Resources for FSHD Patients
Get Involved in FSHD Research as a Patient
Patient participation is essential to advancing FSHD research. Your volunteer efforts are invaluable.
Ways you can help:
- Participate in a clinical trial study
Your participation helps find answers and solutions. Learn more >>
View active studies
- Patient focus groups
Give specific feedback about functional motor evaluations and other common clinical procedures.
- Patient advisory committees
Provide insight about running a study, recruitment, retention, and results dissemination.
- Patient newsletters
- Printable handouts
Last modified: Aug 19, 2020