FSHD Clinical Trial Research Network
FSHD > Resources for Patients
Resources for FSHD Patients
Get Involved in FSHD Research as a Patient
Patient participation is essential to advancing FSHD research. Your volunteer efforts are invaluable.
Ways you can help:
- Participate in a clinical trial study
Your participation helps find answers and solutions. Learn more >>
View active studies - Patient focus groups
Give specific feedback about functional motor evaluations and other common clinical procedures. - Patient advisory committees
Provide insight about running a study, recruitment, retention, and results dissemination.
Resources
- Patient newsletters
- Printable handouts
- Webinars
- Websites
Last modified:
Aug 19, 2020