering, radiation and cell death, IQ testing, fertility, and cancer. Photographs and line art help students grasp difficult concepts. Instructor's guide, $2.00

  Carlson, Nancy, Arnie and the New Kid, Viking Press, 1990

  subject: disabilities

  grade(s): elementary

  Arnie learns his lesson after teasing Philip, a new kid in a wheelchair

  Carlson, Nancy, I Like Me!, Viking Penguin, 1988

  subject: self-esteem, self-image

  grade(s): elementary

  Picture book for young children. Pig if full of good feelings about herself. She knows how to take care of herself and how to have fun. She is her own best friend

  Carrick, Carol, Stay Away From Simon, Houghton, 1985

  subject: mental retardation

  grade(s): elementary

  Lucy and her younger brother examine their feelings about a mentally handicapped boy they both fear when he follows them home one snowy day. An unusual adventure story set on Martha's vineyard in the 1830's

  Caseley, Judith, Harry and Willy and Carrothead, Greenwillow, 1991

  subject: limb deficiency

  grade(s): elementary

  Harry was born with no left hand and wears a prosthesis. His hand didn't keep him from being a good baseball player - or a good friend

  Cassedy, Sylvia, M.E. & Morton, Thomas Y. Crowell, 1987.

  subject: learning disabilities

  grade(s): middle

  Eleven year old Mary Ella, ashamed that her older bother Morton is a slow learner and longing for a friend of her own, is astonished when the flamboyant new girl on the block picks Morton as a friend. Polly never seems to care what other people think of her, and she does things no one else would ever think of doing. She likes Morton just the way he is

  Caudill, Rebecca, A Certain Small Shephard, Holt Rinehart Winston, 1965, 0030801079

  subject: autism

  grade(s): elementary

  Causley and Firth, 'Quack!' Said the Billy Goat

  subject: differences

  grade(s): elementary

  Cazet, Denys, Great-Uncle Felix, Orchard Books, 1988

  subject: family relationships

  grade(s): elementary

  Sam the rhinoceros learns how to be a special friend to his great-uncle Felix, even though Sam can't do everything right. Picture book for young children

  Center for Biomedical Genetics, An Ethics Casebook for Genetic Counselors, University of Virginia Health Science Center, 1995

  subject: genetic counseling

  grade(s): professional

  Chang, Patricia L., Somatic Gene Therapy, CRC Press, Inc., 1995, 0-8493-2440-8

  subject: gene therapy

  grade(s): secondary, teacher, adult, professional

  Novel and innovative developments in molecular genetics provide opportunities to treat the genetic bases of diseases often untreatable before. Documents historical clinical trials, reviews advances in the field, evaluates the use of the many different cell types and organs amenable to gene transfer, and examines the prospects of various strategies for gene therapy

  Charkins, Hope, Children with Facial Difference: A Parents' Guide, Woodbine House, 1995, 0-933149-61-1

  subject: parenting, facial disfigurement

  grade(s): teacher, adult, professional

  Chevalier, Christa, Spence is Small, Albert Whitman & Co., 1987

  subject: short stature

  grade(s): elementary

  Spence learns he is too short to perform some tasks but just the right size to help his mother do others

  Child's Play, Special People, Child's Play Ltd, 1989, 0859533506

  subject: disabilities

  grade(s): elementary

  Different occupations that make each person special, thereby enhancing the world

  Child's Play, Who Cares About Disabled People?, Child's Play Ltd, 1989, 0859533514

  subject: disabilities

  grade(s): elementary, middle

  Clark, John (Editor), Genetics and Heredity: The Blueprints of Life, Torstar Books, 1987, 0-920269-65-6

  subject: heredity

  grade(s): middle, secondary, teacher, adult, professional

  Text from a series 'The Human Body Series'. Easy to read, color illustrations and information about the human body

  Clark, Maureen, RN, Genetic Counseling '82, Regional Genetics

  grade(s): teacher reference

  Cleary, Beverly, Mitch and Amy, Morrow, 1967, 0440454115

  subject: twins, fraternal

  grade(s): elementary

  Cleaver, Vera and Bill, Me Too, Lippincott, 1973, 0064401618

  subject: mental retardation

  grade(s): middle

  Lydia's twin sister, Lornie, is twelve, but she has the mind of a five-year-old. Lydia is determined to change her sister. Lydia wants a twin just like herself, but what she gets after a long summer is even better -- the sure knowledge that happiness isn't 'normal' and that it isn't 'exceptional.'

  Clifton, L. Digrazia, T., My Friend Jacob, Dutton, 1980

  subject: mental retardation

  grade(s): elementary

  Cohen, Miriam, See You Tomorrow, Charles, Dell Publishing, 1983, 0440401623

  subject: visual impairment

  grade(s): elementary

  Charles is the new boy in the first grade class, and he is blind. His classmates want to be helpful. Should they protect Charles or treat him like everyone else? No one knows for sure. Then one day, the children get into trouble. Charles takes control and helps his friends

  Cohn, Janice, I Had A Friend Named Peter, Children's Press, 1987, 0-688-06686-0

  subject: grief, death of a friend

  grade(s): elementary

  A story about a young girl named Betsy whose best playmate has been killed by a car. A picture book, it portrays in words and illustrations her shifting feelings and thoughts following Peter's sudden death. A useful introduction to parents explains how to help children understand death and grieving

  Cole, Joanna, The Human Body: How We Evolved, William Morrow & Co., 1987

  subject: evolution

  grade(s): elementary, middle

  Shows how our eyes, teeth, hands, feet, brain, bones, and skin have changed over the last five million years. Clear, easy-to-read text. Explores the questions: Are our bodies still evolving, and will humans in the year 3000 be different from the way we are today? Dramatic illustrations

  Coleman, Howard and Eric Swensen, DNA in the Courtroom: A Trial Watcher's Guide, GeneLex Corporation, 1994, 0-9644507-0-4

  subject: forensics

  grade(s): middle, secondary, teacher, adult, professional

  Forensic DNA testing, use in the courtroom, legal implications of DNA technology, commercial development of forensic DNA testing, legal applications, evolution of standards. Basic genetics and parentage testing, glossary of genetic terminology. Chapters on DNA use in legal context focus on the nature of scientific evidence and the admissibility of testing in court proceedings. OJ Simpson case used to highlight various aspects of DNA as evidence in the courtroom. Background on the case, possible strategies prosecutors and defense attorneys use. Affirms that society benefits from DNA testing and DNA's use as evidence should be encouraged for the sake of justice

  Congress of the United States, Office of Technology Projects--How Big, How Fast?, Mapping Our Genes: Genome Assessment, Johns Hopkins University Press, 1993

  subject: HGP

  grade(s): secondary, adult, professional

  Connelly, John, You're Too Sweet: A Guide for the Young Diabetic, Astor Honor, 1968

  subject: diabetes

  grade(s): elementary

  Connor, J.M., and Fergauson-Smith, M.A., Essential Medical Genetics, Blackwell Scientific Publications, Inc., 1991, 0-632-02872-0

  subject: medical genetics

  grade(s): secondary, adult, professional

  Conway, Lorraine, Superific Science Series: Heredity and Embryology, Good Apple Inc., 1980, 0916456900

  subject: laboratory techniques

  grade(s): teacher, health care professional reference

  Low cost, imaginative laboratory exercises, individual and group activities, projects, stations and packets with a minimum amount of equipment and teacher preparation time. Material may be used as a supplement to other materials or by itself

  Cooper, Kay, Where Did You Get Those Eyes?, Walker and Company, 1988

  subject: family history

  grade(s): elementary, middle

  Invitation to venture into your own personal history, complete with a directory of genealogical sources, student projects, and examples of useful charts and notebooks

  Corcoran, Barbara, A Dance To Still Music, Atheneum, 1974

  subject: hearing impairment

  grade(s): secondary

  Corn, Anne L., Monocular Mac, Natl. Ass. 4 vis. hand, 1977

  subject: visual impairment

  grade(s): elementary

  Nine year old Billy tells of all the advantages to a monocular

  Covelli, Pat, Borrowing Time: Growing up with Juvenile Diabetes, Crowell

  subject: diabetes

  grade(s): secondary

  Cragg, Sheila, Run Patty, Run, Harper & Row, 1980

  subject: epilepsy

  grade(s): secondary

  Crawford, Alvin, Neurofibromatosis in Children, Acta/Sweden, 1986

  subject: neurofibromatosis

  grade(s): adult, professional

  Crichton, Michael, Jurassic Park, Ballantine Books A Division of Random House, 1990

  subject: DNA

  grade(s): middle, secondary, adult, professional

  Cunningham, C., Down Syndrome: An Introduction for Parents, Exceptional Parent, 1988

  grade(s): teacher, health care professionals reference

  Cunningham, Cliff, Downs Syndrome: An Introduction, Brookline Books, Inc., 1989, 0914797522

  subject: Down Syndrome

  grade(s): adult, professional

  Using positive and readable language, helps parents understand Down Syndrome. Medical details are explained in lay terms; and advice is given on working with professionals, obtaining services, and treatment techniques that help the child

  Cunningham, Cliff A., Down Syndrome: An Introduction for Parents, Brookline Books, Inc., 1987, 0-914797-52-2

  subject: Down Syndrome

  grade(s): secondary, adult, professional, teacher

  Positive and practical book for parents of Down Syndrome children, enabling them to face the shock and anxiety of learning that their baby is handicapped. Gives information and guidance to help them make the right decisions for the child's future and their own. Includes modern experience that Down Syndrome children can now grow up to play a full role in their communities, attending mainstream schools and finding employment

  Cunningham, Julia, Burnish Me Bright

  subject: hearing impairment, speech

  grade(s): elementary

  Dacquino, V.T., Kiss The Candy Days Good-bye, Delacorte, 1982

  subject: Diabetes

  grade(s): elementary

  Daly, Glenda L., All About Me, What About You?, Glanda Daly, 1988

  subject: Hunter Syndrome

  grade(s): teacher, health care professionals reference

  Personal story of woman with son who has severe Hunter Syndrome. Explanation of Mucopolysaccadidoses Disorders

  Dantzer Rosenthal, Marya, Some Things are Different, Some Things are the Same, Albert Whitman & Co., 1986

  subject: Differences

  grade(s): EX

  When Josh visits stephen, some things are different than they are at home

  Davies, The Fragile X Syndrome, Oxford University Press, 26-18369

  Davies, Kay, Editor, The Fragile X Syndrome, Oxford University Press, 1989, 0192618369

  subject: Fragile X

  grade(s): teacher, health care professionals reference

  Review of clinical, epidemiological, and cytogenetic aspects of Fragile X Syndrome, the most common genetic cause of mental retardation after Down Syndrome

  Davis, Bernard, The Genetic Revolution: Scientific Prospects and Public Perceptions, Johns Hopkins University Press, 1991, 0-8018-4239-5

  subject: technology

  grade(s): adult, professional

  Discussion of social issues evoked by technology of genetic engineering. For scientists and lay persons with concern for the health care or the environment and those who carry responsibility for policy making" -Pharos

  Davis, Joel, Mapping the Code: The Human Genome Project and the Choices of Modern Science, John Wiley & Sons, Inc., 1990, 0-471-50383-5

  subject: HGP

  grade(s): adult, professional

  Science, politics, business, and controversy behind today's most important scientific undertaking

  Davis, K.E., Genome Analysis, Vol. 1, Cold Spring Harbor Laboratory Press Co., 1990

  Davis, K.E., Genome Analysis, Vol. II, Cold Spring Harbor Laboratory Press Co., 1990

  Dawkins, Richard, The Selfish Gene, 2nd edition, Oxford University Press, 1990, 286092-5

  subject: ethics

  grade(s): secondary, adult, professional

  Biologist gently and expertly debunks some of the favorite illusions of social biology about the evolution of altruism.

  De Angeli, Marquerite, The Door in the Wall, Doubleday, 1981, 0590409689

  subject: visual impairment

  grade(s): middle, secondary

  Set during a plague in 16th century London, tells the war-time story of Robin, a young girl who is abandoned by the servants while her parents are away

  De Bruin, Jerry, Creative, Hands-On Science Experiences, Good Apple, Inc., 1986

  subject: laboratory techniques

  grade(s): teacher, health care professional reference

  Focuses on the use of common, everyday materials. Major emphasis on starter activities to prompt children to ask 'why' or 'what happened.'

  De Grouchy, Turleau, Clinical Atlas of Human Chromosomes, Wiley-Liss & Sons, Inc., A Division of John Wiley, 1984

  grade(s): physician, health care professional reference

  De Rosnay, Joel, Biokit: A Journey to Life, Adama Books, 1984

  subject: DNA

  grade(s): teacher, health care professional reference

  A tour, guided by Protix (a simple protein molecule), of the structures of life. Simple explanation of DNA and coding and the synthesis of proteins: a Biokit and Biodisc allows students to put together cardboard pieces and then 'read' different codons, bases, and whole amino acids by turning the disc

  Denhardt, David T., Replication of DNA, Carolina Biology Rdrs

  subject: DNA replication

  grade(s): elementary

  Devord, Frank, Alex, the Life of a Child, New American Library, 1983, 0-670-11195-3

  subject: Cystic Fibrosis

  grade(s): secondary

  Written by a professional sports writer, the father of a child with cystic fibrosis. Movie was based on book

  Donovan, Pete, Carol Johnston The One-armed Gymnast, Children's Press, 1982, 0516443232

  subject: disabilities, overcoming

  grade(s): elementary

  A biography of the Canadian gymnast who won All-American honors in 1978 despite her physical handicap

  Donovan, Pete, Sports Stars: Carol Johnston, The One-Armed Gymnast, Childrens Press, 1982, 0516443232

  subject: limb deficiency

  grade(s): elementary

  Dougan, Isbell & Vyas, We Have Been There, Abingdon Press Nash., 1983

  subject: Mental Retardation

  grade(s): secondary

  A guidebook for families of people with mental retardation. It is a book of opinions and notes from the heart, not a set of rules or a policy

  Dragonwagon, Crescent, Diana, Maybe, MacMillan Publishing, 1987

  subject: Half-Sister

  grade(s): EX

  Rosie speculates about what her life would be like if she ever met her half sister, Diana

  Drlica, K., Understanding DNA and Gene Cloning, Wiley-Liss, A Division of John Wiley & Sons, Inc., 1992, 0-47-1622-57

  subject: DNA

  grade(s): adult, professional

  Intended for the non-scientist who is interested in gaining a background sufficient to understand often complex articles, serves as a supplement for general biology or introductory genetics courses

  Dronamraju, K.R., The History and Development of Human Genetics: Progress in Different Countries, Genetics Center, Houston, 1992, 981-02-0900-2

  subject: genetics, international

  grade(s): adult, professional

  International speakers trace progress of human genetics from beginning to the present day, in various communities in different countries. Advances and national developments  reviewed by scientists and historian from the USA, UK, France, Hungary, Japan, India, USSR, etc. Discussion of the development of research, teaching human genetics, technologies for screening, diagnosis, prediction, prevention and treatment of hereditary diseases, distribution of diseases in different communities and countries, pioneers and prominent figures in field and achievements, other topics

  Duster, Troy, Backdoor to Eugenics, Routledge, 1990

  Dwyer, Kathleen M., What Do You Mean I Have a Learning Disability?, Walker and Company, 1991

  subject: learning disabilities

  grade(s): elementary

  Describes learning disabilities and what can be done to overcome them

  Dynski-Klein, Martha, A Color Atlas of Pediatrics, Mosby, 1986

  subject: genetic disorders

  grade(s): professional

  Edelwich & Brodsky, Diabetes: Caring for Your Emotions as Well as Your Health, Addison-Wesley, 1986, 0201106086

  grade(s): teacher, health care professional reference

  Edlin, G., Genetic Principles: Human and Social Consequences, Jones & Bartlett, 1984

  Basics of genetics with emphasis on DNA technology

  Edrington, Moss, Young, Friends, Instructional Development, 1978

  subject: disabilities

  grade(s): middle

  Simulation activities for children to help them better understand the daily life of their friends who have disabilities and to recognize their problems and accomplishments

  Educational Impressions, Create A Center About...Heredity & Genetics, Educational Impressions, 1984

  subject: heredity and genes

  grade(s): teacher, adult, professional

  Many activities for teacher to use to help students study the world of heredity and genetics

  Educational Impressions, Create A Center About...The Human Body, Educational Impressions, 1984

  subject: human body

  grade(s): teacher, health care professional reference, students

  Many activities for teacher to use in helping students discover the fascinating world of the human body

  Elais, Sherman, Reproductive Genetics and the Law, Mosley Year Books, 1987

  Emery, A., Psychological Aspects of Genetic Counseling, Academic Press, Inc., 1985

  subject: genetic counseling

  grade(s): teacher, adult, professional

  A comprehensive presentation of various components of genetic counseling which emphasizes the psychological impact of genetic disease upon the family

  Emery, Alan E., Muscular Dystrophy: The Facts, Oxford University Press, 1994, 262449-0

  subject: muscular dystrophy

  grade(s): professional

  Examines living with muscular dystrophy and coping with its physical and psychological effects. For people with muscular dystrophy and their families, answers questions about how and why it occurs, and how it will affect the life of recently diagnosed child. Different types of muscular dystrophy are described with the minimum of technical jargon. Questions relating to exercise, physiotherapy, surgery, and the emotional effects of the disease are answered, and advice is given on the problems of schooling and choice of career. Useful list of international muscular dystrophy groups and associations

  Emery, Alan E.H., Duchenne Muscular Dystrophy, 2nd Ed., Oxford University Press, 1993, 262370-2

  subject: Duchenne muscular dystrophy

  grade(s): professional

  Duchenne Muscular Dystrophy and evaluation of published literature. Describes clinical features, emphasizing involvement of tissues other than skeletal muscle. Biochemistry, genetics and molecular pathology discussed, role of dystrophin in the pathogenesis of the diseases. Prevention through neonatal screening, carrier detection, genetic counseling, and prenatal diagnosis is fully covered, stressing the importance of DNA markers and gene probes. Discusses management of patients with the disease and the possibilities for treatment, which include surgical correction of deformities, drug treatments, the prospects for myoblast transfer, and the possibilities for gene therapy

  Emery, Alan E.H., M.D., Ph.D., An Introduction to Recombinant DNA, John Wiley & Sons, Inc., 1984, 0-471-90363-9

  subject: DNA

  grade(s): secondary, adult, professional

  Introduction to subject of recombinant DNA technology for people in the medical profession. General overview

  Emery, Alan E.H., Mueller, Robert F., Elements of Medical Genetics (student notes), Churchill Livingstone

  Emmert, Michelle, I'm the Big Sister Now, Albert Whitman & Co., 1989

  subject: Cerebral Palsy

  grade(s): elementary

  Nine-year-old Michelle describes the joys, loving times, difficulties, and other special situations involved in living with her older sister Amy Emmert, who was born severely disabled with cerebral palsy

  Emory University School of Law, Emory Law Journal: The Randolph W. Thrower Symposium: Genetics and the Law, Emory University School of Law, 1990, 0094-4076

  subject: HGP / ELSI

  grade(s): secondary, adult, professional

  Engel, Leonard, The New Genetics, Avon Books, 1967

  subject: general survey

  grade(s): teacher, health care professionals reference

  Engel attempt to explain human genetics to a lay readship, 1967 copyright will not reflect update methods of teaching basic genetics, but provides a historical perspective on development of basic genetic theories

  Eskeland NL and NC Bailey. My Name Is Gene, 2nd Ed., September 2002. ISBN: 0-9673811-5-0

  subject: genetics

  grade(s): late elementary / middle (classroom or home-schooling)

  Science book from religous perspective, emphasing God's handiwork. We are unique and special because of our genetic code. Information on genetics and the scientific advances in biotechnology. Includes illustrations, exercises. Genetics and biotechnology.

  Evans, Mark I., Ed., Reproductive Genetic Testing: Impact Upon Women, S. Karger Publishers, Inc., 1993, 3-8055-5715-9

  subject: genetic testing

  grade(s): adult, professional

  Reproductive genetic testing technologies have expanded rapidly over the last two decades, with impact on women. Discussion of sometimes controversial psychosocial, ethnocultural, legal, ethical and public policy issues involved in this area of genetic research. International perspective on methods and important issues regarding education and training

  Evenndon, Margery, The Kite Song, Lothrop, Lee, Shephd

  Facklam, Howard & Margery, From Cell to Clone: The Story of Genetic Engineering, Harcourt, 1979

  subject: cloning history

  grade(s): secondary

  Story of 'genetic engineering-clones that will provide forests and food, will re-establish endangered species, will allow us to reproduce microbes and mice'.

  Fassler, Joan, Howie Helps Himself, Albert Whitman & Co., 1978, 0807534226

  subject: physical disabilities

  grade(s): elementary

  Though he enjoys life with his family and attends school, Howie, a child with cerebral palsy, wants more than anything else to be able to move his wheelchair by himself

  Faulkner, Keith, The Elephant and the Rainbow, Longmeadow Press, 1991, 0-394-75887-0

  subject: differences, Nager syndrome / Miller syndrome

  grade(s): elementary

  Children's book from the Foundation for Nager and Millers Syndrome, its message is "it's not the way you look, but how you feel inside"

  Featherstone, Helen, A Difference in the Family, Basic Books, 1980

  subject: Disabilities, Child

  grade(s): teacher, health care professionals reference

  When a family must adjust to a child's disability it is hard. Featherstone tries to make some sense of the painful issues involved

  Fedoroff, Nina and David Botstein, The Dynamic Genome: Barbara McClintock's Ideas in the Century of Genetics, Cold Spring Harbor Laboratory Press Co., 1992, 0-87969-396-7

  subject: history of genetics

  grade(s): secondary, adult, teacher, professional

  Feste, Catherine, The Physician Within: Taking Charge of Your Well-being, Diabetes Centers, 1987, 0937721190

  subject: diabetes

  grade(s): teacher, health care professional reference

  Fireside, Bryna J., A Crow for Courage, Human Policy Press, 1979

  subject: disabilities

  grade(s): elementary

  A young boy learns to 'overlook': his handicap in his fairy tale

  Fisher, Gary and Cummings, Rhoda, The Survival Guide for Kids With LD, Free Spirit Publications, 1990, 0-91-57931-80

  subject: Learning Differences

  grade(s): elementary

  Handbook for kids with learning disabilities. Discusses different types of disorders, programs at school, coping with negative feelings, and making friends. Includes a section for parents and teachers

  Fleischman, Paul, The Half-A-Moon Inn, Harper Trophy, 1980, 0064403645

  subject: hearing impairment, speech

  grade(s): elementary

  Fletcher, J., Coping with Genetic Disorders: A Guide for Clergy and Parent, Harper & Row, 1982

  subject: genetics, clergy

  grade(s): teacher, adult, professional

  Religious aspects of counseling in genetic disease

  Fort, Patrick, Redbird, Orchard, 1988, 0531057461

  subject: visual impairment

  grade(s): elementary

  Redbird, a small airplane, encounters numerous hazards as it attempts to land at the airport. Text is in Braille and in clear black type and raised pictures can be both felt and seen

  Fradin, Dennis, A New True Book On: Heredity, Children's Press, 1987

  subject: Heredity

  grade(s): elementary

  Series by Childrens Press. Basic information on heredity, discussing such topics as chromosomes, genes, and multiple births. Photography, graphic art and large print

  Frank, Hugh, Will to Live, Routledge & Kegan, 1979

  subject: Muscular Dystrophy

  grade(s): secondary

  Frank, Julia, Alzheimer's Disease: The Silent Epidemic, Minneap. Lerner, 1987

  subject: Alzheimer's Disease

  grade(s): secondary

  'Progress of a typical Alzheimer's patient ('Sarah')..  Clear, technical descriptions of the biochemistry of the brain and the progress of the disease.' Photographs and diagrams explain diagnostic procedures and difficult concepts

  Frebert, Patricia, It's Okay to Look at Jamie, Creative Education, 1983

  subject: Spina Bifida

  grade(s): elementary

  Friedbert & Mullins, Accept Me As I Am: Books of Juvenile Nonfiction On Disability, R.R. Bowker Co., 1985

  subject: Disabilities

  grade(s): teacher, health care professionals reference

  Annotated list of resource guides meeting the needs of the of special groups ranging from the disabled and elderly to the gifted. For librarians, teachers, and parents

  Friedman, J. M. and Janine Polifka, Teratogenic Effects of Drugs: A Resource for Clinicians (TERIS), Johns Hopkins University Press, 1994, 0-8018-4800-8

  subject: teratogen

  grade(s): professional

  Teratogen Information System (TERIS) is a computerized database in clinical teratology, a peer-reviewed, authoritative resource for clinicians on the effects of drugs and other environmental agents on the developing human embryo and fetus. Previously available in only electronic formats. TERIS serves as a catalog for reference use by clinical and research geneticists, teratologists, obstetricians, and pediatricians. TERIS contains more than 900 agent summaries and an index of some 34,000 synonyms. Each entry contains information on the agent's teratogenic effects, assessments of the magnitude of the risk and of the quality and quantity of the data, as well as a list of key references.

  Friedmann, Theodore, Gene Therapy: Facts and Fiction in Biology's New Approaches to Disease, Cold Spring Harbor Laboratory Press Co., 1994, 0-87969-449-7

  subject: gene therapy

  grade(s): secondary, adult, teacher, professional

  In 1982, a meeting of unusual influence was held at the Banbury Conference Center of Cold Spring Harbor Laboratory. After an early attempt at treating clinical disease with transferred genes had ignited public attention and scientific controversy, a group of distinguished biologists and physicians came together to assess practical progress towards gene therapy and what its future might be. Geneticist Ted Friedmann wrote a narrative account of the participants' contributions to the meeting, ending with a personal discussion of ethical issues raised by genetic technologies

  Friedmann, Theodore, Molecular Genetic Medicine, Academic Press, Inc., 1993, 0-12-462003-5

  subject: molecular genetics

  grade(s): teacher, adult, professional

  Friedmann, Theodore, Molecular Genetic Medicine, Volume 1, Academic Press, Inc., 1991, 0-12-462001-9

  subject: molecular genetics

  grade(s): adult, professional

  Friedmann, Theodore, Molecular Genetic Medicine, Volume 2, Academic Press, Inc., 1992, 0-12-462002-7

  subject: molecular genetics

  grade(s): adult, professional

  Friedmann, Theodore, Molecular Genetic Medicine, Volume 3, Academic Press, Inc., 1993, 0-12-462003-5

  subject: molecular genetics

  grade(s): adult, professional

  Froman, Katherine, The Chance to Grow, Everest House NY, 1983

  grade(s): secondary

  Fuhrmann & Vogel, Genetic Counseling, Springer-Verlag New York, Inc., 1983, 0387907157

  subject: clinical genetics

  grade(s): teacher, health care professionals reference

  Outlines the fundamentals of clinical genetics and explains practical methods for physicians to help patients circumvent, prepare for, and cope with genetic disorders

  Gaitskill, Susan and Laffrance, L., A Story of Jean, Oxford University Press, 1989

  subject: visual impairment

  grade(s): elementary

  A wonderful storyteller is also semi-blind. Through her stories she earns the gradual acceptance of her peers

  Garcia Edward, Pellegrini, Homer, The Homely Hound Dog, Inst. Rational Livin, 1974

  subject: Feelings

  grade(s): elementary

  Homer, a homely hound dog, learns to accept himself in the canine community. Cartoon illustrations and large print are good for young children. Story line is developed for children of all ages

  Gardner, R.J.M, and G.R. Sutherland, Chromosome Abnormalities and Genetic Counseling, Oxford University Press, 1989, 504932-2

  subject: Medical Genetics

  grade(s): professional

  Oxford Monographs on Medical Genetics 17. 272 pages. 62 illustrations

  Garrique, Sheila, Between Friends, Bradbury Press, 1978, 0590407732

  grade(s): elementary

  Gaver, Jessica Russell, Birth Defects and Your Baby, Magnum Books, 1972

  subject: birth defects

  grade(s): teacher, health care professionals reference

  Gelegrter, Thomas D., and Collins, Francis S., Principles of Medical Genetics, Williams & Wilkins, 1990, 0-683-03447-2

  subject: medical genetics

  grade(s): adult, professional

  Gerber, Merrill Joan, Sadzia! The Belly Dancer!, Harper and Row

  grade(s): elementary

  Gerbi, Susan A., From Genes to Proteins, Carolina Biology Rdrs

  subject: basic genetics

  grade(s): elementary

  Gibson, Greg and Spencer Muse, A Primer of Genome Science

  , Sinauer Associates, Inc., 2001, ISBN: 0-87893-234-8

  subject: Human Genome

  grade(s): high, adult

  Giff, Patricia Reilly, Rat Teeth, Delacorte Press, 1984

  subject: Self-Esteem

  grade(s): elementary, middle

  Cliffie's nickname is 'Rat Teeth' because his two front teeth stick out. But he is tough, and acting tough keeps him from crying. He also hides the fact that his parents are divorced, and he has to divide his time between them. Happy ending

  Gillespie, Clark, Primelife Pregnancy, Harper & Row, 1987

  grade(s): teacher, health care professionals reference

  Gilson, Jamie, Do Bananas Chew Gum?, Archway Paperback, 1980, 0671600389

  subject: Learning Disabilities

  grade(s): elementary, middle

  Centers around a young boy who has a learning disability. Deals with his self-image and how he is treated by others. Told realistically with good humor

  Girard, Linda Walvoord, Alex, the Kid with AIDS, Albert Whitman & Co., 1991

  subject: AIDS

  grade(s): elementary

  Alex, a fourth grader with AIDS, makes a new friend and learns that although he is sick, he can't misbehave in school

  Girion, B., A Handful of Stars, Charles Scribner's, 1981

  subject: Epilepsy

  grade(s): middle

  Information about epilepsy, diagnosis, prognosis, and treatment. Story of a young high school girl. A realistic presentation is made of an adolescent coming to grips with her own worries and the ignorance and bias she encounters

  Glazzard, M., Meet Camille and Danielle, They're Special Persons, H & H Enterprises, 1978

  subject: hearing impairment

  grade(s): elementary

  Camille and Danielle are twins, both with a hearing impairment. They attend class with hearing children. Story and photographs explain speech training, lipreading, and hearing aids

  Gold, Phyllis-Terri, Please Don't Say Hello, Human Societies Pres, 1986, 0898851998

  subject: autism

  grade(s): elementary

  With the support and love of his family and through them the neighborhood children, a nine year old autistic boy is able to emerge from his shell

  Goldschmidt, Elisabeth, The Genetics of Migrant and Isolate Populations, Williams & Wilkins, 1963

  subject: Population Gene

  grade(s): teacher, health care professional reference

  Documents the proceeding of a conference on Human Population Genetics, whose focus was the study of isolated and migrant populations. Groups used were primarily native urban and rural Israel Hebrews. Topics are supported with somewhat dated statistics (1963 copyright)

  Goldsmith, Ilse, Human Anatomy for Children, Dover Publications, 1964, 0486223558

  subject: anatomy for children

  grade(s): elementary

  Goldstein, Philip, Genetics is Easy, Lantern Press, 1967

  subject: general genetic

  grade(s): teacher, health care professionals reference

  Combining a historical perspective of the study of genetics and 'modern genetics' genetics presents in a way that it is easily understood

  Gonick, Larry, and Wheelis, Mark, Cartoon Guide to Genetics, Harperperenial, 1991, 0-06-273099-1

  subject: basic genetics

  grade(s): elementary, middle, secondary

  Cartoon introduction to the important concepts of classical and modern genetics. Excellent for the non-advanced student

  Goodman physician, health care professional reference, Richard M., Planning for a Healthy Baby: A Guide to Genetic and Environmental Risks, Oxford University Press, 1986, 0-190505065-7

  subject: birth defects

  grade(s): teacher, health care professionals reference

  General reference in question and answer format on all areas of birth defects; environmental, chromosomal, single gene conditions, maternal factors

  Goodwin, Donald W., Is Alcoholism Hereditary?, Ballantine Books, A Division of Random House, 1988

  subject: alcoholism

  grade(s): secondary

  Gorlin, Robert J., Helga V. Toriello and M. Michael Cohen, Jr., Hereditary Hearing Loss and Its Syndromes, Oxford University Press, 1994, 0-19-506552-2

  grade(s): professional

  Introductory chapters cover the history of genetic hearing loss, the delineation of syndromes, genetic pattens and epidemiology, and the embryology of the ear. Disorders are then logically grouped, moving from those with no associated abnormalities to hearing loss involving other organs and systems

  Gorlin, Robert J., M. Michael Cohen Jr., and S. Stefan Levin, Syndromes of the Head and Neck, Oxford University Press, 1990, 504518-1

  subject: medical genetics

  grade(s): professional

  Gorlin, Robert, Helga Toriello & Michael Cohen, Jr., Hereditary Hearing Loss and Its Syndromes, Oxford University Press, 1995, 0-15-506552-2

  subject: deafness

  grade(s): secondary, adult, professional

  Gorman, Carol, Chelsey & the Green-Haired Kid, Houghton, Mifflin

  grade(s): elementary

  Gormley, Myra Vanderpool, Families Diseases are you at Risk?, Genealogical Publish, 1989

  subject: genetics discovery

  grade(s): secondary

  Summarizes findings in medical genetics, explains standard genealogical practices used in compiling a family health history; However, it is not intended to replace the services of a family physician. Author and publisher urge consultation with a physician before drawing conclusions about family health history

  Gosden, Christine, Kypros, Nicolaides and Vanessa Whitting, Is My Baby All Right? A Guide for Expectant Parents, Oxford University Press, 1994, 262482-2

  grade(s): professional

  Gould, Marilyn, Golden Daffodils, Addison, 1982

  subject: Epilepsy

  grade(s): secondary

  Graham, Amanda, Who Wants Arthur?, Gareth Stevens, Inc., 1987

  subject: differences, adolescence

  grade(s): elementary

  Arthur, a dog in a pet store, waiting to be adopted, takes on the identities of other animals he thinks might be more appealing, until discovering that he can be a success as himself

  Graham, John M., Smith's Recognizable Patterns of Human Deformation, W.B. Saunders Company, 1988

  grade(s): physician, health care professional reference

  Grealish, Mary Jane & Charles, Amy Maura, Human Policy Press, 1975

  subject: disabilities

  grade(s): elementary

  Amy Maura is a young girl cast in an heroic role when her family's home catches on fire. The real drama is about Amy Maura and her self-concept. She can hear other kids laughing at her- is it because of her name? Or is her real fear the other kids won't accept her disability?

  Green, Mary M., Is It Hard? Is It Easy?, Addison Wesley Mass., 1960

  grade(s): secondary

  Greene, Laura, I Am Somebody, Children's Press, 1980

  subject: Self-Esteem

  grade(s): elementary

  'Two friends who feel 'like nobody' on their baseball teams discuss what makes them feel important and decide that being themselves is what really matters.' Color photographs and large print for easy reading

  Greenwood Genetic Center, Counseling Aids For Geneticists, Greenwood Genetic Center, 1988

  subject: genetic counseling

  grade(s): teacher, health care professionals reference

  Collection of illustrations of modes of inheritance, chromosomes, genes, environmental influences, amniocentesis and other subjects for use in genetic counseling. Graphics will assist in explaining testing procedures and findings to families having genetic evaluation

  Gregg, Robin, Pregnancy in a High-Tech Age: Paradoxes of Choice, New York University Press, 1994, 0-8147-3075-2

  subject: pregnancy, public policy, technology and women

  grade(s): secondary, teacher, adult, professional

  Debate over reproductive rights and technologies, fundamental emotional and psychological issues that define the experience pregnancy. Words and stories of over thirty women to provide a first-hand perspective on pregnancy in the modern age, women's procreative choices simultaneously real and illusory

  Gribbin, John, In Search of the Double Helix: Quantum Physics & Life, McGraw-Hill Book Co., 1985, 0-07-024740-4

  subject: evolution grade(s): secondary, adult, teacher

  A discussion of evolution beginning with Darwin's theory and ending with DNA. Includes recent developments such as McClintock's 'jumping genes' as well as earlier developments by Mendel and other great scientists

  Groce, Nora Ellen, Everyone Here Spoke Sign Language, Harvard University Press, 1985, 0-674-27041-x

  subject: hearing impairment

  grade(s): middle, secondary, adult, professional

  Study of Martha's Vineyard Island which for over two hundred years had a high incidence of hereditary deafness

  Grollman, Sharon, Shira, A Legacy of Courage, Doubleday & Co, 1988

  subject: Diabetes

  grade(s): middle

  Young Shira Putter's battle with a rare and deadly form of diabetes. Using personal accounts from Shira's family, friends, and the child's own writing for a diary based on Shira's true story. Encourages honest and realistic communication with children

  Gros, Francois, The Gene Civilization, McGraw-Hill Book Co., 1992

  Gutnik, Martin J, Genetics: Projects for Young Scientists, Franklin Watts, 1985

  subject: science fair

  grade(s): teacher, health care professional reference

  Written by an elementary science curriculum specialist, teacher, and author. Reviews the basic concepts of genetics, tells how to identify and organize a science project, and offers guidelines for displaying the results

  Haerle, Tracy, Children with Tourette Syndrome: A Parents' Guide, Woodbine House, 1992, 0-933149-44-1

  subject: parenting, tourette syndrome

  grade(s): teacher, adult, professional

  Hagerman M.D., Randi Jenssen, and Cronister M.S., Amy, Fragile X Syndrome Diagnosis Treatment and Research, Second edition, Johns Hopkins University Press, 1996, 0-8018-5347-8

  subject: Fragile X Syndrome grade(s): adult, professional

  Updated information on the latest research -- especially in molecular biology, 37 drawings, 39 b&w photos highlighting clinical features, thorough coverage of treatment and intervention as well as diagnosis and research

  Halcomb, Ruth, You Can Challenge Heredity, Major Books, 1975

  grade(s): teacher, health care professionals reference

  Hall, Judith, Ursula G. Frosteriskenius, and Judith E. Allanson, Handbook of Normal Physical Measurements, Oxford University Press, 1990, 261696-X

  subject: medical genetics

  grade(s): professional

  Comprehensive reference for health professionals involved in evaluating people with abnormal features or syndromes. Includes graphs, tables, and charts needed by clinicians to define normal patterns of growth and provides standards of comparison for possible congenital abnormalities. Designed for ease of use, pocket-sized, durable plastic cover

  Hall, Leonard W., Developmental Handicaps: Prevention and Treatment II, AAUAP, 1984

  subject: handicaps, Service to

  grade(s): teacher, health care professionals reference

  Prepared by American Association of University Affiliated Programs for Persons with Developmental Disabilities

  Hall, Stephen, Invisible Frontiers: The Race to Synthesize a Human Gene, Atlantic Monthly, 1987

  subject: genetic history

  grade(s): teacher, health care professionals reference

  Hall, W., Science and Decision-Making, Longmans and Penguin, 1973

  subject: decision-making

  grade(s): teacher, health care professional reference

  Hanlon, Emily, It's Too Late for Sorry, Bradbury Press, 1978, 0440939054

  grade(s): elementary

  Hanlon, Emily, The Swing, Bradbury Press, 1979

  subject: Deafness

  grade(s): elementary

  Hanna, Kathi E., Biomedical Politics, National Academy Press, 1991

  Hanson, Marci, Teaching the Infant with Down Syndrome, Exceptional Parent, 1988

  subject: Down syndrome

  grade(s): adult, professional, teacher

  Hanson, Marci J., Teaching Your Down's Syndrome Infant: A Guide for Parents, University Park Press, 1977

  subject: Down syndrome

  grade(s): professional, teacher

  Harlen, Wynne, Primary Science: Taking the Plunge, Heinemann Educational, 1985

  subject: Teaching Primary Science

  grade(s): teacher, health care professional reference

  For science instructors.  How to encourage children to make a start in science. What to do if they ask questions you can not answer. How to get children to write things down. How to help them observe.  What difference should children's science make in teaching.  Manual addresses these

  Harper, Peter, Practical Genetic Counseling, Butterworth-Heinemann, 1993, 7506-0928-1

  subject: genetic counseling

  grade(s): professional

  Handbook on genetic counseling and an essential companion for all those working in the field. Updated and revised to keep up with rapid advances. New sections include discussion of genetic screening programs, the human gene map, social and ethical aspects of medical genetics and a glossary

  Harper, Peter S., Practical Genetic Counseling, Wright, 1984

  subject: genetic counseling

  grade(s): professional

  Harris, Ann and Super, Maurice, Cystic Fibrosis: The Facts, 2nd edition, Oxford University Press, 1993, 262037-1

  subject: cystic fibrosis

  grade(s): adult, professional

  Cystic Fibrosis is one of the most common genetic diseases and it starts in early childhood. Discovery of responsible defective gene offers hope that treatment aimed at controlling chest infections and providing the increased dietary requirements will resulted in greatly improved health, although treatment is lifelong and hard work. Genetics chapters,  chapters about psychological aspects and heart-lung transplant. Genetic counseling chapter highlights some of the ethical dilemmas of prenatal diagnosis. For parents and relatives, those with cystic fibrosis, and usful introduction for  students and medical researchers

  Harris, Henry, The Cells of the Body: A History of Somatic Cell Genetics, Cold Spring Harbor Laboratory Press Co., 1994, 0-87969-460-2

  subject: cells

  grade(s): secondary, adult, teacher, professional

  Scholarly history of research into the genetics of body cells, from its origins in the 19th century to the present day. Reader will derive a richer understanding of how and why the cells of the body are studied in the way that they are today

  Harsanyi & Hutton, Genetic Prophecy, Beyond the Double Helix, Rawson Wade, 1981

  subject: prenatal screen

  grade(s): teacher, adult, professional

  Covers the controversy surrounding human genetics, particularly screening, gene markers, and genes and behavior. One section specifically covers 'the perils of prophecy

  Hatfield, Agnes, Coping with Mental Illness in the Family: A Family Guide

  From AMI Library, 6724 Troost, #600, Kansas City, MO 64131

  Hathaway, Joe & Nancy, How John Was Unique, Natl. Marfan Foundation, 1984

  subject: Marfan syndrome

  grade(s): elementary

  For children ages 5 to 11. Picture book (can be used as a coloring book). Provides an opportunity for parents and child to discuss the condition in a non-threatening way. 12 pages

  Hayden, Michael, Huntington Clorea, Springer-Verlag New York, Inc., 1981

  subject: Huntington disease

  grade(s): teacher, health care professionals reference

  Hazen, Robert M., Science Matters: Achieving Scientific Literacy, Doubleday, 1991

  Hearn, Emily, Good Morning Franny, Women's Press

  subject: Disabilities, Kids

  grade(s): elementary

  Hearn, Emily, Good Night Franny, Women's Press

  subject: Disabilities, Kids

  grade(s): elementary

  Hearn, Emily, Race You Franny, Women's Press

  subject: Disabilities, Kids

  grade(s): elementary

  Heide, Florence, Sound of Sunshine, Sound of Rain, Parents' Magazine, 1970

  subject: visual impairment

  grade(s): elementary

  Illustrates how hearing and touch become very important when they are a child's best tools for discovering the world. A blind child's view of life is presented with sensitivity

  Hendin, D/Marks, J., The Genetic Connection, William Marrow & Co., 1978

  subject: genetic conditions

  grade(s): teacher, health care professionals reference

  Written for the lay public. Covers the basics of genetics and why genetic counseling is useful. Statistics are out of date

  Hermes, Patricia, What if They Knew, Harcourt Brace, 1980, 0440495156

  subject: Epilepsy

  grade(s): secondary

  Depicts a 10-year old girl, Jeremy, who wants to keep her epilepsy secret from her classmates. When she has a seizure at school, Jeremy gains some insights into friendship

  Hermes, Patricia, Who Will Take Care of Me?, Harcourt, Brace, 1983

  subject: Epilepsy

  grade(s): elementary, middle

  Young boy tries to protect his brother from being sent away to a special school. Learns about responsibility and caring

  Herzig & Mali, A Season of Secrets, Little, Brown Co., 1982, 0590328182

  subject: Epilepsy

  grade(s): middle, secondary

  Brooke deals with younger brother Benji's epilepsy

  Highland, Ellen, The Challenges Facing Dwarf Parents: Preparing for a New Baby, 1989

  subject: short stature

  grade(s): teacher, health care professionals reference

  Short statured mother addresses challenges of dwarf parents. 60 page paperback

  Hirsch, Karen, Becky, Carolrhoda Books, 1981

  subject: hearing impairment

  grade(s): elementary

  Hlibok, B., Silent Dancer, Messner, 1981

  subject: hearing impairment

  grade(s): middle

  A Day in the life of a 10 year old girl studying dance with the Joffrey Ballet School as described by her brother. Nancy is deaf and so is her brother

  Hoelzel, A. Rus, Molecular Genetic Analysis of Population, Oxford University Press, 1992, 963277-4

  subject: molecular genetics

  grade(s): teacher, adult, professional

  Compilation of biotechnology research protocols for screening plant and animal populations. Detailed, step-by-step protocols, comprehensive introductions,   background about the techniques. For researchers pursuing population genetics investigations, however, its utility extends beyond population studies. Laboratory methods guide for laboratory doing DNA analysis

  Hoff, Syd, Littlest Leaguer, EP Dutton, 1976

  grade(s): elementary

  Holbrook, M. Cay, Children with Visual Impairments: A Parents' Guide, Woodbine House, 1995, 0-933149-36-0

  subject: parenting, visual impairment

  grade(s): teacher, adult, professional

  Holcomb, Nan, A Smile From Andy, Turtle Books, 1989, 0944727042

  subject: cerebral palsy

  grade(s): elementary

  A child with cerebral palsy is hindered in meeting new people by his shyness until he discovers the special thing he can do to make people feel like talking to him

  Holcomb, Nan, Andy Opens Wide, Jason & Nordic Publishers, 1990, 0-944727-06-9

  subject: disabilities, children grade(s): elementary, middle, professional, adult

  Five-year-old Andy's frustration turns to pleasant surprise as he explores the problem of voluntary mouth control

  Holcomb, Nan, Patrick and Emma Lou, Turtle Books, 1989, 0944727034

  subject: cerebral palsy, spina bifida

  grade(s): elementary

  Despite his excitement over walking with a new walker, three year old Patrick finds it isn't easy and becomes discouraged until his new friend, six year old Emma Lou who has spina bifida, helps him discover something important about himself

  Holcomb, Nan, Sarah's Surprise, Jason & Nordic Publishers, 1990, 0-944727-07-7

  subject: disabilities, children

  grade(s); elementary, adult, professional, teacher

  Six-year-old Sarah, mobile, but unable to talk, wants to sing "Happy Birthday" at parties. With help from her therapist and a new augmentative communication device, she surprises her mother

  Holtzman, Neil A., M.D., M.P.H., Proceed With Caution: Predicting Genetic Risks in the Recombinant DNA Era, Johns Hopkins University Press, 1989, 0-8018-3737-5

  subject: genetic testing, predictive test

  Horrobin & Rynders, To Give an Edge: A Guide for New Parents of Down Syndrome Children, Colwell Press, Inc., 1984

  grade(s): teacher, health care professionals reference

  Appropriate for students and teachers, as well as parents. Question and answer format allows parents of Down Syndrome children to give their personal experience. Needs to be supplemented by factual information

  Howard, Ellen, Edith Herself, Atheneum, 1987

  subject: Epilepsy

  grade(s): secondary

  An epileptic girl finds that facing her troubles helps her deal with them

  Howe, James, A Night Without Stars, Atheneum, 1983

  Howell, Michael, The True History of the Elephant Man, NY Penguin, 1980

  subject: Neurofibromatosis

  grade(s): secondary

  Hubbard, Ruth, and Wald, Eliah, Exploring the Gene Myth, Beacon Press, 1992, 0-8070-0418-9

  subject: HGP / ELSI

  grade(s): adult

  How genetic information is produced and manipulated by scientists, physicians, employers, insurance companies, educators, and law enforcement

  Hunt, Irene, Up the Road Slowly, Follett, 1966, 0425100030

  grade(s): secondary

  Hunt, Nigel, The World of Nigel Hunt: The Diary of a Mongoloid Youth, Garret Publications, 1967

  subject: Down Syndrome

  grade(s): secondary, teacher, health care professionals reference

  Diary of an exceptional young man with Down Syndrome

  Hunter, Edith, Child of the Silent Night, Houghton, 1963

  subject: visual impairment

  grade(s): elementary

  Hyde, Margaret & Lawrence, Cloning and the New Genetics, Enslow Publishers, Inc., 1984

  subject: cloning

  grade(s): secondary

  Cloning and recombinant DNA, research and potential developments in medicine (cancer research and monoclonal antibodies), agriculture, animal husbandry. Explanations of cloning, natural cloning in plant and animal life, and discussion of human cloning to dissipate the science fiction aura around it.   Black-and-white diagrams and photographs of cellular processes.

  Hyman, Jane, Deafness, Franklin Watts, 1980

  subject: hearing impairment

  grade(s): teacher, adult, professional

  Information on the diagnosis and causes of hearing impairment. Treatment and educational issues are discussed along with various communication options

  Hyman, Julie, Angels Among us: Angelman Syndrome Information and Resources, Julie Hyman, 1996

  subject: Angelman Syndrome grade(s): secondary, adult, teacher

  julzak@tribeca.ios.com

  Imperial Cancer Research Fund, Human Gene Mapping 11, S. Karger Publishers, Inc., 1991, 3-8055-5572-5

  subject: human genetics

  grade(s): teacher, professional

  Prepared by 34 expert committees, London, UK, August 1991, with the aid of the system developed at the Genome Data Base of the Imperial Cancer Research Fund, London. Map locations of approximately 470 genes have been added since HGM 10.5, the 1990 update of HGM 10, bringing the total to about 2,350 genes. Represents roughly 5% of all functional human genes. Large number of physical and linkage maps are included.  "DNA Committee"  includes list of nearly 7,000 polymorphisms formatted for PCR. Catalog of human gene names and official symbols, reports on gene linkage and gene order; human and mouse homologies; general comparative gene mapping; chromosome rearrangements in neoplasia. chromosome and gene loss in human neoplasia, clinical disorders and chromosome deletion syndromes; and the location of 114 fragile chromosome sites. Data on 55 mitochondrial genes. Extensive bibliographies, expert compilation of the human gene map and information

  Institute of Medicine, Advances in Understanding Genetic Changes in Cancer, National Academy Press, 1992

  Irving, John, A Son of the Circus, Random House, 1994

  subject: short stature, fiction

  grade(s): secondary, adult, professional, teacher

  Jackson & Schimke, Clinical Genetics: A Source Book for Physicians, Wiley-Liss, A Division of John Wiley & Sons, Inc., 1979

  subject: clinical genetics

  grade(s): physician, health care professional reference

  Jackson M.D., John F., Genetics And You, Humana Press, 1996, 0-89603-330-9

  subject: basic genetics

  grade(s): middle, secondary

  Principles of genetics that underlie genetic disorders. Clarifies the process of genetic counseling, demonstrates the importance of constructing a family pedigree and describes the latest methods of prenatal diagnosis

  Jaroff, Leon, The New Genetics: The Human Genome Project: Impact on Medicine, Grand Rounds Press, 1991

  subject: HGP

  grade(s): middle, secondary, adult, professional

  Jolly, Elizabeth, M.D., The Invisible Chain, Nelson-Hall Co., 1972

  grade(s): teacher, health care professional reference

  Jones, Chuck, William the Backwards Skunk, Crown Publishers, 1986

  subject: Differences

  grade(s): elementary

  A backwards skunk, whose stripe is on his front instead of his back tries to correct the situation so that other animals will know who he is

  Jones, Kenneth L., Smith's Recognizable Patterns of Human Malformation, W.B. Saunders Company, 1988

  grade(s): physician, health care professional reference

  Coverage of malformation syndromes resulting from environmental and genetic changes. A general reference for health practitioners

  Jones, Monica, Home Care for the Chronically Ill or Disabled Child, Harper & Row

  grade(s): teacher, health care professionals reference

  Jones, R.N., Practical Genetics, Wiley-Liss, A Division of John Wiley & Sons, Inc., 1991, 0-417-93234-5

  subject: clinical genetics

  grade(s): professional

  Collection of practical exercises in genetics for use by junior students wishing to carry out their own practical experiments. All of experiments described have been well tried and tested and in addition to the details of the exercises, each chapter contains relevant background information and suggestions for analysis and interpretation of results

  Jones, Ron, The Acorn People, Abingdon Press, 1977, 69

  subject: physical disability, developmental delay

  grade(s): middle, secondary

  True story of a group of handicapped children at summer camp. The camp was not a place for handicapped children. It was for children who could shoot arrows, cook goulash, take hikes and sing songs. It wasn't a place for ramps, sanitized medical facilities, swimming pool rails, or activity schedules. It was a place for children and their expectations and fantasies for life

  Jones, Steve, The Language of Genes: Solving the Mysteries of Our Genetic Past, Present and Future, 1993

  subject: genes

  Jordan, MaryKate, Losing Uncle Tim, Albert Whitman & Co., 1989

  subject: AIDS

  grade(s): elementary

  When his beloved Uncle Tim dies of AIDS, Daniel struggles to find reassurance and understanding and finds that his favorite grown-up has left him a legacy of joy and courage

  Jovanovic, Biermann & Tooh, The Diabetic Woman, Jeremy P. Tarcher, 1987

  subject: diabetes

  grade(s): teacher, health care professional reference

  Joyner, Alexandra L., Gene Targeting: A Practical Approach, Oxford University Press, 1993, 963406-8

  grade(s): teacher, professional

  Rationale behind designing gene targeting vectors, and discusses the latest techniques for culturing and manipulating ES cells and a number of approaches for identifying rare targeting cell clones. It describes techniques for culturing and assaying for mouse and human hematopoietic progenitors in vitro and in vivo, the design and use of retrovirus vectors for introducing and expressing

  Kalan, Robert, Jump, Frog, Jump!, William Morrow & Co., 1981, 0688092411

  subject: visual impairment, braille for children

  grade(s): elementary

  Kamien, J., What If You Couldn't...A Book About Special Needs, Charles Scribner's, 1979

  subject: disabilities

  grade(s): middle

  Examines the effects of various handicapping conditions and treatments. Facts are presented and situations are described to stimulate critical thinking

  Kamien, Janet, Alvin, Linc. Services, Inc., 1978

  subject: feelings, resentment

  grade(s): elementary

  Alvin must face his emotional distress and resentment he feels for his new baby brother

  Kaplan, Barbara K, and Kathleen S. Dale, The Cytogenetic Symposia, 1994, The Association of Cytogenetic Technologists, 1994

  subject: cytogenetics

  grade(s): adult, professional, teacher

  24 chapters, over 182 pages including illustration, chapter objectives, questions with answers and glossaries

  Kata, Elizabeth, A Patch of Blue, Warner Books, Inc., 1961, 0446314854

  subject: visual impairment

  grade(s): middle, secondary

  A love story about a young blind girl who falls in love with a seeing man

  Kates, Bobbi Jane, We're Different, We're the Same, Random House, 1992, 0679832270

  subject: differences

  grade(s): elementary

  Katz-Rothman, Barbara, The Tentative Pregnancy, Viking

  subject: prenatal

  grade(s): NA

  Kaufman, Sandra, Retarded Isn't Stupid, Mom!, Paul H. Brookes Publishing, 1988

  grade(s): teacher, health care professionals reference

  How do parents and families of a mentally retarded person cope with the challenges and frustrations of everyday life? Sandra Kaufman shares with you the powerful emotions and events encountered as her daughter, Nicole, moves toward adulthood

  Keith, Harold V., The Runt of Rogers School, JB Lippincott, 1971

  grade(s): elementary

  Keller, Holly, Cromwell's Glasses, Greenwillow, 1982

  subject: visual impairment

  grade(s): elementary

  Cromwell's glasses are the source of the teasing that comes from his classmates and even his own sister, Cindy. But Cindy soon finds her loyalty to Cromwell and helps him

  Kelley, Laureen A., Must You Always Be A Boy?, Armour Pharmaceutical Co., 1991

  subject: hemophilia

  grade(s): elementary, middle, teacher

  Summarizes the ongoing battle between an over-protective mother and an adventuresome son with hemophilia.  Can be a Win-Win situation, if the son realizes that a mother has to act like a mom, and  mother acknowledges that a boy will be a boy and must do the things that go with boyhood

  Kelley-Buchanan, Christine, Peace of Mind During Pregnancy, Facts on File, Inc., 1988

  subject: Pregnancy

  grade(s): teacher, health care professionals reference

  Kelly, Thaddeus E., Clinical Genetics & Genetic Counseling, Year Book Medical, 1986

  subject: clinical genetics

  grade(s): teacher, health care professionals reference

  Written for practicing physicians and medical students. Heredity, principles of clinical genetics, probability, genes, genetic counseling, prenatal diagnosis

  Kerr, M.E., Little Little, HarperCollins Publishers, 1981, 0-06-447061-X

  subject: short stature

  grade(s): elementary

  Shenanigans of two dwarfs as they compete for the heart of Little Little, a dwarf heiress who's tired of being treated like a pretty doll

  Kessler, S., Genetic Counseling: Psychological Dimensions, Academic Press, Inc., 1979

  subject: genetic counseling

  grade(s): teacher, health care professionals reference

  Counseling handbook which deals with the legal, ethical, and psychosocial issues as well as the genetic aspects of genetic counseling

  Kevles, Daniel, In the Name of Eugenics, Alfred A. Knopf, 1986

  grade(s): teacher, adult, professional

  Provides historical, comparative account of human heredity and genetics, uses and abuses of the various applications of this knowledge over time. Compares and contrasts the activities occurring primarily in the United States and Great Britain. Descriptions of the development of the corpus of knowledge in "genetics".  Explores the interactions between the scientific understanding of human heredity and genetics at particular points in time, the social climate of the day, and idealogies of key players

  Kevles, Daniel J., Hood, Leroy, The Code of Codes, Harvard University Press, 1992, 0674-136-462

  subject: HGP / ELSI

  grade(s): adult, professional

  Kibbey, Marsha, My Grammy, Carolrhoda Books, 1988

  subject: Alzheimer's Disease

  grade(s): elementary

  When eight year old Amy has to share her room with Grammy who has Alzheimer Disease, she learns to give her the patience she needs

  Kieffer, George H., Biotechnology, Genetic Engineering and Society, Nat Soc Biology Teachers, 1987, 094121205X

  subject: biotechnology

  grade(s): secondary

  Aims at public education about the benefits and risks of biotechnology

  Killilea, Marie, Karen, Prentice Hall, 1952, 0440943760

  grade(s): secondary

  King, Richard A., J.I. Potter, A.G. Motulsky, The Genetic Basis of Common Diseases, Oxford University Press, 1992, 0-19505-482-2

  subject: medical genetics

  grade(s): professional

  Resource for human geneticists and physicians concerned with the genetic causes of diseases seen in research, clinical practice, and genetic counseling. Each chapter covers a particular disease, describes the genetic factors involved, and defines the relevant biochemical, immunological, and physiological markers. Clinical applications, how genetic data can be used to evaluate individuals and families, interpret diagnostic texts, and manage a disease

  King, Robert C., and W.D. Stansfield, A Dictionary of Genetics, Oxford University Press, 1990, 0-190506391-6

  subject: basic genetics

  grade(s): secondary, teacher, professional

  Useful for high school level students and also working professionals. In addition to offering 5,920 definitions and 225 illustrations, there are four appendixes that provide the complete classification of all living organisms by kingdom, phylum, class, order, family, genus, species, with genus and species names given; a chronology of events in biology and genetics from 1590 to the present (with name index and bibliography); and an alphabetized address list of journals and multijournal publishers. Also included is a list of foreign words (with translations) commonly found in scientific titles

  Kipnis & Adler, You Can't Catch Diabetes From a Friend, Triad, 1979

  subject: Diabetes

  grade(s): elementary

  Richard Benkof's black and white photos are used to explore the 'real life episodes in the daily lives of Karen, Danny, Collen, and Robert',..'four normal, active kids-who have diabetes.' 'Believing that the adjustment of any person with a chronic illness depends on a well-informed public' the authors 'put into perspective the burden of being young and diabetic

  Kitzinger & Nilsson, Being Born, Grosset & Dunlap, 1986

  subject: Birth

  grade(s): teacher, health care professionals reference

  Intrauterine photographs and prose poem unfold story of prenatal life from conception to right after birth. Language is sensitive, photographs graphic.  Adults should preview book before using with young people.

  Klug, William, Concepts of Genetics, Scott Foresman, 1986

  subject: Genetics

  grade(s): elementary, middle

  Kneeland, Linda, Cookie, Jason & Nordic Pub., 1989, 0944727050

  subject: verbal impairment

  grade(s): elementary

  When four year old Molly with Down syndrome learns to talk with her hands, she suffers fewer frustrations by being able to ask for what she wants

  Konigsburg, Elaine, Altogether, One at a Time, Atheneum, 1971, 0689704151

  grade(s): elementary

  Kovalski, Maryann, The Wheels on the Bus, Little Brown & Co., 1987, 0-316-50256-1

  grade(s): elementary

  Kramer, Stephen P., How to Think Like a Scientist, Thomas Crowell, 1987

  subject: Scientific Methods

  grade(s): elementary

  Scientific method as a way of getting answers to questions.  Explains how to set up an experiment using a control group. Based on situations that children are likely to run into in their daily lives. Intermediate

  Krasilvosky, Phyllis, Very Little Boy, Doubleday, 1962

  Krasilvosky, Phyllis, Very Little Girl, Doubleday, 1953

  Krementz, Jill, How it Feels to Fight for Your Life, Little Brown & Co., 1989, 0-316-50361-9

  subject: disabilities

  grade(s): secondary

  Fourteen children tell how they battle pain, uncertainty, and the changes brought about in their lives by serious illness such as cancer, severe burns, asthma, and kidney failure

  Krementz, Jill, How It Feels To Live With A Physical Disability, Simon & Schuster, 1992, 0-671-72371-5

  subject: physical disabilities

  grade(s): secondary, adult, professional

  Kriegsman, Kay, Elinor Zaslow & Jennifer D'Zmura-Rechsteiner, Taking Charge: Teenagers Talk about Life and Physical Disabilities, Woodbine House, 1992, 0-933149-46-8

  subject: adolescence, disabilities

  grade(s): middle, secondary, teacher, adult, professional

  Strategies for handling tough issues: from siblings to sexuality, from over-protective parents to staring strangers, based on thoughts of 15 young people with disabilities. One section explores issues of self identity, a second looks at relating to other people, and a third addresses issues of how other people relate to youth with disabilities

  Kuklin, Susan, Thinking Big: The Story of a Young Dwarf, Lothrop, Lee & Shphrd, 1986

  subject: short stature

  grade(s): elementary

  Text and photographs of an eight-year-old with dwarfism who lives with an average-sized family and attends a regular school

  Kumin, Libby, Communication Skills in Children with Down Syndrome, Woodbine House, 1994, 0-933149-53-0

  subject: parenting, Down syndrome, language

  grade(s): teacher, adult, professional

  Kupfer, Fern, Before and After Zachariah, Delacorte, 1982

  subject: Handicaps

  grade(s): secondary

  About a family's dilemma in deciding to institutionalize their handicapped child

  Kushner, Harold, When Bad Things Happen to Good People, Scholars Books, 1981

  subject: Coping

  grade(s): teacher, health care professionals reference

  Help in understanding feelings when someone close to us is diagnosed with a terminal illness. Based on the loss of his son Aaron and his experiences as a rabbi

  L'Engle, Madeline, A Ring of Endless Light, Farrar Straus Giroux, 1980, 0440972329

  grade(s): secondary

  Lampton, Christopher, DNA and the Creation of New Life, Arco, 1983

  subject: DNA History

  grade(s): secondary

  Discussion of the history of genetic engineering, from the quest for the gene to current attempts to sell synthetic products

  Lampton, Christopher, DNA Fingerprinting Establishment, Inc., Ward's Natural Science, 1995, 32 W 0258

  subject: forensics, ELSI

  grade(s): middle, secondary

  Reviews the developments of the DNA fingerprinting technique and how it has been used in crime solving: the first case where genetic profiling was used, controversy surrounding use of DNA fingerprinting, false accusation, and ethical and legal issues

  Lampton, Christopher, Gene Technology Confronting the Issues, Franklin Watts, 1990, 0-531-10951-8

  grade(s): middle, secondary

  An overview of the revolution in genetic engineering and the attendant social and ethical issues raised. Topics include genetics from Mendel to Watson and Crick, recombinant DNA technology, the benefits and risks of the creation of new lifeforms, prenatal testing, genetic screening and the Human Genome Project

  Landa, Norbert and Patrick A. How the Y Makes the Guy: Microexplorers: A Guided Tour Through the Marvels of Inheritance and Growth (Microexplorers Series), January, 1998, ISBN: 0764150642
  

  subject: Y-chromosome

  grade(s): secondary, adult

  Landing, Benjamin H., M.D. Haust, J. Bernstein, H.S., Genetic Metabolic Diseases, S. Karger Rosenberg Publishers, Inc., 1993, 3-8055-5581-4

  subject: medical genetics

  grade(s): professional

  Profiles selected childhood diseases resulting from metabolic abnormalities: meuronla ceroid-libpfuscinosis, peroxisomal disorders, galactosemia, homocystinuria and mucolipidoses. Studies discussed which combine traditional methods of morphology, histochemistry and electron microscopy with techniques of molecular biology. Contributions from leading specialists.

  Langone, John, Goodbye to Bedlam: Understanding MR, Little, 1974

  subject: mental retardation

  grade(s): teacher, adult, professional

  Langone, Marvel, Human Engineering: Marvel or Menace?, Little Brown & Co., 1978, 514276

  subject: human genetics

  grade(s): middle, secondary

  Lappe, Marc, Broken Code: The Exploitation of DNA, Sierra Club Books, 1984

  Lashley, Felissa R. Cohen, Clinical Genetics in Nursing Practice (2nd edition), Springer Publishing, 1998, ISBN 0-8261-1177-7

  subject: clinical genetics

  grade(s): teacher, health care professionals reference

  Lasker, Joe, He's My Brother, Albert Whitman & Co., 1974

  grade(s): elementary

  An older brother shows real affection for Jamie, who has a learning disability. To help siblings and friends be more understanding of children with learning disabilities. Ages 5-9

  Lasker, Joe, Nick Joins In, Albert Whitman & Co., 1980

  subject: disabilities, orthopedic

  grade(s): elementary

  Laurencin, Genevieve, I Wish I Were, G.P. Putnam's Sons

  grade(s): elementary

  Lea, Dale Halsey, Jean F. Jenkins, and Clair A. Francomano, Genetics in Clinical Practice: New Directions for Nursing and Health Care, 1998, Jones and Bartlett Publishers
  

  subject: genetics and health care

  grade(s): adult

  A practice-based approach for nurses to the emerging science of genetics.

  Leder, Philip, David A. Clayton & Edward Rubenstein, Introduction to Molecular Medicine, Scientific American Medicine, 1994, 0-89454-015-7

  subject: molecular genetics

  grade(s): teacher, professional

  Clinical overview of the defining concepts and powerful techniques of genetics so that you can incorporate its principles into your practice

  Lee, Robert C., It's a Mile from Here to Glory, Little, 1972

  grade(s): elementary, middle

  Lee, Thomas, Gene Future, Carolina Biological Supply Company, 1993, 45-2457BJ

  subject: biotechnology, ELSI

  grade(s): middle, secondary

  Science, politics, economics, and our legal system, study of promise and danger of biotechnology. Succinct explaination if genetic engineering and gene therapy, detailed examples of already existing transgenic plants and animals, nearly accomplished cures of genetic diseases, legal cases involving DNA fingerprinting, more. For middle school and up

  Lee, Thomas F., The Human Genome Project: Cracking the Genetic Code of Life, Plenum Publishing Corporation, 1991, 0-306-43965-4

  subject: HGP

  grade(s): secondary, adult, professional

  Lemaster, Leslie, A New True Book On: Cells and Tissues, Children's Press, 1985

  subject: cells and tissue

  grade(s): elementary

  Pictures, diagrams, and large print to 'describe the nature of the body's cells, protoplasm, tissues, organs, and systems, and explain how they work'

  Leone, Francis, Genetics: The Mystery and The Promise, TAB Books, 1992, 0-830-63067-8

  subject: History Genetics

  grade(s): secondary, adult, professional

  Historical developments in the field of genetics. How science unlocked the secrets of the genetic code. Historical summary and explanation of the key concepts in the exciting world of DNA and the gene

  LeShan, Eda, When A Parent is Very Sick, Joy Street Books, 1986

  subject: illness

  grade(s): secondary

  If your parent has become very sick, chances are you're experiencing many new, confusing feelings. You may feel shocked; frightened; guilty; angry; or helpless-maybe all at the same time! You probably feel as if your life will never be the same

  Levin, Toby, Rainbow of Hope: A Guide for the Special Needs Child, March of Dimes Birth Defects Foundation, 1992, 0-9624680-1-0

  subject: disabilities

  grade(s): secondary, adult

  Levine, Edna, Lisa and Her Soundless World, Human Science Press, 1984

  subject: hearing impairment

  grade(s): elementary

  A picture-book story about the world of a deaf child

  Levinson, Marilyn, And Don't Bring Jeremy, Holt, Rinehart, Wilt, 1985

  subject: Learning Disabilities

  grade(s): middle

  New in the neighborhood and eager to be part of the new crowd, sixth grader Adam finds it difficult to come to terms with the needs of his older brother who suffers from a learning disability and often seems younger than himself

  Levinson, Nancy Smiler, Annie's World, Gallaudet University Press, 1990, 0-930323-65-3

  subject: deafness

  grade(s): middle, secondary

  Moderately deaf, 16-year-old Annie struggles to adapt to being "mainstreamed" in a new school

  Levitan, Max, Textbook of Human Genetics, 3rd edition, Oxford University Press, 1993, 50-4935-7

  subject: human genetics

  grade(s): adult, professional

  Levy, Harvey L., Genetic Screening for Inborn Errors of Metabolism, US Dept Health, 1973

  subject: genetic testing, newborn screening

  grade(s): teacher, health care professionals reference

  Reference to current knowledge on newborn screening for inborn errors of metabolism

  Lewin, Benjamin, Genes II, John Wiley & Sons, Inc., 1985

  subject: genetics

  grade(s): adult, professional

  Molecular genetics text

  Lewin, Benjamin, Genes III, Wiley-Liss, A Division of John Wiley & Sons, Inc., 1987, 0-471-83278-2

  subject: genetics

  grade(s): adult, professional

  Lewin, Benjamin, Genes IV, Oxford University, 1990

  subject: genetics

  grade(s): secondary, adult, professional

  What is a gene? How is it reproduced? How is it expressed? What controls its expression? Through an integrated approach to prokaryotic and eukaryotic biology, topics discussed in molecular biology and genetics in terms of the approaches used by researchers. Extensive introduction to molecular and cell biology provides essential background material to students

  Lewin, Benjamin, Genes V, Oxford University Press, 1994, 854287-9

  subject: genetics

  grade(s): teacher, adult, professional

  Genes V gives an integrated account of the structure and function of genes in both prokaryotic and eukaryotic organisms. It is thoroughly up-to-date with the latest thinking and research in the field. Successive editions have provided an authoritative summary of the whole field of modern molecular genetics.  Provides synthesis with emphasis on how genes function in their biological context

  Lewis, Ricki, Human Genetics: Concepts and Applications, Wm. C. Brown Publishers, 1994, 0-697-13315-X

  subject: human genetics

  grade(s): teacher, adult, professional

  Combines complete genetics coverage with actual case studies, causes from medical literature, and the latest research and clinical developments. In her engaging, unique style, Ricki Lewis shares examples gleaned from her own experiences as a genetic counselor: giving issues related to human genetic disease a truly "human voice"

  Lewis, Rob, Friska: The Sheep That Was Too Small, Farrar, Struas, Girrous, 1987, 0374424632

  subject: short stature

  grade(s): elementary

  Although Friska is very small, she is able to do certain things that bigger sheep cannot

  Litchfield, Ada, A Button in her Ear, Albert Whitman & Co., 1976

  subject: hearing impairment

  grade(s): elementary

  Little girl relates how her hearing deficiency is detected and corrected with the use of a hearing aid. Pleasant illustrations

  Litchfield, Ada, A Cane in Her Hand, Albert Whitman & Co., 1977

  subject: visual impairment

  grade(s): elementary

  A young girl finds ways to cope with her failing vision. Ages 5-9

  Litchfield, Ada, Captain Hook, That's Me, Walker and Company, 1982

  subject: limb deficiency, prosthetic arm

  grade(s): elementary

  Litchfield, Ada, Words In Our Hands, Albert Whitman & Co., 1980

  subject: hearing impairment

  grade(s): elementary

  Nine-year-old Michael explains the facts and feelings of family life with deaf parents

  Little, J., Listen for the Singing, E.P. Dutton, 1977

  subject: visual impairment

  grade(s): middle

  Continuation of the book 'From Anna.' Anna's limitations and fears as she prepares to enter high school are described. Also detailed is the experience of a sighted person becoming totally blind

  Little, Jean, From Anna, Harper & Row, 1972, 064400441

  subject: visual impairment

  grade(s): elementary

  Children's novel provides a 'sensitive' approach to understanding the problems Anna encounters before and after she is diagnosed with poor sight

  Little, Jean, Mine for Keeps, Little, Brown and Co, 1962, 0671424556

  subject: Cerebral Palsy

  grade(s): secondary

  Lowry, Lois, A Summer to Die, Houghton Mifflin Co., 1977

  subject: grief, Death of a sibling

  grade(s): middle, secondary

  Thirteen-year-old Meg envies her sister's beauty and popularity. Her feelings don't make it any easier for her to cope with Molly's strange illness and eventual death

  LPA members, Reflections on Short Stature, South Florida LPA, 1991

  subject: short stature

  grade(s): adult, professional

  Edited by Ellen Highland Fernandez and Edward Lang, a collection of personal stories by LPA members. Heartwarming, educational, graphic and analytical

  MacLachlan, Patricia, Through Grandpa's Eyes, Harper Trophy, 1980, 0064430413

  subject: vision impairment

  grade(s): elementary

  Male, Mary, Special Magic: Computers, Classroom Strat & Excep Children, Mayfield Publishing

  grade(s): elementary

  Maloff & Macduff, Business & Social Etiquette with Disabled People, Charles C. Thomas, 1988

  subject: disabilities, etiquette

  grade(s): teacher, health care professionals reference

  Quick reference for social and business situations. How to lend aid, business etiquette, conversation, entertainment. Focuses on three groups of disabilities -- mobility impairments, blindness, and speech or hearing

  Mange, Arthur & Elaine Johansen Mange, Genetics: Human Aspects, Sinauer Associates, Inc. Publishers, 1990, 0-87893-501-0

  subject: genetics

  grade(s): secondary, adult, professional, teacher

  For advanced high school or college student. Covers cytogenetics, gene transmission, genes and metabolism, population genetics, and application of genetic technologies. Clinical photographs

  Mange, Elaine Johansen and Arthur P., Basic Human Genetics, Sinauer Associates, Inc. Publishers, 1994, 0-87893-495-2

  subject: human genetics

  grade(s): secondary, adult, professional

  Designed for a one-semester course for non-science majors, assumes no knowledge of genetics beyond high school level biology. Discussion of many issues  including the role of science in society; the ethical aspects of genetic counseling, population screening, and gene therapy; the impact of the human genome project; the use of twins in genetic research; the use of DNA fingerprinting in courtrooms; and controversies surrounding the genetic study of behavioral traits such as alcoholism, IQ and sex differences

  Marcia L. Braden, Ph.D., Fragile: Handle With Care (Understanding the Fragile X Syndrome), Avanta Media Corporation

  subject: Fragile X Syndrome

  Insight into the patterns of behavior and learning of individuals affected by the fragile X syndrome. Sample chapter online at http://www.avanta.com/fragilex

  Marcus, Rebecca, Being Blind, Hastings, 1981

  subject: visual impairment

  grade(s): secondary

  Marion, Robert, The Boy Who Felt No Pain, Addison-Wesley Publishing Company, 1990, 0-201-55149-0

  subject: medical genetics

  grade(s): secondary, adult, professional

  Marsh, Jayne D.B. & Carol Baggis, From the Heart: On Being the Mother of a Child with a Disability, Woodbine House, 1995, 0-933149-79-4

  subject: parenting

  grade(s): teacher, adult, professional

  Martin, Bill Jr., Knots on a Counting Rope, Henry Holt & Co., 1987

  subject: visual impairment

  grade(s): elementary

  Tells the story of an Indian boy who was born blind and how he finds confidence and courage. Ages 4-8

  Massey, Susan, Journey, Warner Books, Inc., 1973

  subject: hemophilia

  grade(s): secondary

  Authors describe their experiences in raising a son with hemophilia. Description of available treatment is out of date, and thus misleading as to the treatment currently available. However, good description of  feelings of parents of a boy with hemophilia, and good historical perspective

  Maxson & Daugherty, Genetics: A Human Perspective, Wm. C. Brown Publishers, 1985, 0697000745

  subject: general genetic

  grade(s): teacher, health care professional reference

  Intended for nonscience majors. Includes chapters on immunogenetics, genetic technologies, and agricultural genetics

  McConkey, Edwin, Human Genetics: The Molecular Revolution, Carolina Biological Supply Company, 1993, 45-2508J

  subject: molecular genetics

  grade(s): secondary, adult, teacher, professional

  Survey of status of human genetics with an emphasis on molecular information. Description of knowledge of the human genome, how research enables us to understand, diagnose, and treat genetic diseases.

  McConnell & Duell, Different and Alike, Current, Inc., 1982

  subject: handicaps

  grade(s): middle

  Colorfully illustrated.  Brief and easy to understand overview of handicapping conditions. Practical suggestions for helping people with handicaps

  McCullouch, Laurence B. and Frank A. Chervenak, Ethics in Obstetrics and Gynecology, Oxford University Press, 1994, 506005-9

  subject: ethics

  grade(s): professional

  Comprehensive and clinically practical approach to ethics in the everyday practice of obstetrics and gynecology. Topics include: contraception, abortion, selective termination of multifetal pregnancies, gynecologic cancer, in vitro fertilization, surrogacy, prenatal diagnosis, fetal therapy, cephalocentesis, prematurity, HIV infection, and court ordered cesarean delivery. One strength is emphasis on prevention, and if prevention fails, management of the conflicts and crises which arise in these areas of medicine

  McInnes & Treffry, Deaf-Blind Infants and Children, Exceptional Parent, 1988

  grade(s): teacher, health care professionals reference

  McKusick & Roderick, Medical and Experimental Mammalian Genetics: A Perspective, Alan R. Liss, 1987

  grade(s): teacher, health care professionals reference

  McKusick M.D., Victor, A., Medical Genetics: A Self-Instruction Guide and Workbook based on Mendelian Inheritance in Man, Johns Hopkins University Press, 1993, 0-8018-4796-6

  subject: medical genetics

  grade(s): adult, professional

  Study guide and workbook is designed for use in conjunction with Mendelian Inheritance in Man, particularly its on-line version and the CD-ROM edition. Useful to medical students, fellows in medical genetics, and indeed all who wish to enhance their understanding of the field

  McKusick, Victor A., Mendelian Inheritance in Man, eleventh edition, Johns Hopkins University Press, 1994, 10th edition 0-8018-4933-0

  subject: medical genetics

  grade(s): professional

  The definitive reference work on human genetic traits and disorders. Renowned resource. 2 volumes

  McLaren/Rotundo, Heath Biology, DC Heath & Co., 1985

  grade(s): secondary

  Phylogenetic approach to biology. Basic textbook

  Meddaugh, Susan, Too Short Fred, Houghton Mifflin Co, 1978, 0395383137

  subject: Short Stature

  grade(s): elementary

  Fred, a short cat, uses his wits and sense of humor to deal with the problems of being shorter than his friends and being teased about his size. His father shows him pictures of him (short) as a child too. (Constitutional delay)

  Meyer, D.J., P.F. Vadasy and R.R. Fewell, Living With A Brother or Sister With Special Needs, AboutFace, 1985

  grade(s): elementary

  Written for siblings of children with disabilities. Factual information about various disabilities and offers emotional support to brothers and sisters. Focus on the feelings of siblings, discusses normalicy of feelingsl, and how to deal with them in a positive and constructive manner. Gibliography of other materials about disabilities, resources on various disabilities

  Meyer, Donald J., Uncommon Fathers: Reflections on Raising a Child with a Disability, Woodbine House, 1995, 0-933149-68-9

  subject: parenting

  grade(s): teacher, adult, professional

  Micklish, Rita, Sugar Bee

  grade(s): elementary

  Micklos, David A., and Freyer, Greg A., DNA Science: A First Course in Recombinant DNA Technology, Cold Spring Harbor Laboratory Press Co., 1990, 0-89278-411-3

  subject: DNA recombinant

  grade(s): secondary, adult

  Milunsky, Aubrey, Choices, Not Chances, Little Brown & Co., 1989

  subject: hereditary conditions

  grade(s): teacher, adult, professional

  Authoritative, lucid, valuable volume which offers comprehensive information and guidance in understanding hereditary disorders and the options available in dealing with them. Covers the latest data on birth defects and genetic disorders as well as the hereditary aspects of heart disease, cancer, mental illness, obesity, diabetes, hypertension, alcoholism, dementia and aging. Useful for genetic counselors, general practitioners, social workers, and the literate public. Written in non-technical language

  Milunsky, Aubrey, Heredity and Your Family's Health, Johns Hopkins University Press, 1991, 0-8018-4331-6

  subject: medical genetics

  grade(s): secondary, adult, professional

  "A masterful presentation of the application of genetics knowledge to problems of health...Milunsky is a broadly knowledgeable physician-geneticist with uncommon skill in communicating that knowledge to physicians and laypersons alike" -McKusick

  Milunsky, Aubrey, How to Have the Healthiest Baby You Can, Simon & Schuster, 1987

  subject: birth defects

  grade(s): teacher, health care professionals reference

  Explains the causes of, and latest diagnostic tests and medical treatments for, problems and illnesses ranging from infertility and miscarriages to infection, hereditary disorders and complications that arise in labor and delivery. He covers everything from choosing a doctor to new hopes for childless couples. He includes tables that list drugs which can cause birth defects, medications that should not be taken during breast-feeding, signs which indicate trouble in pregnancy or special situations such as Cesarean Section deliveries, expectant mothers under 16 or over 40, and low birth weight babies

  Milunsky, Aubrey, Know Your Genes, Avon Books, 1977

  subject: genetic conditions

  grade(s): teacher, health care professionals reference

  Good general, non-technical reference on human genetics. Covers just about everything -- genetic disorders, superstitions, drugs, genetic counseling, ethics, cancer, twins

  Milunsky, Aubrey, M.D., Choices, Not Chances: An Essential Guide to Your Heredity and Health, Little, Brown and Company, 1989, 0-316-57423-6

  Mo. Protection & Advocacy, Legal Rights: For Missourians with Disabilities, Mo. Protection, 1979

  subject: ELSI, legal rights

  grade(s): teacher, adult, professional

  State of Missouri resource, Department of Protection and Advocacy Services. Manual addresses  general legal rights of Missouri disabled residents, architectural barriers, education, employment, financial assistance, housing, insurance, guardianship/conservatorship, wills and estate planning, rights of the criminally accused, vocational rehabilitation, rights of institutionalized persons with developmental disabilities, personal/ marital and parental rights, and legal assistance. A statewide toll-free number.

  Moller, Neal & Hoffman, A Parent's Guide to Heart Disorders, Exceptional Parent, 1988

  grade(s): teacher, health care professionals reference

  Montagu, Ashley, The Elephant Man: A Study In Human Dignity, E.P. Dutton, 1979, 0525476172

  subject: Neurofibromatosis

  grade(s): secondary

  True story, with documents and photographs, of John Merrick, the Elephant Man. Merrick suffered from a condition that made him appear monstrous [Proteus Syndrome]. When he was twelve, his mother died, and thereafter he spent most of his life as a monstrosity exhibited at fairs and circuses. When eventually he was befriended by a famous London surgeon, he emerged a loving, gentle, dignified human being

  Moore, Before We Are Born, W.B. Saunders Company, W4665-4

  Slide set is also available

  Moore, John A., Science As a Way of Knowing: III - Genetics, Amer Soc Zoologists, 1985

  subject: biology, university

  grade(s): teacher, health care professional reference

  Moore, Keith L. and Persuad, T.V.M., The Developing Human: Clinically Oriented Embryology, 5th Edition, W.B. Saunders Company, 1993, 0-7216-4662-X

  subject: human embryology

  grade(s): secondary, adult, professional, teacher

  Good basic human embryology book. Normal and abnormal development is described by body system

  Moore, Lilian, The Ugly Duckling, Scholastic, Inc., 1987

  subject: differences

  grade(s): elementary

  Ugly duckling spends an unhappy year ostracized by the other animals before he grows into the beautiful swan

  Moss, Deborah M., Lee, The Rabbit with Epilepsy, Woodbine House, 1989, 0-933149-32-8

  subject: epilepsy

  grade(s): elementary

  Lee is diagnosed as having epilepsy, but medicine to control her seizures reduces her worries and she learns she can still lead a normal life

  Moss, Deborah M., Shelley, the Hyperactive Turtle, Woodbine House, 1989, 0-933149-31-X

  subject: hyperactivity

  grade(s): elementary

  After his mother takes him to the doctor, Shelley the turtle begins to understand why he feels so jumpy and wiggly inside that he can't stay still

  Muench, Karl H. M.D., Genetic Medicine, Elsevier Science Publishing Company, Inc., 1988, 0-444-00850-0

  subject: medical genetics

  grade(s): teacher, adult, professional

  Good general clinical genetics textbook that covers basic principles and human disorders

  Muir Vanetten, Angela, Dwarfs don't Live in Doll Houses, Adaptive Living, 1988, 0-945828-80-1

  Mukand, Jon, Sutured Words: Contemporary Poetry About Medicine, Aviva Press, 1987, 0961915005

  subject: medicine

  grade(s): secondary, teacher, adult, professional

  Anthology of poems about medicine

  Muldoon, Kathleen M., Princess Pooh, Albert Whitman & Co., 1989

  subject: disabilities, physical impairment, wheelchairs

  grade(s): elementary

  Patty is very jealous of all the attention and special treatment her older sister gets sitting on her wheelchair throne. When Patty tries out her sister's wheelchair and gains appreciation and understanding. Ages 6-10

  Mueller & Young. Elements of Medical Genetics, 8th edition, Churchill Livingstone
  March 2001, ISBN: 044307125x Image bank

  subject: reference, general

  grade(s): teacher, health care professionals reference

  Murphy, Timothy F. and Marc A. Lappe, Justice and the Human Genome Project, University of California Press, 1994

  subject: Human Genome Project

  grade(s): secondary, adult, professional, teacher

  Collection of nine essays originally at a conference entitled "Justice and the Human Genome", Chicago, 1991. Articles explore questions of justice raised by developments in genomic research and by applications of genetic knowledge and technology. Database generated by HGP research will have implications far beyond the medical applications from this research effort .Questions of justice considered  in relation to screening and testing for various predispositions, conditions, and diseases and gene therapy, also testing for other characteristics, forensic uses of genetic information, issues associated with DNA banks, and (hypothetical) genetic enhancement possibilities

  Myers, Cerone, & Olson, A Guide for Helping the Child with Spina Bifida, Charles C. Thomas, 1981

  subject: Spina Bifida

  grade(s): teacher, adult, professional

  Discusses spina bifida in lay terms in detail

  Myers, Gary, Guide for Helping Children with Spina Bifida, Exceptional Parent, 1988

  subject: Spina Bifida

  grade(s): teacher, adult, professional

  Namovicz, Gene Inyart, To Talk in Time, MacMillan

  Nance, W.E., P. Cummingham, E. Lloyd, E. Rikuris and K.A. Shaver, What Every Person Should Know About Heredity and Deafness, Gallaudet University Press, 1989

  subject: deafness, heredity

  grade(s): middle, secondary, teacher

  Nancy L. Fisher, R.N., M.D., M.P.H., Cultural And Ethnic Diversity, Johns Hopkins University Press, 1996

  subject: Ethnic and Cultural Diversity Among the Major Ethnic Groups In the US

  grade(s): professional

  Outlines the ethnic, economic, cultural and social differences among the major ethnic groups in the US to provide genetics counselors a context within which to advise their patients

  National Research Council, DNA Technology in Forensic Science, National Academy Press, 1992, 0-309-04587-8

  subject: DNA typing

  grade(s): secondary

  Addresses quality and reliability in DNA typing, including the introduction of new technologies, problems of standardization, and approaches to certification. Discusses DNA typing in the courtroom including issues of population genetics, levels of understanding among judges and juries, and admissibility as well as societal issues, such as privacy of DNA data and storage of samples and data

  National Research Council, Mapping and Sequencing the Human Genome, National Academy Press, 1991, 0-309-03840-5

  subject: HGP

  grade(s): secondary

  NCEMCH, A Guide To Selected National Genetic Voluntary Organizations, NCEMCH, 1985

  subject: resources, volunteer organizations

  grade(s): teacher, adult, professional

  Collection of names, addresses, telephone numbers of over 300 voluntary organizations concerned with specific human genetic disorders

  Neel, J.V., Physician to the Gene Pool: Genetic Lessons and Other Stories, John Wiley & Sons, Inc., 1994, 0-471-30844-7

  subject: reference

  grade(s): teacher, professional

  Scientific autobiography weaving together personal anecdotes and observations from his years of field work in Japan and Brazil, and his own unique view of the future of human genetics in a world that is already confronting the genetic implications of population control, genetic counseling, gene therapy, and the diagnosis and treatment of genetic disease. Studies on sickle cell anemia and pioneering postwar investigations of the genetic effects of radiation exposure following the nuclear bombing of Japan, to detailed field studies of the population genetics of the Yanomama Indians of the Brazilian rain forest

  Nelkin, Dorothy and Laurence Tancredi, Dangerous Diagnostics: The Social Power of Biological Information, BasicBooks, 1989

  Nelkin, Dorothy and M. Susan Lindee, The DNA Mystique: The Gene as a Cultural Icon, W.H. Freeman and Company, 1995, 0-7167-2709-4

  subject: DNA

  grade(s): secondary, adult, teacher, professional

  Nelson-Anderson, R.N. B.S.N., Danette L. & Waters, Cynthia V., Genetic Connections A Guide To Documenting Your Individual And Family Health History, Sonters Publishing, Inc., 1996

  subject: Family history and pedigree

  grade(s): adult

  Step-by-step guide to documenting your family history and graphing your family pedigree. Complete with illustrations, health forms, and pedigree materials. Paperback $35

  New York Association for the Blind, How Does a Blind Person Get Around?, American Foundation for the Blind, 1988

  subject: visual impairment

  grade(s): elementary

  Nilsson, Lennart, A Child Is Born, Dell publishing, 1977, 0440512158

  subject: embryology

  grade(s): teacher, health care professionals reference

  Nixon, Joan Lowery, The Other Side of Dark, Delacorte

  grade(s): elementary

  Nolan, Christopher, Under the Eye of the Clock, St. Martin's

  subject: cerebral palsy

  grade(s): teacher, health care professionals reference

  Nora & Fraser, Medical Genetics: Principles and Practice, Lea & Febiger, 1989, 0812107667

  subject: medical genetics

  grade(s): teacher, adult, professional

  For medical, dental, and other students in health sciences, graduate and undergraduate students. Covers common clinical conditions and counseling situations. Intended as supplementary information to other texts which offer detailed information on genetic theory. Topics include heredity and disease, prenatal diagnosis of genetic diseases, genetics and cancer, genetics of behavior, and genetic counseling

  Nora, James J. and Fraser, F. Clark, Medical Genetics Principles and Practice, Lea & Febiger, 1993, 0-8121-1663-1

  subject: medical genetics

  grade(s): adult, professional

  Norma Simon, Why Am I Different?, Albert Whitman & Co., 1976

  grade(s): elementary

  Shows all the ways that people are different from physical appearance to families to interests. Plug for individualism and a powerful self-concept builder. Ages 3-8

  Nossal, G.J.V., Reshaping Life: Key Issues to Genetic Engineering, Cambridge University Press, 1985, 0521389690

  subject: Genetic Engineering

  grade(s): teacher, adult, professional

  Detailed coverage of current and prospective uses of genetic technology, including such area as AIDS vaccine research

  Nossal, G.J.V., Reshaping Life: Key Issues to Genetic Engineering, Melbourne Univ Press, 1985, 0521316030

  subject: genetic engineering

  grade(s): teacher, health care professional reference

  Detailed coverage of current and prospective uses of genetic technology, including such area as AIDS vaccine research

  Nussbaum, McInnes & Willard: Thompson & Thompson, Genetics in Medicine, 2001

  subject: medical genetics

  grade(s): teacher, adult, professional

  Introduction to medical genetics, with photographs, illustrations, glossary, references, name, and subject indexes, and chapter review questions that are answered in an appendix. Human Genome: structure and function of genes and chromosomes, single-gene inheritance, biochemical genetics, chromosomal aberrations, sex chromosomes, immunogenetics, blood polymorphisms, somatic cell genetics, linkage and mapping, multifactorial inheritance, genetic aspects of development, mathematical and population genetics, twin studies, dermatoglyphics, prenatal diagnosis and genetic counseling.

  O'Rahilly, Ronan & Muller, Fabiola, Human Embryology & Teratology, second edition, John Wiley & Sons, 1996, 0-471-13351-5

  subject: human prenatal development grade(s): adult, professional, teacher

  Reference on both normal and abnormal human prenatal development. Comprehensive overview of general and systemic development, referring to Carnegie system of embryonic staging. Extensively illustrated, 300 figures, including: detailed, color-enhanced line drawings clarifying the developmental processes of every major organ and system; photographs, micrographs, and 3-D reconstructions depicting vital aspects of morphology and histology; and 45 illustrations from actual case examples of specific congenital anomalies

  Oelwein, Patricia Logan, Teaching Reading to Children with Down Syndrome, Woodbine House, 1995, 0-933149-55-7

  subject: parenting, Down syndrome

  grade(s): teacher, adult, professional

  Olesky, Walter, Miracles of Genetics, Childrens Press, 1986.

  subject: Research Genetics

  grade(s): secondary

  Explores the possibilities of genetic engineering and cloning

  Oliver, Stephen G., Ward, John M., A Dictionary of Genetic Engineering, Wiley-Liss, A Division of John Wiley & Sons, Inc., 1987, 0-521-26080-9

  subject: basic genetics

  grade(s): secondary, adult, professional

  Illustrated dictionary contains 500 genetic terms. A sound understanding of modern biology is required. Students, teachers, research workers, and anyone else interested in cell biology, developmental biology, genetics and chemical engineering may find this reference useful

  Ominsky, E., Jon O: A Special Boy, Prentice Hall, 1977

  subject: Down syndrome

  grade(s): elementary

  Small book for young children complete with photographs. Jon O is a young boy with Down Syndrome who is very much an active person in the mainstream of life

  Oneal, Zibby, The Language of Goldfish, Viking Press

  grade(s): elementary

  Osborne & Freyberg, Learning in Science: The Implications of Children's Science, Heinemann, 1985, 0868632759

  subject: teaching children

  grade(s): teacher, health care professional reference

  Written for practicing science teachers as an aid in seeing how children view the world and how they learn

  Osborne, Mary Pope, Beauty and the Beast, Scholastic, Inc., 1987

  subject: Differences

  grade(s): elementary

  Through her great capacity to love, a kind and beautiful maid releases a handsome prince from the spell which has made him an ugly beast

  Ostrow, William and Vivian, All About Asthma, Albert Whitman & Co., 1989

  subject: Asthma

  grade(s): elementary

  Young narrator describes life with asthma, explaining causes, symptoms, ways to control the disorder to lead a normal life

  Oyler, Chris, Go Toward the Light, Harper & Row, 1988

  subject: Hemophilia, Death

  grade(s): secondary

  Ben, a young hemophiliac, is diagnosed with AIDS from a blood transfusion. His mother, Chris, collaborated with writer Laurie Becklund and author/TV producer Beth Polson to provide an account of how a family faces the death of a child

  Parker, Stephen, Life Before Birth, British Museum, 1983, 0521294649

  subject: prenatal information

  grade(s): teacher, adult, professional

  Description of all human developmental stages from fertilization to birth, assumes no previous knowledge. First nine months of a human life. Does not deal with side issues, complications, or abnormalities. Fully illustrated

  Patent, Dorothy Hinshaw, A Horse of a Different Color, Putnam & Grosset, 1988

  subject: Differences

  grade(s): elementary

  Text and color photographs of all different colors and kinds of horses

  Peckinpah, Sandra Lee, Chester...The Imperfect All-Star, Dasan Publishing, 1993, 0-9627806-2-6

  subject: physical disabilities

  grade(s): elementary, middle

  Chester...the Imperfect All-Star tells of a little angel's longing to play baseball in spite of the fact that one of his legs is much shorter than the other. His aspirations go far beyond his role of bat boy in The Land Called Above where a crusty coach sees beyond Chester's imperfections. With kindness and hard work, Chester triumphs and assumes his own unique place in The Land Called Below. Addresses the problems children with birth defects or traumatic injuries experience; foretells a happy ending. Illustrated. Vocabulary included

  Peckinpah, Sandra Lee, Rosey... The Imperfect Angel, Scholars Press, 1991, 0-9627806-0-X

  subject: cleft lip

  grade(s): elementary, middle

  Perske, Robert, Show Me No Mercy, Abingdon Press, 1983

  grade(s): secondary

  Peterson, Jeanne, I have a Sister, My Sister is Deaf, Harper & Row, 1977, 0064430596

  subject: hearing impairment

  grade(s): elementary

  Sibling's feelings about having a sister who is deaf. Describes many things the sister can do as well as problems she has. Nice book for the entire family to read

  Pfeffer, Susan Beth, Starring Peter & Leigh, Delacorte, 1979

  grade(s): secondary

  Phelan, The S.S. Valentine, Four Winds Press, 1979

  subject: spina bifida

  grade(s): elementary

  Phifer, Kate G., Growing Up Small: A Handbook For Short People, Paul Eriksson, 1979

  grade(s): physician, health care professional reference

  Phifer, Kate Gilbert, Tall and Small: A Book About Height, Walker and Company, 1987

  subject: growth

  grade(s): middle, secondary

  Normal and abnormal growth aimed at the junior high and high school audience. Tips for handling school problems that may arise for people who stand out because of their size. Humorous illustrations

  Phillips, Dennis H., Living with Huntington Disease: A Book for Patients & Families, University of Wisconsin Press, 1982, 0299086747

  subject: Huntington disease

  grade(s): teacher, health care professionals reference

  Pieper, Betty, By, For, and With...Young Adults with SB, SB Assn of America, 1974

  subject: spina bifida

  grade(s): secondary

  Pieper, Elizabeth, Sticks and Stones; the Story of a Loving Child, Human Policy Press

  subject: spina bifida

  grade(s): secondary

  Pines, Maya, The Structure of Life: Discovering the Molecular Shapes That Determine Health and Disease, U.S. Department of Health and Human Services, 1988

  Pirner, Connie White, Even Little Kids Get Diabetes, Albert Whitman & Co., 1991

  subject: diabetes

  grade(s): elementary, middle

  Platt, Kin, Hey Dummy, Dell, 1973, 0440935482

  grade(s): elementary

  Platt, Kin, The Boy Who Could Make Himself Disappear, Chilton, 1968, 044090837

  subject: speech impediment

  grade(s): secondary

  Life of teen Roger Baxter. An escape from the pain of Roger's speech impediment may be to 'disappear'

  Plummer, Beverly, Give Every Day a Chance, Putnam, 1970

  subject: osteogenesis imperfecta

  grade(s): secondary

  Pollock, Penny, Keeping It Secret, Putnam, 1982

  subject: hearing impairment

  grade(s): secondary

  Pomerance, Bernard, The Elephant Man, Grove Press, 1979, 0802130410

  subject: physical disfigurement

  grade(s): secondary

  Play based on the life of a severely deformed young man [with Proteus Syndrome]

  Pomerance, Bernard, The Elephant Man (Play), Grove Press, 1979

  subject: neurofibromatosis

  grade(s): teacher, adult, professional

  Play based on the life of John Merrick  [with Proteus Syndrome]

  Powell, T & Ogle, P., Brothers & Sisters--A Special Part of Exceptional Families, Paul H. Brookes Publishing, 1985, 0933716451

  subject: handicaps

  grade(s): teacher, adult, professional

  Personal accounts, review of research, special concerns and needs of children who grow up with a handicapped brother or sister. Such as, they have greater responsibility for their siblings; they feel embarrassment, guilt, and anger; they worry about their parents and their futures and what their friends will think; and they often don't understand why they are different. Advice for parents and professionals on helping non-handicapped siblings better understand their unique feelings and circumstances

  Powers, Mary Ellen, Our Teacher's In a Wheelchair, Albert Whitman & Co., 1986

  subject: disabilities, orthopedic limitations

  grade(s): elementary

  Text and photographs depict the activities of Brian Hanson, who is able to lead an active existence as a nursery school teacher despite a partial paralysis requiring the use of a wheelchair

  Pray, Lawrence, Journey of a Diabetic, Simon & Schuster, 1983, 0671614401

  subject: diabetes

  grade(s): secondary

  President's Commission, Screening and Counseling for Genetic Conditions, Government Printing, 1983

  For general public to increase understanding of ethical and legal implications of the programs for genetic screening, counseling, and education. Concise and easily read

  Privacy Commissioner of Canada, Genetic Testing and Privacy, Ministry of Supply and Services, 1992, 0-662-58966-1

  subject: genetic testing, ELSI

  grade(s): teacher, adult, professional

  Prue, Ansley Bacon, Resource Guide: Organizations w/Develop Handicaps Concerned, AAUA, 1987

  subject: Resources

  grade(s): teacher, health care professionals reference

  Prepared by American Association of University Affiliated Programs for Persons with Developmental Disabilities

  Puck, Stirling M. & Fleming, Jeanie Puleston, Genetics, Environment & Your Baby, Vivigen, Inc., 1986

  subject: prenatal information

  grade(s): teacher, adult, professional

  Small spiral book format allows for a foldout family history in the back with stickers to make a family pedigree. Basic genetic risks and conditions are described

  Pueschel, et al, New Perspectives on Down Syndrome, Exceptional Parent, 1988

  grade(s): adult, professional

  Pueschel, Siegfried, The Young Child With Down Syndrome, Human Science Press, Inc., 1984, 0-89885-120-3

  subject: Down Syndrome

  grade(s): secondary, adult, professional, teacher

  Pueschel, Siegfried, The Young Person with Down Syndrome: Transition, Exceptional Parent, 1988

  subject: Down Syndrome

  grade(s): teacher, health care professionals reference

  Pueschel, Siegfried M., A Parent's Guide to Down Syndrome: Toward a Brighter Future, Paul H. Brookes Publishing, 1990, 1-55766-060-3

  subject: Down syndrome

  grade(s): secondary, professional, adult, teacher

  Pueschel, Siegfried, Claire D. Canning, Ann Murphy and Elizabeth Zausmer, Down Syndrome: Growing and Learning, Sheed Andrews and McMell, Inc., 1978, 0836228057

  subject: Down Syndrome

  grade(s): secondary, adult, professional, teacher

  Excellent information on Down Syndrome. Appropriate for senior high students and parents

  Quackenbush, Robert, The Beagle and Mr. Flycatcher: A Story of Charles Darwin, Prentice Hall, 1983

  subject: history genetics

  grade(s): elementary

  Quackenbush uses his 'droll cartoon' drawings to illustrate real life adventures of Charles Darwin

  Quicke, John, Disability in Modern Children's Fiction, Brookline Books, Inc., 1985

  grade(s): teacher, health care professionals reference

  Supports inclusion in mainstream curriculum, specifically designed to encourage positive attitudes and actions towards children with special needs. Points out possibilities inherent in fiction for helping all children to explore their thoughts and feelings. Critical examination of specific texts. Books grouped for discussion under common themes. Discussion of themes and issues for teachers and parents considering suitability of a novel

  Quinsey, Mary Beth, Why Does That Man Have Such a Big Nose?, Parenting Press, Inc, 1986, 0943990246

  subject: differences

  grade(s): elementary

  Simple explanations to answer questions of young children.

  Rabe, Berniece, Margaret's Moves, E. P. Dutton, 1987, 0-525-44271-5

  subject: spina bifida

  grade(s): elementary

  Story about a girl with Spina Bifida, who is confined to a wheelchair. Rabe has a definite theme, that handicapped children can lead active and productive lives

  Rabe, Berniece, The Balancing Girl, Dutton, 1981

  subject: spina bifida, wheelchair

  grade(s): elementary

  Margret, a young girl with Spina Bifida, shows how good she can balance objects on her head and ride in her wheel chair at the same time. After another child claims that Margret's tricks are 'easy', she must think of a special trick in time for the school carnival. Uses pastel chalk and charcoal drawings

  Rabe, Berniece, Where's Chimpy?, Albert Whitman & Co., 1988

  subject: Down syndrome

  grade(s): elementary

  Radley, Gail, CF in His Corner, Macmillan, 1984

  subject: Cystic Fibrosis

  grade(s): secondary

  Rainer, John D., Editor, Genetic Disease: The Unwanted Inheritance, Haworth Press, Inc., 1989

  subject: genetic diseases

  grade(s): teacher, health care professionals reference

  Highlights in genetic counseling. Information on specific genetic diseases. Ethical and legal issues

  Rando, Therese, Editor, Parental Loss of a Child, Research Press, 1990

  subject: grief

  grade(s): adult, professional

  Provides clinical interventions and therapeutic support procedures for helping bereaved parents. Professional resource for psychologists, physicians, nurses, clergy

  Raskin, Ellen, Spectacles, Macmillin Pub. Co., 1968, 0689712715

  subject: visual impairment

  grade(s): elementary

  Raths, L. Harmin, M. Simon, Values and Teaching, Merrill, 1966

  Rauch, Julia B., Educating for Practice in a Changing World, Univ. of Maryland, 1984

  subject: social work ethics

  grade(s): teacher, adult, professional

  Plenary session and seminar papers presented at a social work faculty development retreat, School of Social Work and Community Planning, University of Maryland at Baltimore. Acquaints participants with advances in understanding of genetic principles; genetic principles for understanding of human behavior;  ethical issues in genetic services; national genetic policy

  Reid, R., My Children, My Children, Harcourt, Brace, Jov

  subject: spina bifida

  grade(s): adult, professional

  History of medical treatment for spina bifida

  Reiger, R., A. Michaelis, M. Green, Glossary of Genetics, 5th edition, Springer-Verlag New York, Inc., 1991, 52054-6

  subject: basic genetics

  grade(s): secondary, adult, professional

  Reiger, R.M. & Michaelis A. Green, Glossary of Genetics and Cytogenetics, Springer-Verlag New York, Inc., 1976, 3-540-07668-9

  subject: reference, genetic

  grade(s): professional

  Not kept up-to-date as other genetics dictionaries, however, has a unique and valuable feature. For many entries there is a reference to the author and year of publication in which a term was employed. Includes a bibliography of publications cited

  Riccardi, Vincent, The Genetic Approach to Human Disease, Oxford University Press, 1977, 0195021762

  subject: human genetics

  grade(s): teacher, health care professionals reference

  Basic overview of human genetics with a medical/clinical approach. Easy to use and a practical reference

  Riedman, Sarah Regal, Diabetes, Watts, 1980

  subject: diabetes

  grade(s): secondary

  Roberts, J.A. Fraser, Pembrey, Marcus E., An Introduction to Medical Genetics, Oxford University Press, 1985, 0-19-261409-6

  subject: medical genetics grade(s): professional, teacher

  Intended for medical students and physicians, nurses, genetic associates, and other health professionals  specializing in genetic counseling and scientists such as cytogeneticists, biochemists, and molecular geneticists who are working in genetics as applied to medicine

  Roberts, Wills Davis, Sugar Isn't Everything, Antheneum, 1987, 0-689-21216-0

  grade(s): elementary

  Eleven-year-old Amy is diagnosed with diabetes. An understanding teacher, older brother Matt, and a pamphlet help her to adjust to living with a chronic disease. Useful to young adolescents with diabetes, their families, and friends

  Robinson, Arthur and Linden, Mary G., Clinical Genetics Handbook, Blackwell Scientific Publications, Inc., 1993, 0-86542-194-3

  subject: clinical genetics

  grade(s): secondary, professional

  Robinson, Veronica, David in Silence

  subject: hearing impairment

  grade(s): elementary

  Rodowsky, Colby, What About Me?, Franklin Watts, 1976

  subject: the 'invisible h

  Rosenberg, Maxine, Finding a Way: Living with Exceptional Brothers & Sisters, Lothrop, Lee, Shepard, 1988

  subject: disabilities in families

  grade(s): elementary

  Explores the feelings of three children from three different families, each a brother or sister to a disabled child. Lots of photographs, large print

  Rosenberg, Maxine, My Friend Leslie, Lothrop, Lee, Shepar, 1983

  subject: handicaps

  grade(s): elementary

  Presents a multi-handicapped kindergarten child who is well-accepted by her classmates in various situations within the school setting

  Rosenfield, Israel, Zife, Edward, Van Loon, Borin, DNA for Beginners, Writers and Readers Publishing, Inc., 1983, 0-86316-023-9

  Cartoon guide to basic concepts surrounding DNA and cell replication.

  Roth & Crome, The Little People: Illst. Look at World's Engaging Men & Women, Everest House, 1980

  subject: short stature

  grade(s): secondary

  Rothwell, Norman V., Understanding Genetics: A Molecular Approach, Wiley-Liss, A Division of John Wiley & Sons, Inc., 1993, 0-4715-8822-9

  grade(s): secondary, teacher, adult

  Review of classical genetics for students, information on molecular genetics

  Rousso, Harilyn, Disabled, Female, and Proud!, Exceptional Parent Pr, 1976, 0930958047

  subject: disabilities, women

  grade(s): teacher, health care professionals reference

  Rousso, Harilyn, Disabled, Female, and Proud! Stories of 10 Women w/Disabilities, Exceptional Parent, 1988

  grade(s): teacher, health care professionals reference

  Profiles diverse lives of 10 women who made different types of life choices. Each tells about her education and work, and how she got to where she is now. The stories, written simply and directly, help young people with disabilities learn about experiences and successes of women who have been there. Encourages career exploration

  Roy, Ron, Move Over, Wheelchairs Coming Through, Clarion, 1984

  subject: wheelchair

  grade(s): elementary

  Text and photographs present seven disabled youngsters between the ages of nine and nineteen who use wheelchairs in their fully active lives at home, at school and vacation

  Rubin, Sylvia, It's Not Too Late for a Baby: For Women & Men Over 35, Prentice Hall, 1980, 0135070384

  subject: prenatal information

  grade(s): teacher, adult, professional

  Information focuses on planning a pregnancy after the age 35. Basic genetic information, amniocentesis

  Rugh & Shettles, From Conception to Birth: The Drama of Life's Beginnings, Harper & Row, 1971

  grade(s): secondary

  Rushton M.D. Ph.D., Alan R., Genetics and Medicine in the United States, 1800-1922, Johns Hopkins University Press, 1994, 0-8018-4781-8

  subject: relationship between genetics and medicine

  grade(s): adult

  Relationship between developments in science of genetics and clinical practice of medicine in US

  Sadler, Langman's Medical Embryology, 6th edition, Mosby, Churchill, Waverly, 1990, 7493-8

  subject: medical genetics

  grade(s): adult, professional

  Sarnoff Shiff, Harriet, The Bereaved Parent, Penguin Books, 1978, 0140050434

  subject: grief, Death of a Child

  grade(s): teacher, health care professionals reference

  Written for parents who have lost a child.  Adjustment to this significant loss is discussed

  Saul, Robert A. & Mary C. Phelan, Proceedings of the Greenwood Genetics Center, Vol. 14, Greenwood Genetic Center, 1995

  subject: clinical genetics cases

  grade(s): professional

  A collection of case reports, distributed to other physicians to enhance the exchange of clinical genetic information. Volume 14 has abstracts and presentations from the 1994 David W. Smith Workshop on Malformations and Morphogenesis (Tampa, FL) and the 1994 Southern Genetics Group Meeting (Litchfield-by-the-sea, SC)

  Savitz, Harriet, Fly Wheels Fly

  subject: paraplegics

  grade(s): elementary

  Savitz, Harriet May, Run, Don't Walk, Watts, 1979, 0451146271

  subject: wheelchair

  grade(s): secondary

  Scariver, Charles R., Arthur, L. Beaudet, William S. Sly, and David Valle, The Metabolic and Molecular Bases of Inherited Disease, McGraw-Hill, Inc., 1994, 909826-6

  subject: molecular inheritance of disease

  grade(s): professional

  Schein, J., Forget-me-not, Annick Press Ltd., 1988, 1550370006

  subject: Alzheimer's Disease

  grade(s): elementary

  Author's grandmother comes to live with his family when he is eight years old. During her stay, his family discovers she has Alzheimer's Disease and learns to help her

  Schinzel, Albert, Catalogue of Unbalanced Chromosome Aberrations in Man, Walter de Gruyter, 1984

  grade(s): physician, health care professional reference

  Schwartz, Linda, AIDS Questions & Answers for Kids, The Learning Works, Inc., 1987, 0881601543

  subject: AIDS

  grade(s): elementary

  Questions, answers, puzzles, and games to educate children about AIDS. Revised 1990

  Scottish Education Dept., Learning Through Science: Formulating a School Policy, MacDonald Educational, 1980, 0-35-6062-52X

  subject: reference, school policy

  grade(s): teacher, adult, professional

  Helping teachers to help children between the ages of five and thirteen to learn science through first-hand experience using a variety of methods

  Scriver, Metabolic Basis of Inherited Disease, 2 volume set, McGraw-Hill Book Co., 1989

  subject: metabolic conditions

  grade(s): professional

  Sedivy, John and Joyner, Alexandra, Gene Targeting, Carolina Biological Supply Company, 1992, 45-2461J

  subject: gene targeting

  grade(s): middle, secondary

  Relatively simple language for the non-specialist, extensive illustrations.   Explores science of gene targeting: the modification of genes within a living organism. Review of basic principles of DNA recombination, how genes can be targeted and manipulated to correct genetic disorders and even create new organisms. Discussion of ethical implications

  Selikowitz, Mark, Down Syndrome: The Facts, Oxford University Press, 1990, 0-19-261872-5

  subject: Down syndrome

  grade(s): secondary, adult, professional, teacher

  Seuling, Barbara, I'm Not So Different, Golden, 1986

  subject: differences

  grade(s): elementary

  Seuling's illustrated storybook attempt to show how a handicapped girl is mainstreamed into regular school situations. Story shows how Kit, while confined to a wheelchair, enjoys most of the same things as everyone else

  Seuling, Barbara, The Triplets, Clarion, 1980

  subject: phys. imp./wheelchair

  grade(s): elementary

  Severo, Richard, Lisa H.

  subject: neurofibromatosis

  grade(s): teacher, adult, professional

  First person interview story of Lisa H., who has Neurofibromatosis. Lisa went through sixteen operations on her face and head with little noticeable improvement. Finally, in 1981, she underwent more than eight hours of radical life-threatening surgery to remove massive tumors from her face. Graphic in its detail of Lisa's suffering, but permeated with hope

  Shalom, Debra Buchbinder, Special Kids Make Special Friends, Association for Children with Down Syndrome, 1984

  subject: Down Syndrome

  grade(s): elementary

  Shell, Dorothy, Sent Home to Die, Pacific Press, 1987

  subject: acute porphyria

  grade(s): teacher, adult, professional

  Personal, inspirational account of Dorothy Shell's suffering with porphyria, a rare blood disease about which very little was known when her case was first diagnosed, but the treatment of which she has helped to pioneer

  Shennan, Victoria, Ben, The Bodley Head, 1980

  subject: Down Syndrome

  grade(s): elementary

  Storybook explains how Ben, a child born with Down Syndrome, enjoys 'all the things that other children do', but because of his handicap, he will need special care. Published as part of the Special Situation Picturebook series

  Shepard M.D., Thomas, Catalog of Teratogenic Agents, eighth edition, Johns Hopkins University Press, 1995, 0-8018-5182-3

  subject: teratogenic agents

  grade(s): professional

  List of agents that may cause defects in animals and humans. Contains descriptions and references. Appropriate for health professionals

  Showers, Paul, Me and My Family Tree, Harper & Row Publishers, Inc., 1978, 0-690-03887-9

  subject: heredity

  grade(s): elementary

  Explains to children what a family tree is and how you inherit certain traits from your ancestors. Describes the pea-plant experiments conducted by Gregor Mendel. Illustrated by Don Madden

  Shyer, Marlene, Welcome Home Jellybean, Scribner, 1978

  subject: mental retardation

  grade(s): secondary

  A twelve-year-old boy writes of the changes in his family life when his sister comes home after living in institutions for almost 13 years

  Silverstein, A & V, The Sugar Disease: Diabetes, Lippincott, 1980

  subject: diabetes

  grade(s): middle

  History of diabetes and focuses on discoveries that have allowed control

  Silverstein, A. & V., Runaway Sugar: All About Diabetes, Lippincott, 1981

  subject: diabetes

  grade(s): elementary

  Illustrations for children. Explains cause for diabetes, what happens when it occurs, how a healthy body digests and uses food, and then, how these processes differ for someone with diabetes

  Silverstein, S., The Missing Piece, Harper & Row, 1976

  subject: differences

  grade(s): elementary

  About a wheel that is missing a piece, and how it learns to feel good about itself even though (or because) it is different from the other wheels

  Silverstein, Alvin & Virgin, Heart Disease: America's #1 Killer, 1985

  subject: heart disease

  grade(s): elementary, middle

  Simon, Norma, Cats Do, Dogs Don't, Albert Whitman & Co., 1986

  subject: differences

  grade(s): elementary

  Contrasts, using simple examples, the many differences between dogs and cats

  Simon, Norma, Why Am I Different?, General Publishing, 1976.

  subject: differences

  grade(s): elementary

  Shows everyday examples of how children compare themselves to each other and wonder why they are different. Differences are shown as making our world more colorful and interesting. Aimed at feeling pride in being unique

  Simons, Robin, After the Tears, Harcourt, Brace, 1987, 0156029006

  subject: disabilities

  grade(s): teacher, health care professionals reference

  Stories from many parents who have raised children with disabilities. All felt the same initial anguish on learning of their child's disability. All have come a long way since those initial tears. They share their stories so other parents can know they're not alone, and to offer encouragement and practical suggestions on how to grow with your child

  Sims, Alicia M., Am I Still a Sister?, Big A & Company, 1986, 0961899506

  subject: grief, death of a brother

  grade(s): elementary

  An 11-year-old looks backs at the time when she was 4 and her baby brother died of brain cancer. She shares letters she wrote about her experiences, memories, feelings of loneliness, jealousy, guilt, sadness, confusion, and acceptance. Intermediate

  Sinclair, David, Human Growth After Birth, Oxford University Press, 1990, 261897-0. grade(s): secondary, adult, teacher

  A broad introduction to the study of human growth. A familiarity with the basic structure and function of the human body is assumed, and the text is aimed primarily at preclinical medical students and science students being introduced to human biology

  Singer, Maxine, Genes & Genomes, University Science Books, 1991

  Singer, Sam, Human Genetics: An Introduction to Principles of Heredity, W.H. Freeman and Company, 2nd edition, 1985, 0-7167-1648-8

  subject: human genetics

  grade(s): secondary

  Longer and more detailed that its predecessor. Fundamentals of human genetics and heredity

  Slepian, Jan, Lester's Turn, MacMillan, 1981

  subject: mental retardation

  grade(s): middle

  Witty, powerful coming-of-age novel that confronts the problems of disabled youngsters

  Slepian, Jan, The Alfred Summer, Macmillian, 1980, 0590405705

  grade(s): elementary

  Smith, Recognizing Patterns and Human Malfunctions

  Smith, Doris Buchanan, Kelly's Creek, Thomas Y. Crowell, 1975

  subject: learning disabilities

  grade(s): elementary

  Smith, Gene, The Hayburners

  subject: mental retardation

  grade(s): elementary

  Smith, L., A Special Kind of Sister, Holt, Rinehart, 1977

  subject: mental retardation

  grade(s): elementary

  Focuses on feelings of sister who has a brother with mental retardation. Her brother tends to be ill frequently, which prompts the sister to contemplate feigning illness to gain more parental attention. The understanding and reactions of the girl's friends as well as the general public are explored

  Smith, Nancy Covert, The Falling Apart Winter, Walker and Company

  subject: mental Illness

  grade(s): secondary

  Smith, Shelley D., Genetics and Learning Disabilities, College Hill Press, 1986, 0-88744-141-6

  subject: genetics and learning

  grade(s): adult, professional, teacher

  Compilation of numerous studies on learning disabilities and genetics

  Smith-Moore, J.J., Sally Small, Price/Stern/Sloan, 1988

  subject: short stature

  grade(s): elementary

  Sally learns that good things come in small packages, including herself, after her wish to be tall is granted

  Sobol, Harriet L., My Brother Steven is Retarded, MacMillan Publ. Co., 1977

  subject: mental retardation

  grade(s): elementary

  An eleven-year-old girl talks about her changing feelings toward her older brother, ranging from anger and acute embarrassment to pleasure. Steven is portrayed as a person capable of accomplishment and an integral member of the family. Beth worries about his future and the reactions of her friends and reexamines her old fears that retardation might be 'catching.' Illustrated with photographs. Intermediate

  Sobol, Harriet Langsam, We Don't Look Like Our Mom & Dad, Coward McCann, 1984

  subject: adoption

  grade(s): elementary

  Biography of the Levin family explains the story of how Korean born Joshua and Eric were adopted by their American born parents

  Southall, Ivan, Let the Balloon Go, St. Martin's Press, 1968

  subject: spasticity

  grade(s): elementary

  Spence, Eleanor, The Nothing Place

  subject: deafness

  grade(s): elementary

  Spier, Peter, People, Doubleday & Company, 1980

  subject: differences

  grade(s): elementary

  Picture book for all ages. Explanation of 'how with more that four billion people in this world, it's sometime hard for any of us to feel special.'

  Stanbury, John B., The Metabolic Basis of Inherited Disease, McGraw-Hill Book Co., 1983

  subject: metabolic conditions

  grade(s): physician, health care professional reference

  Stefanik, Alfred T., Copycat Sam, Human Science Press, 1982.

  grade(s): elementary

  Freddie learns how to be friends with Sam, who is mentally retarded. Meant to help youngsters cope with their natural feelings of discomfort and anger and, at the same time, learn to accept people who are disabled. Useful for adults to find ways of dealing with the hostile reactions children may have towards others who are different from themselves

  Stein, Sara Bonnett, About Handicaps (Open Family Series), Walker and Company, 1974, 0802772250

  subject: handicaps

  grade(s): elementary, middle

  Appears to be for two groups of children. Large print beside photos provide good explanations of handicaps for young readers: the accompanying smaller print is more detailed for older children. Photography makes it appealing for adults and children

  Steinbeck, John, Of Mice and Men, Bantam Books, 1988

  subject: brain damaged

  grade(s): secondary

  Classic about the desperate longing of men for some kind of home, and the painful search for self. Speaks of the love that men can feel for each other -- one inarticulate, dumb, sometimes violent in his need; the other clever, hopeful, and tied to a responsibility he thinks he doesn't want

  Stern, Karin Seastone, and Davis, Jessica G., Newborn Screening for Sickle Cell Disease: Issues and Implications, National Maternal and Child Health Clearinghouse, 1994

  subject: sickle cell

  grade(s): secondary

  Proceedings of the Conference held in Washington, DC, June 1993

  Stevenson, Roger E., Judith G. Hall and Richard Goodman, Human Malformation and Related Anomalies, Oxford University Press (two volumes), 1993, 506232-9

  subject: medical genetics, birth defects

  grade(s): professional

  Reference on birth defects by collaboration of 52 authorities. Encyclopedic in scope, including all significant human anomalies. Written for physicians and surgeons who evaluated and treat infants and children with birth defects, also useful resource to students of human development. Two volumes. Volume 1 has 15 chapters dealing with the evaluation and understanding of birth defects, Volume 2 has 37 chapters with human anomalies arranged by anatomical systems. Each section has same format, with  information on incidence, diagnosis, pathogenesis, and causes of human anomalies.   Contributors from embryology, experimental teratology, anthropology, genetics, and the medical specialties. Illustrated with 850 photographs, anatomical drawings, and radiographs. Over 8,000 references cited

  Stockton, William, Altered Destinies: Lives Changed by Genetic Flaws, Doubleday & Co, 1979

  subject: social aspects

  grade(s): teacher, adult, professional

  Series of family cameos which personalize the meaning of having a genetic disorder

  Strachan, Tom & Read, Andrew, Human Molecular Genetics, Wiley Publishers, 1996

  subject: human molecular genetics

  grade(s): secondary, adult, teacher, professional

  From basic science to advanced applications and current practice-- text on the human genome with focus on the architecture, evolution, and expression of the human genome

  Stray-Gundersen, Karen, Babies with Down Syndrome: A New Parents' Guide, Woodbine House, 1995, 0-933149-64-6

  subject: Down syndrome, parenting

  grade(s): teacher, adult, professional

  Written by a mother of a son with Down syndrome, to provide new parents with an introduction to Down syndrome. Intended to help parents searching for information and services. Tells you that kids with Down syndrome are kids first and foremost. Chapters end with comments from parents which contain information and support, warm and helpful

  Stuart, Sandra Lee, Why do I Have to Wear Glasses?, Carol Pub. Group, 1989

  subject: visual impairment

  grade(s): elementary

  Surat, Michele Maria, Angel Child, Dragon Child, Scholastic, Inc., 1983, 0590422715

  subject: prejudice

  grade(s): elementary

  A Vietnamese girl and her family have come to America where she is teased constantly in school. Feelings are resolved and a special surprise in the end

  Sutcliff, Rosemary, The Witch's Brat

  subject: disfigurement

  grade(s): elementary

  Sutton, H. Eldon, An Introduction to Human Genetics, Saunders College, 1988

  subject: human genetics

  grade(s): teacher, health care professional reference

  Basis for human genetic disease

  Suziki, David T., Friffiths, Anthony J.F., Miller, Jeffrey, H., Lewontin, Richard C., An Introduction to Genetic Analysis (Textbook), W.H. Freeman and Company, 1986, 0-7167-1705-0

  subject: basic genetics

  grade(s): secondary, adult, professional

  Suzuki, David, Genethics: The Clash Between the New Genetics and Human Value, W.H. Freeman and Company, 1989

  Sylvester & Klotz, The Gene Age, Charles Scribner's, 1983, 0684188198

  subject: genetic engineering

  grade(s): teacher, adult, professional

  Genetic engineering as industry. Intriguing partnership between biochemistry & business. Ethical questions behind our increasing ability to alter and patent life forms

  Sylvester, Edward J., Klotz, Lynn C., The Gene Age: Genetic Engineering and the Next Industrial Revolution, Charles Scribner's Sons Company, MacMillian Publishing, 1987, 0-684-18819-8

  grade(s): secondary

  Tattersall, Ian, The Human Odyssey, Carolina Biological Supply Company, 1993, 45-2534J

  subject: human evolution

  grade(s): middle, secondary, adult

  Where and when did humans first appear? How have humans not only survived but prevailed? If you are interested in human evolution, this provides accounts of all the significant filius discoveries, examines the methods and tools used, and supplements with numerous photographs and drawings

  Teacher's Lab, 4MAT and Science, Teacher's Lab, 1985

  subject: Teaching Method

  grade(s): teacher, health care professional reference

  Uses 'learning style' teaching techniques with science lessons for illustrations

  Teacher's Lab, 4MAT in Action, Teacher's Lab, 1983

  subject: Teaching Method

  grade(s): teacher, health care professional reference

  Guide for teachers seeking to develop an instructional approach that will effectively reach students of different 'learning styles'

  Teacher's Lab, 4MAT System, Teacher's Lab, 1987

  subject: Teaching Method

  grade(s): teacher, health care professional reference

  'Learning styles' and how they apply to elementary, middle and high school students.

  Temes, Roberta, The Empty Place, Irvington Publishers, 1988.

  subject: grief, death of sibling

  grade(s): elementary

  A young boy discusses his feelings and fantasies about his sister's death from illness. He learns from his babysitter, also a bereaved sibling, that his responses are normal, that his longings for normal family life and friendship will be fulfilled, and ways to ease his pain

  Therman, Susman, Human Chromosomes, 3rd edition, Springer-Verlag New York, Inc., 1992, 97871-2

  subject: chromosomes

  grade(s): adult, professional

  Thoene, Jess G., Journal of Rare Diseases, 1995

  subject: rare diseases

  grade(s): professional

  Supplement and update to Physicians' Guide to Rare Diseases. Released six times per year. Features original articles, plus still more diseases from the constantly expanding database of the National Organization for Rare Disorders

  Thoene, Jess G., Physicians' Guide to Rare Diseases, Second Edition, Dowden Publishing Company, 1994, 0-9628716-0-5

  subject: genetic conditions

  grade(s): professional

  Though written for physicians, the descriptions of diseases, symptoms and treatments are clear and understandable for patients, educators, and others outside the medical profession. For the first time, there's a resource for substantially reducing the time lag in diagnosis. Provides details for accurate differential diagnosis of nearly 700 rare disease

  Thompson, Mary, My Brother, Matthew, Woodbine House, 1992, 0-922149-47-6

  subject: siblings, disabilities

  grade(s): elementary, middle, teacher, professional

  Thompson/Hellack/Braver, Primer of Genetic Analysis: A Problem Approach, Cambridge University

  Provides students from beginning biologists to graduates with guided instructions to solving problems in genetics. Extensive problems are presented, followed by detailed answers that address common difficulties encountered when studying concepts in genetics

  Thrasher, Crystal, The Dark Didn't Catch Me, Atheneum, 1979, 0689704658

  subject: visual impairment

  grade(s): elementary

  Thro, Ellen, Genetic Engineering: Shaping the Materials of Life, Carolina Biological Supply Company, 1993, 45-2457AJ

  subject: genetic engineering

  grade(s): elementary, middle, secondary

  For the younger reader (age 10 and up), introduction for middle and high school students, as well as adults. Manipulation of the genetic information found in DNA and genes has become a basic tool in researach for genetics diseases, cancer, and other health problems. In addition, this biotechnology now allows scientists to create hybrid plants and animals, like tomatoes with pig genes and bacteria that eat oil. To regulate this controversial work, citizens must understand it

  Tingey-Michaelis, C., Handicapped Infants and Children, Exceptional Parent, 1988

  grade(s): teacher, health care professionals reference

  Tocci, Salvatore, Biology Projects for Young Scientists, Watts, 1987

  grade(s): teacher, health care professional reference

  Proposed studies cover several levels of life forms, including microorganisms, plants, genetics, and fertilizations and reproductive development of sea urchins. Requires far more sophisticated users than the standard experiment books

  Tonsgardm, James H., Understanding Neurofibromatosis: An Introduction for Patients and Parents, Neurofibromatosis, Inc., Midatlantic, 1993

  subject: NF

  grade(s): secondary, adult

  Torrey, E. Fuller, Surviving Schizophrenia: A Family Manual.

  grade(s): teacher, health care professionals reference

  From AMI Library at 6724 Troost, #600, Kansas City, MO 64131

  Trent, R.J., Molecular Medicine: An Introductory Text for Students, Churchill Livingstone, 1993, 0-443-04635-2

  subject: medical genetics

  grade(s): secondary

  Tribe/Tallan/Grant, Case Studies in Genetics, Cambridge University Press, 1978

  subject: genetics cases

  grade(s): teacher, health care professionals reference

  Tupling, Hilary, You've Got To Get Through The Outside Layer, Diabetes Education, 1981

  grade(s): teacher, health care professional reference

  U.S. Department of Energy, Bibliography: Ethical, Legal & Social Implications of the Human Genome Project, U.S. Department of Energy, 1992, DOE-ER-0543T

  subject: ELSI resource

  grade(s): middle, secondary, adult, professional

  U.S. Dept Health & Services, Human Genetics: How Gene Splicing Helps Researchers, U.S. Government Printing Office, 1985

  subject: human genetics

  grade(s): teacher, health care professionals reference, teacher adult, professional

  University of Colorado, Genetic Applications: A Health Perspective, University of Colorado, 1988

  subject: human genetics

  grade(s): teacher, health care professional reference

  Supplement to compliment computer teaching program on human genetics, covering basic and clinical genetics

  Van Deman & McDonald, Nuts & Bolts: Matter of Fact Guide to Science Fair Projects, Science Man Press, 1980

  subject: science fair

  grade(s): teacher

  How-to-book on science fair projects. Resource lists, diagrams, tips. For both students, and parents helping a child organize for a project. Guide gives students advantage by providing a good organizational foundation for developing a project

  Van Dyke, D.C., Philip Mattheis, Susan Eberly & Janet Williams, Medical and Surgical Care for Children with Down Syndrome, Woodbine House, 1995, 0-933149-54-9

  subject: Down syndrome, surgery

  grade(s): teacher, adult, professional

  Van Loon, Borin, DNA: The Marvelous Molecule, Carolina Biological Supply Company, 1990, 45-2457J

  subject: DNA

  grade(s): middle, secondary

  How DNA works. Discusses the genetic code, evolution, DNA fingerprinting, and more.   Unique because the pages can be cut out and folded into #-D models of the DNA double helix, a virus, the four DNA nucleotides, and a "folding protein"

  Vanderpool Gormley, Myra, Family Diseases: Are you at risk?, Genealogical Publishing Company, 1989, 0-8063-1254-8

  Veatch, Robert M., and Spicer, Carol Mason, Kennedy Institute of Ethics Journal, Johns Hopkins University Press, 1994

  subject: ethics

  grade(s): teacher, professional

  Opinion and analysis by the Kennedy Institute of Ethics Journal.  Nonsectarian, scholarly forum for diverse views on critical issues in bioethics. Interdisciplinary journal for health care and other interested individuals on controversial moral dilemmas. Creative solutions to difficult policy questions. Each issue includes articles about bioethics in various countries, developments at the federal level ("Bioethics Inside the Beltway"), and overviews and annotated bibliographies on specific topics in bioethics ("Scope Notes"). Published quarterly in March, June, September, and December

  Velasco, Maria Jose, Human Genome Project: Ethics 2, 1992, 84-604-2244-5

  subject: HGP

  grade(s): professional

  Papers at the 2nd Workshop on International Co-operation of the Human Genome Project, organized and sponsored by the Banco Bilbao Vizcaya Foundation in collaboration with the Valencian Foundation for Advanced Studies

  Verlinksy, Yury, and Kuliev, Anver M., Preimplantation Diagnosis of Genetic Diseases: A New Technique in Assisted Reproduction, Wiley-Liss, A Division of John Wiley & Sons, Inc., 1992, 0-471-58824-5

  subject: technology

  grade(s): professional

  For individuals with hereditary genetic disorders such as cystic fibrosis, muscular dystrophy, and hemophilia, the decision to reproduce can be a difficult and emotional problem. For specialists in reproductive medicine, this situation can raises complex, often conflicting, ethical questions. Recently, a revolutionary approach to screening for genetic disorders has emerged, offering unique possibilities

  Verma, Ram, The Genome, VCH Publishers, 1990

  Verma, Ram S. and Babu Arvind, Human Chromosomes: Principles and Techniques, McGraw-Hill, Inc., 1994, 105432-4

  subject: chromosomes

  grade(s): professional

  Detailed protocols you need for advanced laboratory work. Well-illustrated, step-by-step descriptions of the various techniques used in human chromosome research, and how they can be used effectively in the clinical laboratory

  Vigna, Judith, I Wish Daddy Didn't Drink So Much, Albert Whitman & Co., 1988

  subject: alcoholism

  A fter a disappointing Christmas, Lisa learns ways to deal with her father's alcoholism with the help of her mother and an older friend

  Vigna, Judith, Saying Goodbye to Daddy, Albert Whitman & Co., 1991

  subject: grief

  grade(s): elementary, middle, secondary

  Frightened, lonely, and angry after her father is killed in a car accident, Clare is helped through the grieving process by her mother and grandfather

  Viscardi, Henry, A Man's Stature, John Day, 1952

  subject: limb deficiency

  grade(s): secondary

  Vogel & Motulsky, Human Genetics: Problems and Approaches, Springer-Verlag New York, Inc., 1986

  subject: human genetics

  grade(s): professional

  Concepts, data, and problems underlying the theory and practice of human and medical genetics. For advanced students in genetics and those outside the field who would like insight into human genetics

  Voigt, Cynthia, Izzy, Willy Nilly, Athencum, 1986

  subject: learning disabilities

  grade(s): secondary

  Fifteen-year-old, popular, cheerleader and beautiful..then Izzy goes to a party with Marco and is severely injured in an auto accident on the way home. How does one cope with a missing leg? An unexpected friendship with Roseamund, a girl Izzy never bothered with before the accident, helps Izzy take her first uncertain steps to a different life

  Wagner, Sally, How Do You Kiss a Blind Girl?, Charles C. Thomas, 1986

  subject: visual impairment

  grade(s): teacher, adult, professional

  Addresses the despair able-bodied people feel over what to say and what not to say, and over what to do and what not to do when they encounter disabled people. Author gives humorous anecdotes to promote understanding of how blind people feel and how sighted people can respond

  Walker, Lou Ann, Amy - The Story of a Deaf Child, Lodestar Books, 1985

  subject: hearing impairment

  grade(s): elementary, middle

  Text and photographs depict the life of deaf fifth-grader Amy Rowley, who goes to a regular school and enjoys normal activities with the help of hearing aids and sign language

  Walsh, MaryEllen, Schizophrenia: Straight Talk For Families and Friends

  From AMI Library, 6724 Troost, #600, Kansas City, MO 64131

  Wambaugh, Joseph, The Blooding, Perigord Press, 1990, 0-533-28281-6

  subject: DNA technology

  grade(s): secondary, adult

  Warburton, Dorothy, Julianne Byrne, and Nina Canki, Chromosome Anomalies and Prenatal Development, Oxford University Press, 1991, 505145-9

  subject: prenatal

  grade(s): professional

  Wartski, Maureen Crane, My Brother is Special, Westminster Press, 1979, 0451139844

  subject: mental retardation

  grade(s): middle, secondary

  Noni Harlow is determined to help her retarded brother become a winner. She plans to get Kip to the Special Olympics so he can show everyone what love and courage and winning is all about

  Watkins & Johnson, Removing Cultural & Ethnic Barriers to Health Care, U. of North Carolina, 1985

  subject: minorities

  grade(s): teacher, health care professionals reference

  Selected papers from a national conference, Removing Cultural and Ethic Barriers to Health Care,..Participants at the Conference were social workers from across the country in leadership positions of programs related to Maternal and Child Health and Crippled Children's Services

  Watson, James and John Tooze, The DNA Story: A Documentary History of Gene Cloning, W.H. Freeman and Company, 1981

  grade(s): teacher, health care professional reference

  Covers the public controversy surrounding the use of recombinant DNA methodology from 1973 - 1981. Articles and documents are reprinted in a logical order which allow the reader to understand the development of the controversy (both for and against) surrounding recombinant DNA

  Watson, James D., The Double Helix, Atheneum Publishers, 1968

  subject: DNA

  grade(s): secondary

  A personal account of the discovery of the structure of DNA

  Watson, James, D., J. Witkowski, M. Gilman, M. Zoller, Recombinant DNA, 2nd Edition, Scientific American Publication, 1990, 0-7167-2282-8

  subject: DNA

  grade(s): secondary, adult, professional

  An excellent blend of methodology and concepts. Contains an up-to-date overview of the state of recombinant DNA genetics. Primarily aimed at undergraduate biology and genetics students

  Weatherall, D. J., The New Genetics and Clinical Practice, Oxford University Press, 1991, 20192619055

  subject: medical genetics

  grade(s): teacher, professional

  Discusses genetics -- advances in molecular biology which have led to the development of methods for isolating and determining the fine structure of genes and for studying their function in the test tube, making it possible to start to define many human genetic diseases in terms of their molecular pathology. Directed at clinicians, research workers and health administrators

  Weaver, Robert F., Hedrick, Philip W., Genetics, Wm. C. Brown Publishers, 1989, 0-697-00556-9

  grade(s): secondary

  Weiss, Ann E., Bioethics: Dilemmas in Modern Medicine, Enslow Publishers, Inc., 1985, 0-89490-113-3

  subject: ethics

  grade(s): secondary, adult, professional

  Survey of the complex issues in the broad field of bioethics: including medical, moral, social, political, religious, legal and financial questions

  Weiss, Joan O. & Mackta, Jayne S., Starting and Sustaining Genetic Support Groups, Johns Hopkins University Press, 1996, 0-8018-5023-1

  subject: genetic support groups

  grade(s): adult

  Guide to genetic support groups, planning and organizing, fund raising, publicizing. Sample budgets and news releases, tables and checklists, specific information to guide operating a successful group. Explains roles of the genetics professionals in group development and the importance of consumer-professional collaboration. Paperback   $18.95. ISBN # 0-8018-5264-1

  Weiss, Nicki, A Family Story, Greenwillow

  West, Jane, Americans With Disabilities Act: From Policy to Practice, Milbank Memorial Fund, 1991, 096298700-X

  subject: ADA

  grade(s): secondary, adult

  White, Paul, Janet at School, Harper & Row, 1978

  subject: spina bifida

  grade(s): elementary

  Story and photographs describe life of a little girl with spina bifida, at home, school, and on a camping trip

  White, Ryan, Ryan White: My Own Story, Dial Books, 1991, 0-8037-0977-3

  subject: AIDS

  grade(s): secondary, adult

  A young boy is denied the right to go to school because he has AIDS

  Wild, Margaret, All the Better to See You With!, Albert Whitman & Co., 1995, 0-8075-0284-7

  subject: vision, glasses

  grade(s): elementary

  Wills, Christopher, Exons, Introns and Talking Genes: The Science Behind the Human Genome Project, BasicBooks, 1991

  Wilson, Golder and Finkelstein, Janice, PreTest Genetics: PreTest Self-Assessment and Review, McGraw-Hill Book Co., 1993, 0-07-052009-7

  subject: evaluation

  grade(s): professional

  Winchester/Mertens, Human Genetics, Charles E. Merrill, 1983, 0675200083

  subject: human genetics

  grade(s): teacher, health care professionals reference

  Educators with extensive teaching experience training teachers, present discussion of genetic topics, beginning with the nature of genes and ending with some of the more complicated aspects of the population genetics. Emphasis on the medical applications of genetics. Clinical descriptions provided

  Wingerson, Lois, Mapping Our Genes: The Genome Project And The Future Of Medicine, Dutton, NY, 1990, 0-525-24877-3

  subject: HGP

  grade(s): secondary, adult

  Witheridge, Elizabeth, Dead-End Bluff

  subject: visual impairment

  grade(s): elementary

  Wolf, Bernard, Anna's Silent World, Lippincott, 1977

  subject: hearing impairment

  grade(s): elementary

  Combination of photo journalism and story of how Anna learns to live with deafness

  Wolf, Bernard, Connie's New Eyes, Harper Row, NY, 1976

  subject: visual impairment

  grade(s): middle

  Connie David has been blind since birth. She is about to begin her first full-time teaching job at a school for handicapped children. Alison Gooding is raising a golden retriever puppy named Blythe. Blythe will be trained as a Seeing Eye dog and will one day be Connie's new eyes

  Wolf, Bernard, Don't Feel Sorry for Paul, Harper & Row, 1974

  subject: limb deficiency

  grade(s): elementary, middle

  Depicts the day to day life of a second-grader who must wear prosthetic devices for his incompletely formed hands and feet. Photographs and text take the mystery away from such equipment while portraying Paul and his family in their varied activities, including preparations for Paul's birthday party

  Woodson, Meg, If I Die at Thirty, Zonderba, 1975

  subject: cystic fibrosis

  grade(s): secondary

  Woohead, Avril, Biotechnology and the Human Genome, Plenum Publishing Corporation, 1988

  Wright/ Nomura, From Toys to Computers

  grade(s): teacher, health care professional reference

  Contact Gray's Book Company in Berkeley, California for details

  Wrightson, Patricia, A Racecourse For Andy

  subject: Mental Retardation

  grade(s): elementary

  Wynbrandt J. and Ludman M.D., The Encyclopedia of Genetic Disorders and Birth Defects, Facts on File, Inc., 1991, 0-8160-1926-6

  subject: medical genetics

  grade(s): middle, secondary, adult, professional

  Reference on all aspects of clinical genetics - terms defined, accurate clinical information, reference information, addresses of support organizations. For each disorder provides: historical data re: its original identification, info on prognosis, availability of prenatal detection, biochemical and molecular bases

  Zemagh, Harve and Margot, A Penny a Look, Farrar, Straus, Giroux, 1971, 0374457581

  subject: Prejudice

  grade(s): elementary

  Two two-eyed brothers set out to capture a one-eyed man to put in a circus; however, their scheme backfires and they end up being captured themselves by the one-eyed people and are put in their circus

  Zonderman, Jon, Beyond the Crime Lab: The New Science of Investigation, Ward's Natural Science Establishment, Inc., 1995, 32 W 1779

  subject: forensics

  grade(s): middle, secondary

  Publishers & Resources for Books, Booklets and Brochures

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Debra Collins, M.S. CGC, Genetic Counselor, dcollins@kumc.edu

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