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Facioscapulohumeral Muscular Dystrophy Clinical Trial Research Network

The FSHD CTRN is a consortium of academic research centers with expertise in FSHD clinical research or in conducting neuromuscular clinical trials. Network affiliation offers researchers the ability to leverage existing clinical trials infrastructure and common standard operating procedures (SOPs) for handling projects, regulatory approval, data collection and analysis – hastening the ability to reach our common goal of making new FSHD therapies available.

Explore the available resources and services.

What We Do

researcher looking at a test panel

Our network offers a variety of resources and services for researchers and industry:

  • Consults for protocol development
  • Clinical evaluator training
  • Guidance on site selection
  • Focus groups
  • Formulate feedback meetings

Contact Us

University of Washington University of Utah University of California Los Angeles University of Kansas Medical Center Ohio State University University of Rochester Kennedy Krieger Institute Virginia Commonwealth University Nice University Hospital University of Milan Radboud University Medical Center

Last modified: May 07, 2019
Events

Virtual Rock & Roll to Cure FSHD
September 12, 2020
virtual

ReSolve Year 4 Investigator Meeting
October 23, 2020

FSHD Society Sequester Camp
Every Thursday, 12 p.m. CST/1 p.m. EST
more information

Clinical Trials
Contact Us

Kiley Higgs
Project Manager
913-945-9922
ksims2@kumc.edu

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