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Resources for FSHD Patients

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Get Involved in FSHD Research as a Patient

Patient participation is essential to advancing FSHD research. Your volunteer efforts are invaluable.

Ways you can help:

  • Participate in a clinical trial study
    Your participation helps find answers and solutions. Learn more >>
    View active studies
  • Patient focus groups
    Give specific feedback about functional motor evaluations and other common clinical procedures.
  • Patient advisory committees
    Provide insight about running a study, recruitment, retention, and results dissemination.


Contact Us

Last modified: Aug 19, 2020
Clinical Trials
Contact Us

Kiley Higgs
Project Manager