Facioscapulohumeral Muscular Dystrophy Clinical Trial Research Network
The FSHD CTRN is a consortium of academic research centers with expertise in FSHD clinical research or in conducting neuromuscular clinical trials. Network affiliation offers researchers the ability to leverage existing clinical trials infrastructure and common standard operating procedures (SOPs) for handling projects, regulatory approval, data collection and analysis – hastening the ability to reach our common goal of making new FSHD therapies available.
Explore the available resources and services.
What We Do
Our network offers a variety of resources and services for researchers and industry:
- Consults for protocol development
- Clinical evaluator training
- Guidance on site selection
- Focus groups
- Formulate feedback meetings