What are your rights as a research participant?
At the Center for American Indian Community Health, we believe that you need to know your rights when you participate in research. KUMC has many things in place to help protect you. To learn more about what KUMC does to protect you, please visit the Human Research Protection Program website http://www.kumc.edu/human-research-protection-program.html
We have things available at our Center to protect you as well! Our Cultural Review and Monitoring Committee (CRMC) monitors all research at KUMC that is done with American Indian communities. This group of American Indian Center members looks at all research protocols before they can start to make sure appropriate tribal approvals have been obtained and to make sure everything is being done in a culturally appropriate manner. We are currently working on a web page for CRMC which will provide detailed information.
Some things you should know…
What’s the difference between research and medical care?
Research aims to answer questions. Participating in research may feel like going to the doctor, but that is not the goal. The goal of research is to answer questions about science and medicine. Some questions might include how your body works or if a new program or drug works. Research is done under the supervision of a research team. The government or a private company usually pays for research.
What rights do I have as a research participant?
As a research participant, you have the right:
Why should I participate in research?
What questions should I ask before I participate in a research study?